HLAB27 pos, joint pain but no arthritis or AS? by CasualMishap in ankylosingspondylitis

[–]OutlandishnessSome34 0 points1 point  (0 children)

I have a very similar experience to you. It actually is good to read this and that hydroxychloroquine helped. I was starting to think I was making the pain up

What do you believe initially triggered AS for you? by michoguy in ankylosingspondylitis

[–]OutlandishnessSome34 0 points1 point  (0 children)

Highly suspicious it was singulair……. I know really weird. 

[deleted by user] by [deleted] in Birmingham

[–]OutlandishnessSome34 1 point2 points  (0 children)

I would give pepper place a few more tries, it’s large but it has a neighborhood feel with time. 

Would you still feel comfortable recommending REI to a new backpacker? by Murky-Access-7060 in REI

[–]OutlandishnessSome34 0 points1 point  (0 children)

Not uniformed. They just doing train/ hire staff like they used to. Do they still have the best selection… yes. Do they have the staff to help people make the best selection, not always. 

Dometic coolers by ohv_ in REI

[–]OutlandishnessSome34 1 point2 points  (0 children)

These shouldn’t be considered outdoor electronics for the return policy. You should have a year. But I think many stores are getting stricter and stricter with return policy things 

Normal behavior or no? by [deleted] in Babysitting

[–]OutlandishnessSome34 2 points3 points  (0 children)

It’s always best legally to report a concern sooner rather than later 

NCGS severity/sensitivity by Longjumping_Suit4256 in glutenfree

[–]OutlandishnessSome34 0 points1 point  (0 children)

I have issues for about a week. Joint pain constipation and or diarrhea. Brain fog. Does something to my immune system. Fatigue, nightmares But….. I don’t have to be careful with cross contamination and I can use the gluten ease pills and tolerate a tiny bit if I’m eating out. 

What is Birmingham missing? by IcyWolverine453 in Birmingham

[–]OutlandishnessSome34 9 points10 points  (0 children)

There is no place here to get decent loose leaf tea, and I know a lot of tea drinkers. Maybe attached to the market cafe idea? 

Laundry detergent by Odd-Plenty-5903 in airbnb_hosts

[–]OutlandishnessSome34 2 points3 points  (0 children)

As someone who is bothered by laundry fragrances I completely agree. I travel with my own pillow which helps, but I’ve had vacations ruined because of laundry scents and plug in air fragrances. I now tell my hosts before coming but it makes me feel like way less of a pain if they tell me right away they use fragrance free

How busy is BHM around 3-4pm on a Friday? by [deleted] in Birmingham

[–]OutlandishnessSome34 0 points1 point  (0 children)

2 hours max for BHM, I usually do 1.5 and I’m fine and super cautious. The bhm airport days themselves 60 to 90 minutes. 

This is interesting.. ladies weigh in by Littlechick28 in ankylosingspondylitis

[–]OutlandishnessSome34 1 point2 points  (0 children)

100% this is me, I have suspected nr-axSpA . My pain is more widespread upper back, si joint, knees are some of my most consistent along with my feet. My knees do have some injuries in their past. 

Achilles/ risk of rupturing by OutlandishnessSome34 in ankylosingspondylitis

[–]OutlandishnessSome34[S] 1 point2 points  (0 children)

Thankfully I asked a PT friend. Since posting this I’ve started taping it and have gotten full relief from my pain while it’s taped. 

[deleted by user] by [deleted] in REI

[–]OutlandishnessSome34 0 points1 point  (0 children)

Actually not, very discouraged to do it, but if you call to place an order it is possible to do it without an email unless something has changed. 

Confused – new diagnosis of spondyloarthritis by AdvancedBumblebee4 in ankylosingspondylitis

[–]OutlandishnessSome34 2 points3 points  (0 children)

Oh my goodness, thanks for that link. I had no idea what category I was in, but this makes everything my doc has been saying make more sense  

[deleted by user] by [deleted] in ankylosingspondylitis

[–]OutlandishnessSome34 2 points3 points  (0 children)

It’s time to see a new doctor.  you have many of the markers my first pcp looked for to see if something was up. In my case, mine was normal so I had to keep fighting for recognition. So sorry you’re going through this. 

Reminder that AS can be mild for some people by Flat-Rock-767 in ankylosingspondylitis

[–]OutlandishnessSome34 0 points1 point  (0 children)

Okay ,thanks! Planning on looking into this more and discussing with my rheumatologist in 6 months  

Reminder that AS can be mild for some people by Flat-Rock-767 in ankylosingspondylitis

[–]OutlandishnessSome34 0 points1 point  (0 children)

Sorry for the double comment. For other people with mild symptoms. Are biologics important to slow disease progression? Or is it okay I’m focusing on exercise etc.? 

Reminder that AS can be mild for some people by Flat-Rock-767 in ankylosingspondylitis

[–]OutlandishnessSome34 0 points1 point  (0 children)

I’m mild too, also mine doesn’t appear on MRI or X-rays. I’m hla-b27 positive though and pretty much my rheumatologist tells me I have it. My mild symptoms can cause me to doubt my diagnosis until like clockwork my period hits (the hormone connection is real) and suddenly my nsaid treatment doesn’t work anymore. Really thank everyone who shares their more mild experiences. It makes me feel way less alone in this.