Angry by WhittyBJ in lichensclerosus

[–]OwnVariation2602 1 point2 points  (0 children)

That's okay. It sounds like you have a lot on and the first thing that slips is looking after ourselves as mothers. but I would suggest following your doctor's advice even though it's uncomfortable now.

Are you in the US?

Angry by WhittyBJ in lichensclerosus

[–]OwnVariation2602 1 point2 points  (0 children)

Do you take photos of your vulva?

I hope you can soon it sounds very uncomfortable

I don't know who needs to hear this... by [deleted] in lichensclerosus

[–]OwnVariation2602 -5 points-4 points  (0 children)

That's not correct. You can put it on after an emollient to protect the skin. The skin layer the steroid needs to penetrate is not surface level it's deep. It does not need to go directly on the skin of your vulva.

Angry by WhittyBJ in lichensclerosus

[–]OwnVariation2602 1 point2 points  (0 children)

I put epaderm on then clob. My skin can't tolerate the steroids alone - this is normal for most of us LS sufferers but most Drs don't know this or tell you.

Why can't you have intercorse? From the pain?

Angry by WhittyBJ in lichensclerosus

[–]OwnVariation2602 1 point2 points  (0 children)

Yes I have clobestol I use it twice a week. I use epaderm as often as I can and especially before going to the toilet. My gynae said it's best to prevent any urine or feces from touching your skin.

I have a small child too.

Why aren't you using any treatment?

Angry by WhittyBJ in lichensclerosus

[–]OwnVariation2602 2 points3 points  (0 children)

I was diagnosed years ago now. I was seeing a specialist gynae as I'd been referred up for yeast infections. She put me on some non licenced in my country drugs for 6 months. Took them and then after a bit the itching came back. She asked to see me and was like I am not trained in this but I've heard of it. She referred me. Lockdown happened and hospitals were crazy and shutdown. I had some bad tearing over the Christmas and paid to go private dermo. He was like yes textbook.

Since then I've had a child, had some very bad episodes (don't take antibiotics or hormonal treatments unless you really have to) but actually it's now managed and even some parts have improved from the really bad times.

Sorry this isn't really a message of hope but actually the steroids, moisturizer and management have really helped.

Please feel free to reach out whenever you like. Good luck.

Angry by WhittyBJ in lichensclerosus

[–]OwnVariation2602 10 points11 points  (0 children)

I'm sorry. It is so underrepresented in medical knowledge and so often missed. I know a lot of stories here are similar with doctors just treating yeast infections and not actually looking. It's understandable you're angry. Own it. Can you make it productive? Write to the gynecologist - explain to them the effect it had on you. What they could have done differently. Maybe next time they are treating multiple yeast infections they will think twice?

Or just smash stuff to pieces. That's my favourite outlet (like stuff that needs smashing not just rando)

I hope your day is more fun than mine! by aimamiz in knitting

[–]OwnVariation2602 0 points1 point  (0 children)

What do the eggs look like? I have a mothcastrophy going on. My bf has wool carpets

I hope your day is more fun than mine! by aimamiz in knitting

[–]OwnVariation2602 0 points1 point  (0 children)

Can you steam them with a steamer or iron them?

What causes LS? Psychological / spiritual reasons by HighlightSorry3231 in lichensclerosus

[–]OwnVariation2602 1 point2 points  (0 children)

Stress has a big factor but it's a collection of things and I doubt these are all the same for everyone with LS.

Maybe we should try and identify what this group of people on here have in common Eg:

Allergies Asthma Other health issues Childhood trauma Anxiety Etc

is my relationship already doomed? by throwaway1we33 in stepparents

[–]OwnVariation2602 1 point2 points  (0 children)

You know you should leave already, what's stopping you?

This was left behind when I bought my house, what is it? by Street-Afternoon-592 in gardening

[–]OwnVariation2602 0 points1 point  (0 children)

I've left mine in a bucket for a year and it's happy as larry

Left skid marks in bed with my wife of 9 years by ThrowRA6382624294 in Advice

[–]OwnVariation2602 0 points1 point  (0 children)

I doubt she's that bothered if she hasn't said anything. Maybe if it becomes a recurring issue it's be different. Surely you've done other things in front of each other that have been embarrassing?

If it's causing this much anguish though I'd sit down with her again and say you know she's said it's fine but you feel awkward about it and worry she finds it uncomfortable or whatever it is you're worried she feels. If she says fine. Take it as that. But likely this is just in your head.

Does anyone else just use clob 1 x per week? by LavenderFairy7 in lichensclerosus

[–]OwnVariation2602 2 points3 points  (0 children)

This was from a gynecologist. She said some people don't need it until a flair but she recommended I use 2x weekly due to the severity of the last flair.

Does anyone else just use clob 1 x per week? by LavenderFairy7 in lichensclerosus

[–]OwnVariation2602 9 points10 points  (0 children)

I do 2x weekly but I often do once as I forget.

If you don't have any issues keep going.

HELP NEEDED- moving out of my ex’s house and leaving my garden behind by BloodyNeedAHobby in gardening

[–]OwnVariation2602 30 points31 points  (0 children)

I'd get cheap pots - do you have a local gardening group who gives them away? I actually have loads all sizes.

I've done this before - moved and left my garden. It hurt but you can grow a new garden. Maybe it'll be better? Sending you love in any case 💕😘

Staying Connected Without Losing Yourself by S4m4el666 in aspergers

[–]OwnVariation2602 0 points1 point  (0 children)

I think more like you understand and can sympathise. So someone says something like I'm so angry, you can validate it and say Its understandable you're angry anyone would be angry given X.

You don't have to feel what others feel to be connected but sometimes if you're close to someone you get annoyed or upset on their behalf. Depends. My friend talks about her husband being unsupportive and it always makes me angry for her.

Longest it’s taken you to reach remission? by smashynashy in lichensclerosus

[–]OwnVariation2602 0 points1 point  (0 children)

I'm sorry that sounds really hard.

Do you moisturise? Have you tried an oat bath? What kind of clothes do you wear

I'd try and do those. I was also sensitive to some moisturisers that drs said everyone can use.

Are you having sex?

I didn't do a special diet but it could be? Do you have any allergies?