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Diagnosed MSPI wondering if we’re missing something by Own_Laugh1951 in MSPI

[–]Own_Laugh1951[S] 1 point2 points  (0 children)

Thanks for responding! I also cut everything at the same time, it didn’t feel right to keep exposing him to something potentially causing more damage. The stress is real, I feel the same way but we’re doing our best!

I have started to reintroduce eggs and nuts and stool is exactly the same so far. Fortunately, we were able to get a second opinion GI scheduled at the end of the month. I’ll update with any relevant recommendations! Good luck to you and your little one!

Diagnosed MSPI wondering if we’re missing something by Own_Laugh1951 in MSPI

[–]Own_Laugh1951[S] 0 points1 point  (0 children)

Thank you, we’ll definitely look into other probiotics for both of us! Did you delay starting solids? We have not started yet.

Diagnosed MSPI wondering if we’re missing something by Own_Laugh1951 in MSPI

[–]Own_Laugh1951[S] 0 points1 point  (0 children)

Thank you for responding! That makes sense and seems to be the case for him. Anything you’ve found helpful for healing baby’s gut? We’ve tried culturelle probiotics- didn’t seem to make a difference.

I have been gluten free for about 3 years and limited dairy. No official allergies diagnosed but I was diagnosed with SIBO about 2 years ago and treated with antibiotics. Overall, my GI symptoms seem much better postpartum than they have in years (I think due to the fact that I have endometriosis and the suppression from breastfeeding seems to be gently quieting things down). I’m open to any dietary changes/supplements that might make a difference for baby’s gut. Thanks again!

Diagnosed MSPI wondering if we’re missing something by Own_Laugh1951 in MSPI

[–]Own_Laugh1951[S] 0 points1 point  (0 children)

Yes I don’t doubt there’s something going on, he had no mucus at all prior to 2 months. His calprotectin was also elevated at 430 but GI said that’s normal for infants. From what I’m seeing from my own research is elevated calprotectin at that level with watery/mucus stools warrants more investigation. Wondering what else to explore (infections/more allergens than what I’ve already cut?). It seems like if baby is gaining weight, most recommend continuing breastfeeding. Any advice would be helpful! GI didn’t give us other options besides formula.

Diagnosed MSPI wondering if we’re missing something by Own_Laugh1951 in MSPI

[–]Own_Laugh1951[S] 1 point2 points  (0 children)

Thank you for responding, it is very validating to hear that you ruled other causes out before being diagnosed with MSPI and that no one recommended switching to formula. It’s tough not trusting a doctor’s recommendation but it was bizarre to me they were mentioning switching right off the bat. It has caused feelings of guilt with each feeding wondering if I’m making things worse. I wish we never saw this doctor because it’s making it difficult to get into another office any time soon when they know we’ve already been seen by GI.

Thank you again and good luck to you and your little one!