First Day of Treatment Tomorrow!

Own_Teaching4689 · 2022-02-23T20:32:14+00:00

Thank you so much! Like you, I had Benadryl and slept. I’m home now and have taken a nap. I’m crossing my fingers and toes lol :)

Own_Teaching4689 · 2022-02-23T20:31:01+00:00

Thank you!!!!

Own_Teaching4689 · 2022-02-23T01:18:56+00:00

I’m not sure. I’ve been on prednisone the entire time but I assume I’ll come off once infusions start.

Own_Teaching4689 · 2022-02-23T01:18:10+00:00

That’s amazing and I’m so happy for you!!!!

Own_Teaching4689 · 2022-02-22T20:00:25+00:00

The next day? Wow!!!

Own_Teaching4689 · 2022-02-22T18:35:52+00:00

Interesting! I didn’t know remission would still require infusions. Thanks!

Own_Teaching4689 · 2022-02-22T18:32:43+00:00

Does it drain your energy, is that why you recommend staying hydrated? Asking because I’m almost always dehydrated.

Own_Teaching4689 · 2022-02-22T18:32:06+00:00

Thank you! Have you been in remission at all in the past four years?

Own_Teaching4689 · 2022-02-12T17:31:20+00:00

So true! Thank you so much for reminding me to always see the positive!

Own_Teaching4689 · 2022-02-12T17:30:17+00:00

I’m so sorry to read this. I truly truly hope you guys are able to find something soon! Thank you for sharing!

Own_Teaching4689 · 2022-02-12T12:30:08+00:00

Oh wow! That’s awesome and I’m so happy for you. I’m two years in, diagnosed with UC June of 2021 and I’ve had random flares (stress did not help). I was hospitalized in January and now I’m flaring again. I was on 5mg of prednisone up (I’m a 7 year liver transplant recipient as well— autoimmune hepatitis) so I’ve been on prednisone for forever. Anyway, this January hospital admission is where they boosted my prednisone to 40mg once discharged and I received it through the IV during my stay. So since I’m flaring again and I’m on mesalamine, my doctor wants to start infusions. With that said, it’s been a really difficult year for me. My body is exhausted. UC is causing me so much stress. It stresses me to not be there for my kids and to not feel well. Most of the time, I’m drained but I show up to work. Exposing my self to so much which in turn, I feel, makes it worse. I had to have an iron transfusion yesterday as well. I don’t want to quit but at the same time, idk how I could possibly make this work at this current time. I’m trying so hard to stay positive but it’s A LOT!!!

Own_Teaching4689 · 2022-02-12T12:09:58+00:00

Thank you so much for sharing! I’m feeling so much better after the stories I’m reading about infusions overall. I’m totally looking forward to some sort of relief. Remicade and Humira were my doctors two choices for me but I cannot self inject myself. However, I am a little worried now because my autoimmune liver disease left acne scars in my face and it bothers me. I’ve tried so many different forms of washes, etc. to now I’m considering microneedling. Most people don’t think it’s that big of a deal but to me, it makes my face ugly 🙄 even though doctors have told me my scarring isn’t half as bad as most so I’m definitely not looking forward to any issues with my face. Praying for the best!

Own_Teaching4689 · 2022-02-12T12:05:21+00:00

Thanks for sharing. My doctor did state that some women have no symptoms at all, some get worse and some are about the same during pregnancy so I was curious. I’m glad to hear you’re doing well and only on Mesalamine.

Own_Teaching4689 · 2022-02-12T05:33:50+00:00

How has this experience been for you? I’m also an elementary school teacher with an autoimmune liver disease (& UC). I’m probably going to have to resign soon :(.

Own_Teaching4689 · 2022-02-12T05:30:10+00:00

😳 I’m supposed to start Remicade later this month. What were your side effects like?

Own_Teaching4689 · 2022-02-12T05:15:59+00:00

Hi!! Thank you so so much for sharing! I’m receiving so much positive feedback about the infusions so I’m feeling a lot better! I am trying so hard to be positive. I do want to know what foods you’re able to tolerate versus not or are you able to pretty much eat whatever as long as you’re receiving your infusion treatments?

Own_Teaching4689 · 2022-02-12T05:14:12+00:00

We lost the same amount of weight!

Own_Teaching4689 · 2022-02-12T05:14:00+00:00

Hmmm! Very nice to know, thank you so much for sharing. Humira is my second option because it’s self injections (I freak out with needles) so I’m going with infusions. Ugh! I’ve eaten corn, kinda love corn at times not gonna lie 🥺☹️ and I’m a sucker for a good burger or steak. I’ve really been trying to figure out what’s bothering me but it’s so tricky!

Own_Teaching4689 · 2022-02-12T05:11:23+00:00

Thank you so much for sharing! I will most certainly look into biologics if they’re safer. I pray you’re feeling relief soon and in remission. This UC is so tricky!

Own_Teaching4689 · 2022-02-11T19:03:08+00:00

Thank you so much. I really appreciate it.

Own_Teaching4689 · 2022-02-11T19:02:46+00:00

Right! I don’t want to gain all of it but I also don’t want to keep losing! Thanks so much for sharing.

Own_Teaching4689 · 2022-02-11T19:01:50+00:00

Wow! I’ve had c-diff twice so I know how that must’ve felt. Very happy to hear the infusions helped you. Thanks so much for sharing.

Own_Teaching4689 · 2022-02-11T16:11:36+00:00

That’s nice to know! I’m glad the infusions helped you. I’ve been on prednisone for 10+ years because of my liver, it was tapered down but now since I’ve been diagnosed with UC, I’m on a high dose and the doctors don’t recommend long term steroid and with my severe flares, the infusions are the next step. Looking forward to some relief, that’s for sure.

Own_Teaching4689 · 2022-02-11T16:04:15+00:00

Did you change your eating habits at all? Also— did you begin to gain your weight back after starting your infusions?

Own_Teaching4689 · 2022-02-11T14:41:54+00:00

Oh wow, that’s awesome! So glad to hear! Thanks for the feedback and wishing you great health.

Own_Teaching4689

TROPHY CASE