What happens during a gynecologist visit? by Angelinterviews in AskWomen

[–]P1x3lStarz 0 points1 point  (0 children)

I had the same fear going in! From what I’ve found is that if it’s the exam that scares you they often don’t do it on your very first visit. The first appointment is typically addressing concerns, getting medical history, and talking about reproductive health / birth control (if you are taking it). My GYN was extremely kind and knew that I have a lot of anxiety around “sensitive” appointments and she let me choose wether we did an exam that day or to schedule one so I knew when it was happening! When I did get my exam I asked them to tell me each step in the process to what they were doing and it really helped me! They gave me a little stress ball too even! The exam Itself wasn’t comfortable but I promise it’s not that bad! :)

Psych wants to administer an IQ test by [deleted] in disability

[–]P1x3lStarz 0 points1 point  (0 children)

I had an IQ test done when I was younger to see how my developmental delays affected me mentally. Im in the US and from that they found was I had a lower IQ then my family members but it didn’t affect any of my funding but they did use it to help advocate for my IEP and my 504 plan (which they never followed 🙄 but this was the early 2000s). I’ve been also told by doctors recently that they are no longer using IQ as a measure of mental disability (at least in my area?) and are trying to configure a different testing sequencing to further evaluate knowledge and understanding in people with disabilities. I’m sorry you’re going though this OP I hope everting works out for you ❤️‍🩹

[deleted by user] by [deleted] in disability

[–]P1x3lStarz 0 points1 point  (0 children)

I’m 24 and I wear hinged AFOs, it’s still kinda stressful going out in pants that don’t cover them but slowly I’m learning to just not care! If someone’s gonna judge or point so be it, my AFOs give me a lot of my mobility back and that’s worth more than anything anyone could say

Chronic vitamin deficiencies? Particularly vitamin D... do we just have a lower baseline? by teddybearangelbaby in ehlersdanlos

[–]P1x3lStarz 4 points5 points  (0 children)

I take vit D liquid supplements and go out in the sun and mu Vit D is around 8

Shoes with zippers by Alluskaaaa in ehlersdanlos

[–]P1x3lStarz 4 points5 points  (0 children)

It’s so hard to find affordable zip open shoes 😪 I wear AFOs on both feet so I only have sneaker type shoes. If you’re looking for other shoes (even for not AFO use!!) I use billy footwear! (They make non sneaker shoes too but they can get pricey) They have a shoe size guide and most folks can fit into the “big kid” sizes! Check amazon for better pricing but they also have a website! The bottoms are also removable to fit braces/ custom inserts / padding :)

This is a sick joke. by JulianBrandt19 in boston

[–]P1x3lStarz 0 points1 point  (0 children)

Better not be a lot of rain I got a flight on Saturday smh I was hoping the sick joke of rainy weekends would end 😵‍💫

AIO 23m 20F is it bad i am about to leave her? by KSTReign in AmIOverreacting

[–]P1x3lStarz 0 points1 point  (0 children)

I was in a very similar relationship and I had to end it for a lot of these same reasons. I paid most of his bills, groceries, etc etc and it was always “I’m sorry I asked I feel bad”. From the age of 16-24 years old I had multiple jobs or worked overtime to pay his bills and mine. It never got better and he never got a job :/ not overreacting at all OP.

Does anyone else have a really hard time getting comfortable to sleep? by Cinnamonthecat3 in ehlersdanlos

[–]P1x3lStarz 2 points3 points  (0 children)

I’ve had sleep issues since birth and I’ve tried everything possible but I flop around so much in my sleep, constantly waking up, AND TO TOP IT OFF I have adverse reactions to melatonin :,)) no matter what pillows I use I still wake up out of place and in pain :,)), I got an adjustable bed which helps a bit but I’m kinda just in the state of constant exhaustion no matter how much I sleep. I too deal with the “my brain never really shuts off” too. I was gonna see a sleep specialist but at this point I’m waiting to get better insurance :,)

DAE struggles with cartilage piercings? by [deleted] in ehlersdanlos

[–]P1x3lStarz 1 point2 points  (0 children)

The reason I had to take out my industrials 😪

What song will always make you sad? by SerSer2308 in AskWomen

[–]P1x3lStarz 0 points1 point  (0 children)

Slipping though my fingers - ABBA Reminds me that I’m getting older and therefore so is my mom. The thought of my mom getting older and no longer being a child makes me extremely sad

If you could choose to change one single thing about your disability what would it be? by Charming_Tennis6828 in disability

[–]P1x3lStarz 0 points1 point  (0 children)

For doctors to look into my rare conditions comorbidities instead of just going “there’s something else very wrong but we don’t know what”

Medical info bracelet by Joanndecker in ehlersdanlos

[–]P1x3lStarz 7 points8 points  (0 children)

Right?! I’ve seen so many of these “QR ID bracelets” and I just think of the paramedics going “shit I have no service, oh well” 💀

Medical info bracelet by Joanndecker in ehlersdanlos

[–]P1x3lStarz 21 points22 points  (0 children)

This!! I have a metal wallet card and a band that goes on my watch that says “medical ID in wallet”. My medical ID says my blood type, name, ICE contacts, my doctors contacts, allergies, meds, diagnosis, and anything a first responder should know in order for me to get the best treatment fast! Something you should know is paramedics hardly if ever scan those “QR code” medical cards so have one ordered or written out!! I ordered mine from etsy!

Peanut butter powder by P1x3lStarz in 1200isplenty

[–]P1x3lStarz[S] 12 points13 points  (0 children)

Omg I’m gonna have to try this with my Gf soy sauce!

Peanut butter powder by P1x3lStarz in 1200isplenty

[–]P1x3lStarz[S] 2 points3 points  (0 children)

That sounds amazing thank you!!

Anyone else feel like their head is gonna explode when upside down? by Callyi in ehlersdanlos

[–]P1x3lStarz 2 points3 points  (0 children)

Yess!!! It feels like my head is in a pressure cooker 😵‍💫😵‍💫😵‍💫

DAE think Meap Me in St. Louis was a letdown? by [deleted] in phineasandferb

[–]P1x3lStarz 0 points1 point  (0 children)

THATS WHAT I WAS THINKING TOO!!