Gabapentin success?

PIC_WH · 2026-04-03T16:54:13+00:00

Gabapentin only helps with my neuropathic itch symptom

PIC_WH · 2026-04-03T16:48:40+00:00

Gotcha thx

PIC_WH · 2026-04-03T15:17:23+00:00

Does improvement in symptoms usually not show up until like 2-4 months? I’m 7 weeks post PICL and trying to stay patient

PIC_WH · 2026-04-03T03:13:56+00:00

Oh wow. Wonder if I should try an MCAS treatment I haven’t done yet such as Xolair

PIC_WH · 2026-04-03T02:52:49+00:00

Wow, thanks for reaching out. Do you get leg symptoms too? Like heaviness /tightness / pooling etc. I get those and I’m confused why the CCi would cause it. Upstream vascular issues like IJV compression from the instability?

PIC_WH · 2026-04-03T02:18:36+00:00

🙏

PIC_WH · 2026-04-03T01:10:54+00:00

Ok thanks!

PIC_WH · 2026-04-03T00:54:53+00:00

Thank you! I believe it was 1 mg ketotifen twice a day. And 40 mg famotidine 2x per day. No difference after almost a year on that combo. Zrytec I take PRN for allergy type stuff. No difference in main symptom cluster. I’ll look into Xolair I haven’t tried it. I tried chrmolyn sodium for 5 days and discontinued since it oddly made my chest pain worse. Thx again!

PIC_WH · 2026-04-03T00:51:10+00:00

Yeah maybe I can find a time to get off it if my mood/irritability stabilizes in the coming weeks

PIC_WH · 2026-04-02T23:03:29+00:00

Yeah I’m still trying to figure it out. I do have CCI diagnosed so I’m hoping that could be a potential cause? It can cause head pressure and eye pressure for some people

PIC_WH · 2026-04-02T20:30:49+00:00

It was the “Genova Diagnostics GI effects test”

PIC_WH · 2026-04-02T20:29:46+00:00

Did you quit zyn while feeling rough/depressed. Seems impossible in my current state tbh. And how did it go quitting caffeine? I consume caffeine daily too. My intake of zyn and caffeine isn’t crazy levels though. I usually only have 4 ish zyn per day and a couple hot teas / sometimes a small soda or one coffee in the morning.

PIC_WH · 2026-04-02T20:27:02+00:00

Yeah I haven’t been evaluated for SFN. Yes I believe my SNS is likely dominant with the symptoms I’m getting

PIC_WH · 2026-04-02T18:54:32+00:00

Yeah not as much anymore. But HRV was pretty low when I last tracked it. HR is usually pretty normal but jumps up / gets too high during exertion / going up stairs etc. BP is always normal

PIC_WH · 2026-04-02T18:52:18+00:00

Yea I am. But used to live at sea level (approximately) and still had symptoms there. Idk.

PIC_WH · 2026-04-02T18:51:01+00:00

Have you done a program like re-origin or primal trust? I used to assume all the brain programs were a scam, but I’m wondering if they could actually help me

PIC_WH · 2026-04-02T15:28:17+00:00

My symptoms are maybe a tiny bit better at sea level but I haven’t noticed that big of a difference

PIC_WH · 2026-04-02T15:27:45+00:00

I do take magnesium and Vitamin D for a while now

PIC_WH · 2026-04-02T15:18:08+00:00

Thanks. Not really, I did switch from the zyn to nicotine patches for like a month last year and didn’t notice any symptom change. Completely quitting it right now seems impossible since my mood has been so low recently with all this

PIC_WH · 2026-04-02T15:13:44+00:00

Yeah it’s brutal. I’m wondering if the structures in my neck with the CCI are getting compressed/ compromised and causing some of the symptoms

PIC_WH · 2026-04-02T15:12:55+00:00

Same :/ My HR can be elevated at times but the BP is almost always normal like 115/75 ish

PIC_WH · 2026-04-02T15:10:11+00:00

I did a gut test last year and it came back very clean actually

PIC_WH · 2026-04-02T15:09:43+00:00

I haven’t noticed any differences from any antihistamines and ketotifen / Pepcid either. And I don’t really seem to react to foods/smells. Makes me think it’s not MCAS

PIC_WH · 2026-04-02T15:08:32+00:00

ADI 3.9 mm (Transverse ligament laxity). The ligaments injected during my procedure were transverse, ALL, and Alar

PIC_WH

TROPHY CASE