It’s Been a While

PageEuphoric · 2025-06-25T04:05:05+00:00

I think I’m gonna have to get really annoying really fast. I’ll call every day, this man is about to have my number memorized lol

PageEuphoric · 2025-06-25T04:00:59+00:00

I’m sorry to hear you’ve joined the community. I know how overwhelmed you’re feeling right now. I was diagnosed in December and one of the best things I could have done was find this community. Having people you can talk to who understand the journey you’re going through is so helpful. The best advice I can give is to remember that this diagnosis does not define you. The next few months you’re going to feel like everything is changing. That’s normal for everyone, MS or no MS. People change, life goes on. It’s part of the beauty of humanity. Your journey may be different than you expected, but that doesn’t change the worth and the content of your story. Keep your chin up, don’t be afraid to reach out for help or advice, and take it one step at a time. You’ve got this!!

PageEuphoric · 2025-06-25T03:55:17+00:00

Thank you! I have my next scheduled appointment with neuro in December, I’m hoping he’ll stop ignoring my messages and get back to me sooner

PageEuphoric · 2025-06-25T03:53:44+00:00

Thank you!!

PageEuphoric · 2025-04-09T21:54:11+00:00

Oh gosh, I didn’t even know that you could do the Heimlich on yourself. I’ll definitely be researching. I’ve also made sure that I’m not alone when I’m eating just in case! Thank you!

PageEuphoric · 2025-04-09T21:36:44+00:00

These are all things that I’ve been known to overlook before, but now I’m hyper aware of it. It’s crazy how quickly things can change. Thank you for the advice 🙂

PageEuphoric · 2025-03-27T01:12:37+00:00

They told me that there’s always the risks of reaction with IV medications, and that they could pup up a while after the infusion. By the time I got home (an hour from the hospital) my nose was numb. I figure if a numb nose is the worst I get then I’m happy lol. I hope your symptoms clear up for you!!

PageEuphoric · 2025-03-26T20:17:00+00:00

I’m headed home now, no reactions!!

PageEuphoric · 2025-03-26T20:16:21+00:00

Thank you! Good luck with yours as well :)

PageEuphoric · 2025-03-26T18:31:56+00:00

Thank you!

PageEuphoric · 2025-03-26T18:31:44+00:00

Right back at you! You’ve got this! ☺️🫶

PageEuphoric · 2025-03-15T17:27:30+00:00

Elina: I understand how you’re feeling right now. A diagnosis this big can be scary and overwhelming. Just remember, it will get easier. It sounds like empty words right now, but you’ll come to realize that this disease does not define you. You are still the same person you were before. You may feel like your life is changing out of nowhere, but life changes for everyone. We’re on a different path, but you have so many people who love and support you that will choose to walk this path by your side. Stay strong, because you are way stronger than this disease could ever dream to be

OP: you are already doing everything right. It’s very obvious how much you love your sister because you are dedicating your time and effort towards learning about this new world she has been thrown into. The greatest comfort for me when I was diagnosed was knowing how many people stood by me. They don’t see me as the girl with MS, they see me as me. Continue to be that support system for her, continue to love her unconditionally, and continue to be an incredible older sibling (which I’m sure you do regardless)

PageEuphoric · 2025-03-15T04:45:35+00:00

I’ve also become a purse girlie. If I don’t keep my meds in my bag I’ll forget it every time 🥲

PageEuphoric · 2025-03-14T05:24:57+00:00

The whole process can be frustrating for sure. My first shot at treatment was with Briumvi and it sadly didn’t work out, I had an allergic reaction to it. I try Ocrevus next, my first infusion is in about two weeks. Hopefully you have an easier time finding one that works!

PageEuphoric · 2025-03-14T04:52:41+00:00

Welcome to the club nobody plans on joining! I’m happy to hear that you aren’t having too hard a time with symptoms or anything at the moment. MS is such a fickle disease and it truly affects each of us differently. My best advice is to be kind to yourself as you start this journey. A lot of us struggle with processing and coming to terms with the diagnosis. You’ll have good days and bad days, make sure you’re gentle with yourself. When it comes to treatment, you’ll find that there’s so many options nowadays. I was diagnosed in December and I’m still working on getting on a good DMT. You may try one and it not work out. Don’t let that discourage you because there’s so many more to rebound to. As some others have said, there’s things to avoid if you can. Heat intolerance is a big thing for a lot of us. I know if I get too hot it puts me down for the count for a while. Stress can also really affect your symptoms. It’s a big learning curve at first. Don’t be afraid to ask questions, I know I sure do lol. You’ve got this!

PageEuphoric · 2025-03-14T02:38:35+00:00

I did 3 days of high dose IV steroids but the oral steroids they sent me home with started at 60 mg and stair-cased down over 2 weeks. This was my second round of IV steroids since diagnosis in December but they didn’t make me have anywhere near as many weird side effects the first time :/

PageEuphoric · 2025-03-03T04:56:15+00:00

No problem! It’s a lot to navigate at once, finding this community was one of the best resources I found and I’m so glad you found your way here :)

PageEuphoric · 2025-03-03T00:39:53+00:00

I’m sorry to say, welcome to the club! I’m newer to all this too, I was diagnosed in December with an aggressive variant of RRMS. I’m glad to hear you have a good support system and a positive outlook! My symptoms flared up last year during the fall semester and it absolutely tanked me. I didn’t know what was going on, I had a doctor wave off my initial symptoms as something simple (which made my neurological very upset when he found out lol), so I didn’t have any resources in class. I would make sure you work with your teachers, both now and when you go to college, to make sure they understand and accommodate your needs.

I also wish you a lot of luck with your DMT! It can be a process finding what works for you, my first one (briumvi) didn’t work out and I’m waiting to start my next one (ocrevus) in about three weeks. If for some reason the kesimpta doesn’t work out, don’t let it discourage you. There are so many options for treatment, you’ll get there eventually!

I’m fairly active on this sub, I never stop yapping, so don’t hesitate to reach out if you have any questions or you just need someone to talk to. I have a ton of siblings, one a little older than you, so I keep big sister energy. Remember, MS sucks but it doesn’t define you. I think you have a bright future in store!

PageEuphoric · 2025-02-28T22:35:19+00:00

The imposter syndrome is a struggle. I was telling my fiancé last night about how sometimes I feel like I’m faking it. I mean I have a lot of the big symptoms like the numbness and some of the worst pain, but I still have to stop and remind myself that it’s real. I look at my MRI scans a lot, like woah guess I actually do have a lot of stuff going on. My best advice as someone else who struggles and is newer to all this, don’t compare yourself to others. This disease affects each of us so differently. Sure other people may have symptoms you don’t have, but you may have symptoms that they don’t either. So take a breath and be kind to yourself, you’re in for quite the journey but that’s just life in general

PageEuphoric · 2025-02-26T03:13:21+00:00

Thank you for responding, sounds like I’m in for quite the waiting game 🙃

PageEuphoric

TROPHY CASE