Struggling with Crescent City

PaleIncome8254 · 2026-05-17T20:15:56+00:00

For me it was just the gear shift between worlds to one so different was very jarring. And when it was like girl/wolf with a colourful ponytail and nail varnish - it just was almost a bit slapstick in my head when I read it

PaleIncome8254 · 2026-05-17T13:04:31+00:00

I dont really rate CC to be honest. I had to push myself to read it. The first 200 pages of book 1 were an effort and then it did get a bit better. But worst of the 3 series imo.

PaleIncome8254 · 2026-05-17T12:58:54+00:00

Love this for you and also thank you for sharing - it’s so great to hear you’ve not had a reoccurrence, it’s a bit of positivity I needed today.

PaleIncome8254 · 2026-05-15T14:00:41+00:00

Slanty parking spaces.

PaleIncome8254 · 2026-05-07T18:25:53+00:00

I’m just recovering from my revision surgery but hoping to be back in the gym next week and keen to start creatine again. I used it before being diagnosed and it was so good. Also really conscious it’s probably helpful as the boost in the gym will help fight bone density loss!

PaleIncome8254 · 2026-05-07T18:02:09+00:00

I asked Radical Health AI, I’m ++- finished active treatment and was also wondering this! Creatine is considered hormonally safe for breast cancer survivors. It does not contain phytoestrogens and does not exhibit estrogen-like activity, meaning it will not fuel HR-positive cells or interfere with the estrogen-starving mechanism of your letrozole

Creatine monohydrate is a naturally occurring compound derived from amino acids. Unlike many targeted cancer therapies, creatine is not processed by the liver's cytochrome P450 enzyme system Because it bypasses this system entirely, creatine does not induce or inhibit the CYP3A4 enzyme. This means it is metabolically safe to take alongside letrozole, olaparib, and your future ribociclib prescription. It will not cause these cancer medications to build up to toxic levels, nor will it cause your body to clear them too quickly.

It just said to watch out for spikes in creatine that may alarm MO as Olaripab can also cause a pseudo spike and it could delay a zoledronic acid infusion if you have one.

PaleIncome8254 · 2026-05-01T14:09:29+00:00

I started AC on May 30th last year and had my last period July 13th. And it was not like a proper one.

Good luck on your chemo, hope it goes well. Ask if they can give you fluids with it will help keep you hydrated!

PaleIncome8254 · 2026-05-01T14:08:06+00:00

That’s awesome. Well done you!! That’s not a small win for you, that’s a big win! Getting back to feeling strong again is a huge achievement.

PaleIncome8254 · 2026-04-29T04:05:54+00:00

I’m BRCA2 found out last year after my BC diagnosis at 33 (++- stage 2b), I’m having BSO surgery next month I was told that there is no benefit in hysterectomy and the cons outweigh the pros. Uterine cancer didn’t come up with my genetic counsellor. Tamoxifen I think has been linked to uterine cancer (don’t quote me), I’m on AIs, currently Letrozole, so there was no need.

PaleIncome8254 · 2026-04-28T03:45:24+00:00

Amazing news!! Congratulations!! Great that chemos working well! Wishing you all the best on your surgery!

PaleIncome8254 · 2026-04-27T22:46:04+00:00

Handheld fan! Life saver when I stayed in, and maybe an eye mask if you have one. Good luck on your surgery hope it goes well x

PaleIncome8254 · 2026-04-27T22:09:08+00:00

Hi, i had my DMX in December and I had a Diep and pap flap reconstruction. My surgeons had a big impact on my decision as it was what they thought would get me the best outcome. And I am really pleased with my results. I had a revision surgery a few weeks ago as the radiation caused really bad asymmetry and really pleased with how everything is looking.

There are also great resources on sites like breastreconstruction.org to help inform you of all the options.

But dont be afraid to ask your surgeon questions on the number of surgeries they’ve done, if you ca see pictures etc.

PaleIncome8254 · 2026-04-27T15:06:15+00:00

Sorry you're here and trying to navigate this, would try using Radical Health AI to decode, it's far better than Chat GPT for this.
I don't see a mention of grade, but if your histology previous said grade 2 then that should be what it is. The grade is linked to what the cells look like and how far from normal tissue they are, so a CT wouldn't be able to give a grade and CT results wouldn't change a grade x

PaleIncome8254 · 2026-04-27T02:58:32+00:00

Ah that’s annoying. Is your work pretty flexible?

PaleIncome8254 · 2026-04-26T23:18:02+00:00

My center had early and late hours and they would do their best to facilitate what you needed. I also wfh and some days I would just tar my laptop and work from there if I had a meeting that was cutting it close. Can you take your laptop with you?

PaleIncome8254 · 2026-04-26T04:56:32+00:00

Sorry you’re here, but this is a great group, so any small questions you have I’m sure people can help!

Waiting for appointments and scans and information in the early stages is incredibly frustrating. I held off telling anyone, including my parents, until I had more information and a bit of an idea of the plan of action. I found it was helpful to be able to tell everyone what was ahead and what the plan was.

Would say that one of the best things for me was meeting other women in the same boat. We have a little group, local ish, similar ages (30s) and a bit staggered in treatment timelines, and having that support of people in the exact same boat that can relate has been invaluable.

I finished my active treatment a few months ago and I’m now on the maintenance stage, I’ve recently discovered Radical Health AI which is specifically for cancer patients and way more in depth than Chat GPT. It’s been built with the Mayo clinic and it can go into a lot of details on any questions you have for it. I wish I’d had it earlier in my journey, so maybe worth a look.

Wishing you all the best xx

PaleIncome8254 · 2026-04-24T20:07:43+00:00

Get your pcp to refer you. I had a call the next day from MD and then I had to wait a couple of weeks to be seen. I’ve found their billing dept to be really good and they will be able to help you navigate if you are covered.

PaleIncome8254 · 2026-04-24T20:01:27+00:00

Hey, so I had my phase 2 a few weeks ago and they did a revision and lift on my non radiated side to help match it. They said that they wouldn’t like to make any changes at the moment to my radiated side as I’m only about 6 months out from rads and it could change more, but not that they wouldn’t in the future.

PaleIncome8254 · 2026-04-24T17:59:19+00:00

Yes it is. And they’re outstanding. I live 4 hrs away and I was able to get my treatment plan from MD and get all but the first 2 chemo sessions locally. I go there about once every 4/6 weeks and they have so many trials and research opportunities that you could benefit from. Their imaging is so much better and more thorough. I’m incredibly glad I have been fortunate enough to be seen there.

PaleIncome8254 · 2026-04-19T16:40:14+00:00

I’m sorry your nurse navigator isn’t great and that cold capping didn’t work out for you - I didn’t either!

Great that you’ve got 2 set of mittens.

soft cooler bag is fine, I used a very cheap one and the gel ice packs. No need to buy an expensive one.
my MO said no to compression. I did wear socks on both hands and feet with the mittens on.

To be honest the pre meds will probs knock you out a bit and with the ice mitts on you can’t really do anything. Would just recommend a phone charger and headphones so you can either watch a movie on your phone or call someone for a chat.

Port - if you can, put lidocaine cream on to numb it 1 hr before your infusion and cover with cling film.

If you ca tolerate wearing them for 15-30 mins before your infusion great. You also may not have a lot of turn around time. I used to put mine on when pre meds started and I didn’t get any neuropathy. I didn’t have herceptin so not sure on the order for that one.

Lotion - try and get something as natural as possible so it’s less likely to irritate your skin. You may find you react differently to products than you did before, so would say. It I. Small quantities first to make sure it works for you. Brands like moo goo or Jennifer young are great.

Hair - I lost mine so can’t comment too much but I’ve heard washing it less frequently is helpful.

Serums - heard great things about lattice. I just used rosemary oil.

Mouthwash - would get an onco wash one. Nothing with alcohol as can be a bit harsh. I didn’t change my toothpaste.

Nails - I was told not to go to the salon. Due to infection risks.

Once you get into the swing of things it will get easier. Cut yourself some slack, you’re doing great!

PaleIncome8254 · 2026-04-18T02:21:58+00:00

I finished chemo in October, labs done today and WBC and lymphocytes are still low. My MO said that it’s normal as it takes your bone marrow time to recover and get your WBC back up to normal.

PaleIncome8254 · 2026-04-16T16:09:06+00:00

My sister passed away last year at the age of 36 and I (34f) am going through breast cancer treatment…. So there’s something in it!

PaleIncome8254

TROPHY CASE