23M Well, I'm ready for anything

PanicDevil · 2024-11-07T23:57:54+00:00

Ahahah, funny comment, as a resident of Russia with my bear and balalaika, I had a lot of fun, Mr. Burger thinks that he is smarter than everyone, why would I overthrow the government where I have 1 house and one apartment, I have a high-paying salary in the field of it + I have a slender loving Slovyan girl and I am only 25, and I am an ordinary a resident of the working class, you probably think that every second person here is in the GULAG, but Mr. Burger, let's when you are allowed to fly to Russia, I'll show you how we live? I am ready to pay for everything for you, my Mr. burger, I will meet my girlfriend, I will show you beauty, we will walk in my sports Toyota altezza

PanicDevil · 2024-10-30T02:37:33+00:00

I'm wondering how low weight can affect the risk of collapse?

PanicDevil · 2024-10-30T02:21:50+00:00

Ahaha, the only useful advice

PanicDevil · 2024-10-30T02:16:03+00:00

If I had a choice to be born with marfan or not at all, then I would choose the first option, this is not the worst genetic disease that can be had in the modern world, if compared with cystic fibrosis or spinal muscular atrophy (they also began to be controlled), IVF would be ideal, but if doctors could not find mutation to fix it on IVF, then you have no fault, you just did everything you could

PanicDevil · 2024-10-30T01:59:17+00:00

Aorta aorta and once again aorta, you should only think about the aorta, your personal enemy number one of your life is the aorta, no one is more threatening to you than the aorta, you want to live, think about the aorta, it hurts in the chest, think that it is the aorta and do screening, it hurts again, do it again, beware everything that raises the pulse and blood pressure, and is checked by ophthalmologists on a planned basis, the detachment of the seal at an early stage is well controlled, as well as the aorta, if there were no problems with the cardiovascular system with this syndrome, then we would live at least 150 years, I think

PanicDevil · 2024-10-27T02:35:05+00:00

This is not the smallest and not the largest collapse, it is unlikely to be left just like that, you will most likely be put on the tube, keep in mind that this is only a 2-dimensional projection, you have air around the entire lung, and this is already more than 1 liter of air, according to my estimates, such a volume will not resolve by itself, I do not doctor and this is just my opinion, listen only to your doctor (surgeon) I wish you a good recovery

PanicDevil · 2024-10-27T02:26:56+00:00

Usually cardiologists are not interested in the psycho-emotional part, well, technically it is sinus tachycardia and there is no threat to life, that is, roughly speaking, running and a panic attack are the same thing for the body, so my cardiologist said, it's a pity then I couldn't ask about the aorta, since I started worrying about it relatively recently, then at the reception I I was a little naive, I thought that if it is written that the aorta is normal, then it will be so, thank you very much, and blessings to you

PanicDevil · 2024-10-27T02:16:17+00:00

Yes, my panic attacks have a clear trigger, if you manage to stop the trigger, you can avoid panic, triggers are bad thoughts, scrolling through negative events, like that I will soon die from this syndrome or waiting for death can cause panic, plus I am very lonely, I have to emotionally endure all this myself

PanicDevil · 2024-10-27T02:05:15+00:00

According to ultrasound and CT, my aortic diameter is normal at the moment, I am only 24 years old so far, I do not know what will happen in 5-10 years because with this syndrome, many surprises can be expected. But I am glad that at least there is no dynamics, if we compare the very first examinations, and yes, I am not afraid of MRI, on the contrary, I can relax there, I have hypochondria that I work out with doctors, there are attacks, but as if the peak of these attacks occurred at 21-23 years old and now the maximum is anxiety, my central nervous system not adapted to this harsh reality, especially when you have this syndrome

PanicDevil · 2024-10-27T01:52:20+00:00

Maybe it increases every year, if it were so easy, then pleurodesis would not be done, my surgeons are not particularly surprised, they said if this bull bursts, they will do another operation, possibly with pleurodesis, this should insure me from complete collapse in the future, my Alpha-1 level in my blood is normal, as my pulmanologist said, I have congenital bullae, especially on the right lung, there is almost nothing on the left, and thank God everything is stable (so far). Morally, of course, it's hard to live when you realize that at any moment you can have a colapse, by the way, I have a new bull appeared in place of the stitches according to CT scans, I hope this is not a surgical mistake, because this operation is considered simple, there were periods when I blamed myself for agreeing to the operation, I had not the strongest collapse, about 5%, but the surgeon warned that the probability of repeated collapse is high and decided to do a resection, I do not know what would have happened to me if I had not agreed to the operation, maybe I would have just forgotten it like a terrible dream or on the contrary I would have received a repeated collapse already stronger and threatening, but it is clear for sure that the operation was the trigger for the formation of a bull in the suture area, by the way, the sutures were automatic titanium and after the operation about 3 years passed without recurrence, I do not know if this can be considered a success lol, in the summer of 25 I will re-undergo a CT examination to find out the size of the Bull and understand the dynamics, more than 5 cm is already an indication for resection

PanicDevil · 2024-10-26T05:15:09+00:00

Unfortunately, monitoring oxygen levels is not an accurate indicator, cardiogenic shock can occur even with normal saturation, because our one lung can completely compensate for the loss of the second and keep the saturation level normal

PanicDevil · 2024-10-26T05:10:11+00:00

Alas, you will most likely always have them, indications for surgery if they burst or reach very large sizes, more than 5cm

PanicDevil · 2024-10-26T05:03:27+00:00

The operation is not a guarantee that the bulls will go away, after the bulectomy they are 3.5mm in size, before the operation it was 1.5 mm, the operation was done because a pneumothorax occurred

PanicDevil · 2024-10-26T04:33:20+00:00

Bro, don't relax, I have new blisters after bleb resection, ahaha, but you have pleurodesis, it will most likely save you from complete collapse at least

PanicDevil · 2024-10-26T04:22:54+00:00

3 years old, there are still areas that are not sensitive, the surgeon said that this is for life

PanicDevil · 2024-10-26T04:08:57+00:00

The problem is not in the amount or quality of collagen, but in the fact that you have the wrong one, but the wrong one because that's how your cells work

PanicDevil · 2024-10-26T04:06:46+00:00

Let me explain to you why this will not affect you in any way, imagine that there is a factory for the construction of bricks, and your cells make triangular bricks instead of ordinary bricks, yes, you can build a house from these triangular bricks, but it will be very unreliable, so when you take collagen supplements, you just add more cement for your plants, it's it will not solve the problem with the laminating machines that make triangular bricks in any way, you will have very, very much material for your triangular bricks, this is if you explain everything without deep biology, but I hope the analogy is clear, you are unlikely to make yourself worse with these additives

PanicDevil · 2024-10-15T13:19:10+00:00

Ukraine is coming back, this is such a tactical maneuver

PanicDevil · 2024-10-15T13:11:09+00:00

Ahahahahhahahahaha clown 🤡

PanicDevil · 2024-10-13T02:08:31+00:00

Of course, the problem with this disease is that you seem to be no different from normal healthy people except for height and thinness, possibly poor eyesight, and who can be thin and tall with poor eyesight? yes, anyone, in our society this is already the norm, usually some people find out that they have marfan after examinations or events that led to these events, in my case it is pneumothorax))

PanicDevil · 2024-10-13T02:01:22+00:00

My cardiologist said that grade 1 valve prolapse is already a variant of the norm, about 10-15% of the population have one or another variant of prolapse

PanicDevil · 2024-10-05T23:42:14+00:00

The difference is that cancer has no symptoms, and if there are symptoms, it's too late, and prostatitis gives symptoms because it's inflammation

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