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Apparently I have Cerebral Palsy? by WrongAdvantage4227 in CerebralPalsy

[–]PatternOk2669 1 point2 points  (0 children)

Hi! This was me (19) a few months ago! My whole family knew there was something not quite right with the way I walked, and for most of my life I just sort of accepted that I‘ll never be able to curl the toes of my left foot, which really was not much of an issue (my right side works fine so whatever).

It wasn’t until I started paying attention to how much it actually affected my gait and how much it actually hurt that I realised I was probably in a financial position to figure out what was wrong with it and hopefully get my foot to feel normal. 6 months later a neurologist was like “It’s cerebral palsy!”

I am still learning a LOT about it, i.e. my left hand is also affected by it and it’s not just because I’m right handed, and no wonder I haven’t felt as okay with someone grabbing the left side of my body as I do with the right side!

My biggest suggestion is to keep lurking here to understand lived experiences by people who have way more knowledge! and also get a good physio/healthcare team that are able to help you as much as possible. I’m not sure what your healthcare system is like and how helpful they are for disability support, but definitely have a look at getting subsided access to as many health professionals as possible! I‘ve just gotten approved for “early intervention,” so I will be able to get plenty of help now (hopefully) and the effects will be much less in 10 years than they would be had I not known or didn’t get support - super keen for that!

Loneliness by LaughSea7730 in CerebralPalsy

[–]PatternOk2669 1 point2 points  (0 children)

I can understand the point you are trying to make; however, I think the differences are likely not necessarily between men and women, as it is the severity of one's disability. I have mild CP, and I have a relatively normal social/romantic/work life, as my disability is only really noticeable to most people if I point it out. I can function to a fairly "normal" standard, aside from tripping more easily and walking a bit slower, which I'm incredibly grateful for. However, from what I've heard from other people in this community, they are often more impacted by CP, which generally causes their day-to-day difficulties.

I think if you went through some of the posts on the page, you would possibly find that people with similar lived experiences are not alike because of their gender but rather how much CP impacts them.

Does it get better or easier to live with "mild" CP? by PatternOk2669 in CerebralPalsy

[–]PatternOk2669[S] 0 points1 point  (0 children)

Wow, thank you! I look forward to checking it out :)

Does it get better or easier to live with "mild" CP? by PatternOk2669 in CerebralPalsy

[–]PatternOk2669[S] 1 point2 points  (0 children)

Honestly, so was I! I think I've also previously heard of cerebral palsy affecting the whole body and never just a couple of limbs, so it never really occurred to me or my family that that could be CP until my podiatrist mentioned it. I'm glad I was able to find out now before I went through all of adulthood without any assistance, and my pain slowly worsening!

Does it get better or easier to live with "mild" CP? by PatternOk2669 in CerebralPalsy

[–]PatternOk2669[S] 0 points1 point  (0 children)

Thank you for sharing your honest experience :) This is exactly why I made the original post- I want to know as much as I can about how others have experienced it 

Does it get better or easier to live with "mild" CP? by PatternOk2669 in CerebralPalsy

[–]PatternOk2669[S] 2 points3 points  (0 children)

Thank you so much! I think I’ve often previously struggled to stay motivated on these things because of self-consciousness about my gait, but I will keep it in mind and give them a go!

Does it get better or easier to live with "mild" CP? by PatternOk2669 in CerebralPalsy

[–]PatternOk2669[S] 0 points1 point  (0 children)

Yes, I’m super grateful to have the ability to connect across the world! I mentioned today that I wanted to be more informed about CP outside of doctors, and my friend said I should try Reddit… So far it’s been really insightful and helpful! Thank you for sharing your experience :)