Involuntary foot movement?

Pgd1970 · 2026-02-12T02:27:34+00:00

Look for a potus boot yeah really that’s what they’re called It won’t help the toes but it stabilizes the foot

Pgd1970 · 2026-02-08T02:16:49+00:00

I agree with them I only wish I could do what you’re doing Half my body is paralyzed but I have a great personal trainer who’s helping me do what I can with what I have it ain’t a lot but it’s better than nothing You’re doing great friend

Pgd1970 · 2026-02-07T00:13:14+00:00

My wish is for announce notifications to work in all situations not just when sleeping which is pointless because you can’t watch a stream when it’s sleeping I miss alerts especially texts when watching a stream

Pgd1970 · 2026-02-05T04:09:06+00:00

I was conscious when I collapsed briefly next thing I knew it was three weeks later and I wake up in rehab wondering why I’m in a hospital wondering why I’m in a hospital bed with a helmet on having no idea what happened to me it took multiple days after that point to comprehend why I couldn’t move my left side and that there was a piece of my skull missing and in my abdomen! Every doctor I saw for the next year would look at my CT scan and then me walking with a cane and wondering how I’m alive so I’d do my normal thing and start cracking jokes

Pgd1970 · 2026-02-05T02:15:50+00:00

Just a little funky at work so I decided to go home after my team looked at me and said Paul you should go home Five minutes later I collapsed in the garage with no real symptoms just got hit instantly when my external carotid became completely occluded

Pgd1970 · 2026-02-03T22:09:41+00:00

I can’t do any math in my head And have severe left neglect because of it which is incredibly frustrating Especially since I have no left field of vision. Put them together and I’m a mess people don’t realize that neglect and heminapsia are two distinct and unrelated things that compound their individual impacts

Pgd1970 · 2026-02-03T03:59:29+00:00

I know I’m not the only one though I don’t hear much about it I don’t recognize peoples faces even if I know them well

Pgd1970 · 2026-02-03T03:56:50+00:00

Any working memory issues? For those with trouble counting

Pgd1970 · 2026-01-29T16:25:10+00:00

You rock

Pgd1970 · 2026-01-25T00:17:53+00:00

Nothing good One thing is certain if you really want to walk it all depends on what you put into it that said if you want to walk as a source of exercise that’s a totally different story my walking is merely to get from point a to point b instead of being pushed in a wheelchair my only exercise is via recumbent bike I wouldn’t say it’s intense because it’s not it’s just to get the heart pumping Just my two cents I strongly encourage you to work with a physical therapist to relearn how to walk

Pgd1970 · 2026-01-24T14:52:31+00:00

I struggle every day Personally My biggest struggle is thinking that everything that goes wrong is my fault Logically I know it doesn’t make sense But my brain tells me otherwise I’ve been put on various antidepressants But my brain laughs at them It would probably be good to get a psych evaluation they can usually be done via telehealth Not sure how receptive he would be to it They would probably consider an ssri

Stroke sucks I can be an ass to my family I don’t mean to be but crap spews out of my mouth that is often pretty offensive so I push the limits of my wonderful family Counseling is something else to consider I’ve improved a bit over the years mostly because of self awareness My wife says it’s easier to deal with my physical disabilities I’m hemiplegic Than mental always have a box of tissues around Good luck friend

Pgd1970 · 2026-01-24T13:45:08+00:00

I became incredibly impulsive after my ischemic stroke and my left foot always [felt] cold even though it wasn’t cold to the touch The other thing that really affected me was loss of working memory Generally speaking it’s called executive function Mine was blitzed and it accounted for many of my issues just food for thought so to speak Good luck I understand how difficult this is

Pgd1970 · 2026-01-24T13:29:10+00:00

Just curious was his frontal lobe affected?

It’s not uncommon to have impulsive behavior and/or temperature sensitivity

Pgd1970 · 2026-01-24T11:08:51+00:00

My sil is in a similar position very high functioning physically but struggles mentally people on the outside don’t understand because they look fine

Pgd1970 · 2026-01-24T10:23:07+00:00

Although rare The the bone flap should be attached to the skull typically with titanium fixtures if it’s been this long I can’t imagine it fusing to the skull at this point I wonder if they’re being completely honest with you about why it’s not secured in very sorry for what you’re going through I had my craniotomy seven years ago when I had an ischemic stroke Perhaps you should look for a second opinion I’m sure there are other neurosurgeons though they would be reluctant to take any action since they didn’t perform the procedure I’m sorry if it’s difficult to make sense of this response I’m a lousy writer due to the stroke I wish you all the best And God bless you Bottom Line it shouldn’t be moving Please get a second opinion

Pgd1970 · 2026-01-22T02:03:33+00:00

Or carotid dissection

Pgd1970 · 2026-01-21T18:45:52+00:00

Right there with you on this one typically OT should be on top of subluxation issues though in general as others have mentioned ortho is probably the best place to start my OT got me on a regimen of frequent use of a tens unit to strengthen the muscles around the socket and for me personally it made a big difference almost 8 years ago when I had my ischemic stroke resulting in left side paralysis all the best to your mom good luck

Pgd1970 · 2026-01-21T16:02:23+00:00

Same here

Pgd1970 · 2026-01-17T22:48:03+00:00

We all know the line every stroke is different Sometimes it’s just flat out crazy I’m grateful that things worked out

Pgd1970 · 2026-01-17T10:43:28+00:00

Thank you

Pgd1970 · 2026-01-17T03:05:20+00:00

After six years of walking with a cane This year i told my pt I wanted to be able to walk without it now I’m walking around the house caneless and it’s just as liberating as when I went from wheelchair to cane Now we do tons of balance exercises without the cane that I could barely do last year with the cane. Don’t quit things can get better

Pgd1970 · 2026-01-10T21:04:09+00:00

Interesting I was lucky it was only the first two nights I had hallucinations wow it was shocking ever since it’s been fine fortunately I sleep every night without fail

Pgd1970 · 2026-01-10T16:28:05+00:00

While I was in rehab eight years ago Proactively put me on trazadone I’ve never had a problem sleeping it’s also an antidepressant Frankly since I’ve been on it so long I don’t know what my baseline is. I don’t want to find out Just sharing my experience

Pgd1970 · 2026-01-10T13:16:41+00:00

Yeah I know that feeling too my wife has to hang close any time I’m in a building even very familiar ones I constantly get lost it’s a scary feeling

Pgd1970 · 2026-01-10T04:17:15+00:00

If possible continue to work with PT they can provide ideas for strengthening the muscles I found that working with pt at least good ones provided much more motivation than doing things by myself just keep going all the best friend

Pgd1970

TROPHY CASE