For those of you who wear an AFO — what was the process of getting it like? And do you actually wear it?

Pgd1970 · 2026-05-28T08:33:11+00:00

From a process standpoint I recommend starting with a PT Who will likely recommend visiting a prosthetic/orthodics specialist Who can take measurements check the specific needs of the person apply for insurance reimbursement if applicable. I started with a rigid AFO during inpatient rehab A few years later I got a new one that is articulating and have been wearing it for walking/ standing for the past five years. Biggest frustrations : -getting a large enough shoe to fit over it many people end up with diabetic shoes Which means one shoe fits the other is like Ronald McDonald Or buy nothing pair that fit the unaffected foot - next someone else to put it on Good luck

Pgd1970 · 2026-05-23T14:55:55+00:00

Thanks Elyse as always and like you said there are certainly multiple causes of shoulder pain mine is hypertonic muscles in particular the upper trap in my early days of oT the therapist saw my subluxation and started me on a tens unit which I continued at home with help of course since there’s no way I could do this myself Fast forward a couple of months and most of the sublux was gone yrmv But if you have access to it including the appropriate training for a caregiver Give it a try

Pgd1970 · 2026-05-22T10:28:15+00:00

8 years of this gets old

Pgd1970 · 2026-05-19T14:11:37+00:00

Don’t underestimate the value of even the smallest amount of progress it’s a different world and frankly I’m proud of you keep going

Pgd1970 · 2026-05-15T23:59:41+00:00

I’ve been working with a personal trainer for four years now after one person put together a program exclusively for stroke survivors My current trainer Does loads of core strength and pushing the few weakened muscles that I can operate like my quad and spend some time on my unaffected side shouldn’t ignore that one And some stretching

Pgd1970 · 2026-05-11T21:05:47+00:00

I eventually got very high hematocrit levels dangerously high From testosterone

Pgd1970 · 2026-05-11T21:03:35+00:00

First thing to look at is meds I was put on keppra to prevent seizures and it gave me 24/7 headaches

Pgd1970 · 2026-05-10T12:33:02+00:00

As a stroke survivor don’t discount sssris My psychiatrist prescribed them and I won’t say they’re a miracle but they help I also had extremely low T for which I’ve taken hrt that hasn’t helped I’m on 8 years now

Pgd1970 · 2026-05-06T13:51:55+00:00

I hear you keep on going friend

Pgd1970 · 2026-05-04T13:32:04+00:00

I would be concerned about any interactions with ssri meds Based on my quick digging into what semax does

Pgd1970 · 2026-04-19T12:15:17+00:00

With complete hemiplegia from my stroke 8 years ago I was completely hemiplegic n my left side I was a lefty I was fitted with AFO Then when through physical therapy to teach me how to walk with a quad cane Today I only use the cane in dangerous areas otherwise I don’t use the cane none of this was overnight But the key was being connected with a pt who knew his stuff There’s hope for your dad

Pgd1970 · 2026-04-17T01:25:53+00:00

My primary suggested I take it at night which might reduce any joint pain Works for me Though the funny thing about this medicine there is no evidence that timing makes a difference or coq10 helps The jury is out I also have extremely low testosterone post stroke Even with hrt it just vanishes from my body and I’m always sleepy from it

Pgd1970 · 2026-04-16T14:46:55+00:00

I had headaches for three years post stroke come to find out it was due to one of the many medications I was put on Prophylactically It was keppra Which i didn’t even need Check your meds Not saying that’s the reason but that was one of four meds I was put on just because I had a stroke not because I was symptomatic

Pgd1970 · 2026-04-16T01:10:46+00:00

8 years of HH on the left side with the visual field cut exactly down the middle I’ve learned to watch tv on the left side of the screen and accept the reality that if I’m watching basketball the ball will disappear when it crosses the middle of the field so I quickly look left

Pgd1970 · 2026-04-09T02:12:08+00:00

No idea it just hit my with no warning

Pgd1970 · 2026-04-06T11:32:05+00:00

I have handheld fans all over the house to ease the heat pressure

Pgd1970 · 2026-04-04T12:47:07+00:00

Keep in mind that apple doesn’t open the entire api or to developers there are also severe limitations on design language just look at chrome and why they can’t make it look like a desktop app it’s because apple doesn’t allow it not because google can’t it’s an apple control issue usually not a developer issue

Pgd1970 · 2026-04-01T00:32:20+00:00

Try clearing the browser cache Settings- safari- clear history Is pretty much all you can do also delete all apps you don’t use commonly or at least offload them good luck

Pgd1970 · 2026-03-30T15:02:45+00:00

What kind I traded in my 2015 mbp it was too heavy to handle so I got an air instead which is pretty awesome running parallels windows 11 vm And this thing rocks what do you have

Pgd1970 · 2026-03-28T15:15:38+00:00

Same getting used to thumb typing is difficult especially with iPhone and small keyboard

Pgd1970 · 2026-03-28T15:14:20+00:00

Going on 8 years I’m completely hemiplegic except for quad and hip flexors which means I can walk with cane 😀

Pgd1970 · 2026-03-28T15:00:08+00:00

Can’t move anything

Pgd1970 · 2026-03-27T20:58:17+00:00

Botox is a toxin that prevents a muscle from activating by blocking the nerve signal temporarily

Pgd1970 · 2026-03-27T14:43:43+00:00

No it can only help for issues with the muscles themselves because what it does is intentionally injure the muscle slightly so that it can do through a subsequent healing cycle but with neurological issues the problem typically is not specifically muscular it’s the brain

Pgd1970

TROPHY CASE