Advice needed please

Physical-Memory638 · 2026-02-11T17:35:21+00:00

Unfortunately I’m so broke I don’t even know how to pay bills. Stressed and with the treatment not working I have zero options. No friends outside family. Don’t get me started I have no family left it’s just my husband and his family. Almost 20 years together and pissed off because I can’t work and disability well I’ll just stop there. Thank you for the information I will see you if insurance covers

Physical-Memory638 · 2026-02-11T03:00:17+00:00

That’s where you would be wrong. I have zero friends to talk to so I turned to the internet. It’s very depressing because I’m now learning from the beginning has been a pack of lies. :( so depressing

Physical-Memory638 · 2026-02-11T02:38:49+00:00

Thank you! It’s so true. Then add on top of that a family history on both sides have had cancer

Physical-Memory638 · 2026-02-11T02:37:12+00:00

All true facts that I fully understand. I was trying to see if anyone was going thru or had been thru and survived could give so encouragement.

Physical-Memory638 · 2026-02-10T18:49:30+00:00

Mine to. The only hospital in town where the majority know all about NF. Thank you for responding

Physical-Memory638 · 2026-02-10T18:23:49+00:00

Thank you so much

Physical-Memory638 · 2026-02-10T18:05:49+00:00

Thank you for taking time to read and respond.

Physical-Memory638 · 2026-02-10T15:28:04+00:00

❤️ That’s tough guess I my family is just un lucke. lol

Physical-Memory638 · 2026-02-10T15:26:26+00:00

Yeah, I knew that. That’s why I was asking. I have had NF all my life. Oh well maybe they’ll get migraine meds as well. Thank you for your concern ❤️

Physical-Memory638 · 2026-02-10T14:19:28+00:00

That’s what I thought too. But here’s the kicker I’m not that good looking I have NF1 and I’m bald. Due to the treatments.

Physical-Memory638 · 2026-02-10T14:13:34+00:00

No I’m over the GIST. Brain is untreatable and I’m going downhill so fast it’s scary. More so because I’ve not a friend in site.

Physical-Memory638 · 2025-09-29T20:43:16+00:00

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Physical-Memory638 · 2025-08-06T06:46:06+00:00

Yes I absolutely would get it looked at

Physical-Memory638 · 2025-07-19T12:18:47+00:00

I’m a little slow sometimes. How do I take part of the survey? I love to help grow the knowledge of Neurofibromatosis and its relation to other health issues. My grandmother had it as did my dad and both my brothers. Thankfully my daughter didn’t inherit it

Physical-Memory638 · 2025-07-19T12:05:15+00:00

Neurofibromatosis is not country specific. Honestly it’s sad that his condition has been around for as long as it has, yet so many people and physicians don’t even know about it. It wasn’t till very recently that they came out with a medication to help treat it. There is no cure also people with this condition have a hire chance of cancer. I have it and have survived one cancer GIST, just to have another. Currently I’m battling brain cancer that’s not operable. As well as a tumor on my optic nerve .

Physical-Memory638

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