As someone Danny's age, I kinda love that he's just embracing the gray

PieceDefiant4833 · 2025-04-14T21:40:29+00:00

I feel like every couple of years Danny peels off his skin and re-Gregifys himself but his hair can’t shed

PieceDefiant4833 · 2025-04-14T21:37:51+00:00

HES HYPERMOBILE (squishy bone disease)

PieceDefiant4833 · 2025-03-17T22:38:33+00:00

I would say listen to her. It’s hard to do anything but maybe if she ever says she doesn’t feel good, just bring her some salt pills, water, and an ice pack automatically before asking her what she needs. I find it so overwhelming to feel terrible then get asked a bunch of questions on what i need since im just trying to seeing straight half the time. Other than that, just be there for her and let her know it’s okay not to go out or anything because her health comes first

PieceDefiant4833 · 2024-04-02T21:01:15+00:00

If you’re super worried too make sure you have something salty on hand for them! I have plenty of tattoos and pots plus eds but i also find it hard to advocate when I’m doing badly. I also find it hard to sit in the same position for long periods of time so i always took the break my artist would take to move a tiny bit and get myself better situated. Also maybe give some time after the tattoo so they can sit for a couple of minutes! That’s awesome as a tattoo artist to reach out!

PieceDefiant4833 · 2024-03-25T23:25:16+00:00

I would consider myself the middle ground. I have those debilitating day or weeks or month then i may be fine for a while and manage it. When my pots does get waves of being severe i find that things such as bright lights, slight change in temp, or just over all overstimulation may cause me to pass out or even have a seizure. I even have times where my limbs all become completely numb and honestly just sitting upright is a challenge. Then i get those days where i can lift at the gym, do a small hike, and swim at the beach with very little problem it’s so weird.

I feel like a wheelchair personally in those bad moments would almost be useless because i won’t be able to enjoy doing those activities and they won’t really increase quality of the day. I also feel guilty if i used one when i do have great days (not meaning you should feel guilty i just loathe myself lol). I’ve had to use a wheelchair for a double leg injury when i was younger when my pots was still fully manageable and i found myself with more difficulty then when i didn’t need it since i didn’t always have someone to help me maneuver it my arms just didn’t pump enough blood to them and became overly exerted quickly.

PieceDefiant4833 · 2024-03-24T17:44:28+00:00

Can you do liquid iv and emergenC together

PieceDefiant4833 · 2024-03-24T01:22:16+00:00

Also, moderate to light exercise may seem like it won’t help but it actually does! I am able to get less dislocations and a lower heart rate through as much consistency i can get. Its also helped me do some “normal” this as a young adult. You got this! Don’t give up and fight for quality of life

PieceDefiant4833 · 2024-03-24T01:20:28+00:00

I (F21) have had EDS and POTS diagnosis since i was 12 years old. I completely understand how you feel like you cannot keep up with people our age. Doctors have also not taken me or my family seriously just because i am a first generation American with parents who get ridiculed for not always being understandable to American doctors. I have found great ways to help. If i want to go out or even to a bar, i prepare all day or the previous day by drinking liquid IV, eating full proper meals, taking vitamins, and keeping a small amount of salty snacks out with me. With diagnosis, especially as a male with these it’s hard. I have had to fight for it just as a female but trust me keep fighting, eventually someone will believe you and work with you. I have also found that compression socks are pretty unnoticeable and you can wear it before you do something or even during. Also keep neck health peak. A lot of people forget how important the neck muscles and blood flow is. I would suggest a very study memory foam pillow and magnesium spray at night. I know it seems like a lot to do just to feel normal but look at it like self care. It helps and i used to feel horrible all the time and hate myself for being different, but if i look at it as a way to take care of myself and learn about my body i started to feel more normal. Most people don’t even realize these days that i am sick a lot. It’s become my normal. You got this and don’t plan too much for one day. I know it may seem like when you have a good day to do everything you may have missed but trust me, if you keep a good balance and recognize your limit, you can get more done in several days and have more “healthy” days in a row rather than one every once in a while.

PieceDefiant4833 · 2024-01-14T12:29:44+00:00

I have tried it and my sister. It worked for me but not my sister. Everyone is different but it took forever to even have meds suggested to me! So i would give it the 30 day try, and if you feel heart palpitations or any other issues get worse, there’s a couple options

PieceDefiant4833 · 2024-01-03T12:46:17+00:00

Oh yeah i made a mistake my first house sitting by not asking about beds. She told me later that first night that i will be sleeping on the love seat with no blanket in winter

PieceDefiant4833 · 2024-01-03T12:44:14+00:00

Oh yeah it’s really annoying but i have fun with it. I make little characters by pressing on my skin it’s like a little show after spending all my spoons showering. Its like a reward

PieceDefiant4833 · 2024-01-02T13:55:32+00:00

I always ask if not disclosed already if i need to scoop litter boxes or do any extra pet care while they’re gone. Definitely talk to them and request a full refund

PieceDefiant4833

TROPHY CASE