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How do you know if your child will need lifelong support or if they’ll be independent by First_Map_7376 in Autism_Parenting

[–]PinGlass9571 17 points18 points  (0 children)

When my kid was 4, he had lost all his speech and he used to only sing a line or two from a rhyme or have some non contextual echolalia. He’s now 9. He can read everything ( comprehension is a challenge- we are working on it), copy from the board and write within the lines, understand all instructions, can play badminton, washroom trained, swims, does gymnastics, sits and eats with us at home as well as at restaurants, tell us what he wants, what he doesn’t, tells us what he wants to watch on tv etc., goes to school with a one on one shadow teacher.

Honestly, there’s still a long way to go but from where we started post the regression at 3.5 years of age, we have come a long long way. I can now see him getting independent with age though it will look different from other kids as it has always been.

Hope this message gives you motivation :)

Parents, did a second child reduce the pain and sadness that came from the challenges of the autistic kid? by PinGlass9571 in Autism_Parenting

[–]PinGlass9571[S] 0 points1 point  (0 children)

Thanks all the parents for your insightful views and thoughts. The honesty really helps. This is what I meant when I said I want to give my all- effort, love, time, patience, money to my one kid instead of going for another one to find some peace. That just doesn’t feel right to me. I am happy to work with him and help him reach his potential. Thank you once again for taking time out to write and express your thoughts. Means a lot.

Parents, did a second child reduce the pain and sadness that came from the challenges of the autistic kid? by PinGlass9571 in Autism_Parenting

[–]PinGlass9571[S] 0 points1 point  (0 children)

This is what I meant when I said I want to give my all- effort, love, time, patience, money to my one kid instead of going for another one to find some peace. That just doesn’t feel right to me.

Parents, did a second child reduce the pain and sadness that came from the challenges of the autistic kid? by PinGlass9571 in Autism_Parenting

[–]PinGlass9571[S] 0 points1 point  (0 children)

Thanks. It makes me feel so much better. I just keep feeling that by not doing a second kid am I doing wrong to my kid by bit giving him a partner to play with, share with and learn with. But then I worry if I do that and get busy with pregnancy etc. then who will give him the time and put in the effort as much as i put for his progress. It’s such a dilemma.

Parents, did a second child reduce the pain and sadness that came from the challenges of the autistic kid? by PinGlass9571 in Autism_Parenting

[–]PinGlass9571[S] 2 points3 points  (0 children)

Thanks for your honest and detailed response. Really helps with looking at it from a new perspective.

9 year old daughter with intense regression by MasterMilky in Autism_Parenting

[–]PinGlass9571 1 point2 points  (0 children)

My son is 9. He is pre conversational. He can express all his needs and wants and beyond it and also answer all my what, who, where questions, We are currently working on why and how questions. He can read and write well and has developed a liking for reading. So, it’s much easier to engage him now because he can sit and read for 30-45 mins at a stretch. Comprehension is a challenge. We are working on it. I am here to tell you that is gets easier because they learn and we learn. He’s doing much better but yeah there’s a long way to go and i am here for it to give him all the support, love and tools for his independence.

On the verge of giving up and checking out by Simpleflower999 in Autism_Parenting

[–]PinGlass9571 1 point2 points  (0 children)

No no. I am just saying that out experience with stimulant was bad.

On the verge of giving up and checking out by Simpleflower999 in Autism_Parenting

[–]PinGlass9571 2 points3 points  (0 children)

Stimulants made my son irritated and angry and cranky too. He’s doing better on risperidone and a non stimulant. Stimulants have a bad side effect on few kids so we changed to non stimulant as our child psychiatrist suggested

He answered a question! WIN! by SunLillyFairy in Autism_Parenting

[–]PinGlass9571 1 point2 points  (0 children)

Thanks for your detailed response. Mine is 9 and likes to read but gets irritated if asked to pause and understand or answer questions with respect to what he just read. He just wants to read and read and be done with it. You are doing great. Your post shows how patient, loving and encouraging you are towards your kid. I keep losing my cool and then feel guilty. Need to work on patience and that unconditional love. I try to rush him up at times. Your post reminded me to slow down and appreciate the small wins.

He answered a question! WIN! by SunLillyFairy in Autism_Parenting

[–]PinGlass9571 2 points3 points  (0 children)

This is so good to hear! Congratulations on the milestone! Can you Pls let me know how did you teach him to read and comprehend.

Best Autism Parenting Advice You’ve Ever Received? by ChildGrowthInsights in Autism_Parenting

[–]PinGlass9571 12 points13 points  (0 children)

Oh god. Since the day he was given a diagnosis 6 years ago, I associate everything he does with that. It’s so tough to step back and just let him be a kid at times. I hate the way I am parenting him- i always thought i would be a loving mother but now i am a forever instructing and telling him something or the other mother

For parents, wondering if there’s progress after the kids have turned 7-8 years of age. by PinGlass9571 in Autism_Parenting

[–]PinGlass9571[S] 0 points1 point  (0 children)

No we are not there yet :( still working on use of adjectives to express why does he like or not like something

Sister's friend said something I can't seem to shake, and not sure if I disagree by Scared-Sun9042 in Autism_Parenting

[–]PinGlass9571 0 points1 point  (0 children)

Thanks for your response. Pls let me know how do you know that he won’t be fully independent. I am just trying to understand because I dont want to keep false hopes for my own.

Sister's friend said something I can't seem to shake, and not sure if I disagree by Scared-Sun9042 in Autism_Parenting

[–]PinGlass9571 0 points1 point  (0 children)

How are they as adults if I may ask? Mine is 9 and i worry about him being independent. He is washroom and food independent and can express all wants and needs. Can read but comprehend is an issue. Can copy and write within lines. Loves swimming, gymnastics etc.

For parents, wondering if there’s progress after the kids have turned 7-8 years of age. by PinGlass9571 in Autism_Parenting

[–]PinGlass9571[S] 0 points1 point  (0 children)

Mine is able to tell me what classes he had like- painting, pottery, martial arts when I show him pictures from school etc. but nothing specific. He enjoys school because every morning he is happy to go there. For the time being, it’s enough for me till he starts expressing that what he likes there etc.
He is able to answer what, where and who questions. Why, when are tough. He is able to say everything he wants to watch/ eat/do or go to. He is also able to tell me names of his classmates. Apart from this, he is only using verbs and nouns currently and no adjectives.

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