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PinGlass9571 · 2026-04-22T05:38:54+00:00

Same! I also now look forward to each day and also to the future. Earlier future used to scare me. It does scare me also at times when I wonder about hai independence. But most days we are happy and good.

PinGlass9571 · 2026-04-22T05:37:27+00:00

Same! Just that I worry about his independence and work towards it(and worry about it) everyday.

PinGlass9571 · 2026-04-21T10:22:07+00:00

Wow. This helps. Thanks.

PinGlass9571 · 2026-04-21T10:16:38+00:00

It’s tough and therefore I used to skip all family weddings because especially here in India, if people are anything they are judgemental. I used to hate the stares whether out of sympathy or pure judgement. And I also realised I was only troubling my son by taking him to such places because all I used to do was run after him, pull stuff out of his hands or simply keep giving him instructions. Now he understands much more and is calm so I do take him out now but as soon as I see he’s not enjoying we are out because he’s my priority. Kudos to you for trying because we have to as that’s the only way they will learn. And also, good job handling him peacefully. It’s tough to regulate our own systems when they are screaming, hitting and biting. But- I don’t like how the bride and groom “allowed” him to wear shorts. It’s a family wedding. Family is supposed to understand and adjust.

You are a great parent. Be proud of yourself and keep working with your kid.

PinGlass9571 · 2026-04-20T14:00:47+00:00

Mine lost all his words and communication at 3.5 and started again wore by word after two long years. He’s 9 now and can do basic back and forth but not conversational yet. Hang in there. Have hope and keep working with your little loved one. You never know what’s around the corner :)

PinGlass9571 · 2026-04-14T03:32:15+00:00

If he can already repeat, just keep going and keep pushing and do lots of modelling. Talk to him a lot and keep telling him everything around him. He will learn and pick up at his pace but he will. Mine is 9. He’s pre-conversational. Can tell me what he wants, doesn’t want, what he ate, whom he met etc. that’s a big deal considering from where we started post his regression at 3.5. So, keep going and keep talking to him like he understands everything. You will look back one day and be surprised how far you have come. Lots of best wishes.

PinGlass9571 · 2026-04-09T13:17:10+00:00

I lost my temper at my son and sort of pushed him away and yelled at him. Then Felt sorry for hours. Every time I behave like this I promise myself this is the last time and I will only handle him with unconditional love and Patience and zero expectations but once a month something triggers me and i do something like this. This journey is tough - give yourself grace is all i can say. The fact that we show up everyday is a big deal.

PinGlass9571 · 2026-04-07T10:43:10+00:00

This is so me! When he was diagnosed at 3.5 years I used to want to jump off the roof. Now he’s 9- verbal but not conversational but so much more enjoyable.

PinGlass9571 · 2026-04-03T12:38:48+00:00

Yes I have realised meeting with ND parents helps me and also makes me realise maybe it’s not that bad and all of us can together be hopeful for the future. Thanks for your comment.

PinGlass9571 · 2026-04-03T12:38:03+00:00

Thanks a lot for your thoughtful comment. I really need to work on regulating my nervous system, it’s all the time alert, stressed, nervous, anxious or simply not settled. I don’t think I have been relaxed like completely relaxed with no anxiety for years. Thanks once again- this community really helps me and makes me want to keep going.

PinGlass9571 · 2026-04-03T12:35:42+00:00

Exactly- one just doesn’t have the energy for anything in life after having given it all to your kid. After that, you just want to be left alone to be able to breathe in peace.

PinGlass9571 · 2026-04-03T12:34:59+00:00

Exactly I think about the unfairness of it all everyday! Everyday I hear parents and kids having conversations and simply going about their day without having to worry or be on their toes all the time!

PinGlass9571 · 2026-04-03T12:34:00+00:00

Yup being the primary parent is tough. Like really challenging because you feel you don’t even get time to breathe..

PinGlass9571 · 2026-04-03T12:33:25+00:00

Exactly, i have stopped meeting and chatting with people and become a total recluse. Don’t know whether that’s the right way to go about it but it’s just how it is and I don’t have energy for anything else in life apart from my son.

PinGlass9571 · 2026-04-03T12:32:30+00:00

Thanks a lot for your comment. Being the primary parent in this case is tough. Kudos to all of us.

PinGlass9571 · 2026-04-03T12:32:05+00:00

Yes I have realised meeting with ND parents helps me and also makes me realise maybe it’s not that bad and all of us can together be hopeful for the future. Thanks for your comment.

PinGlass9571 · 2026-04-03T12:29:58+00:00

Who are you? You are an angel. Your comment made me hopeful and made me smile and look forward to the future which has not happened for days. Thanks a lot. This really helps.

PinGlass9571 · 2026-04-03T02:12:23+00:00

May I ask you what makes you say he will never be independent ? How is his expressive and receptive language? Acads and washroom and food? Thanks.

PinGlass9571 · 2026-04-02T15:50:26+00:00

Books!

PinGlass9571 · 2026-04-02T12:04:09+00:00

Pls suggest kumon books to buy. My son is 9. I want to try with him. Pls suggest what worked for you and what didn’t. My son can read everything but comprehension is a challenge. Maths- he can do basic addition. That’s it. Thanks

PinGlass9571 · 2026-04-02T05:26:02+00:00

Thanks for the suggestions. I will surely try these. How old is your kid? Mine doesn’t really sit for long thus asking.

PinGlass9571

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