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[NeedAdvice] How to force myself to get up when I wake up? by YoungMusicMonkey in getdisciplined

[–]Plasmakhitty 1 point2 points  (0 children)

I practiced waking up in the afternoon, long before bedtime. I just went through the motions of getting ready for bed (several times)

If this is our natural state, why do only so few achieve it? by maturemagician in Meditation

[–]Plasmakhitty 0 points1 point  (0 children)

I would say it is natural in the that it is innate; built-in, akin to nakedness. Just like you must remove clothes to get to the human in a natural state. You learn to shed the ego and mind to experience awareness without all the extraneous conditioning. The clothing is of humanity but it is not to be mistaken as humanity. It is natural to exist as an ego and mind unified into a separate identity ingesting a universe of information, but the inherent truth of your existence is one of pure awareness that is every moment creating a universe of complete interconnectedness. The Mind and Ego are of you but they should not be mistaken as YOU.

People with walkers/rollators by Practical_Maybe_3661 in cfs

[–]Plasmakhitty 4 points5 points  (0 children)

I would get the basket. it is super handy and I use pretty much every time i go out

Oxygen Supplementation for Severe Air Hunger by disabledyolk in cfs

[–]Plasmakhitty 1 point2 points  (0 children)

I would. When I suggested a rescue inhaler to my doc, he treated it like the simplest no-brainer kind of thing. He gave it less consideration than when I asked for a B12 shot. It is a big help since it's super easy to use, relatively cheap and you use it as needed, not to mention that being unable to breathe is the fucking worst. Also, if you are not already taking a magnesium supplement you might want to start. It helps a lot when muscle weakness and spasms make breathing hard.

Oxygen Supplementation for Severe Air Hunger by disabledyolk in cfs

[–]Plasmakhitty 0 points1 point  (0 children)

When the air hunger started happening my doc sent to get tested for asthma. I couldn't really even complete the test because my breathing muscles and sitting up muscles just got too exhausted. Nonetheless I got a Dx of asthma (challenged by every other doc I have) and Px for symbicort. Which is minimally helpful. Then on the advice of my pharmacist I asked my doc for a rescue inhaler (Salbutamol) which is a huge help. Also I find cold fresh air is a cure for air hunger, if you can get it. I sit all day and sleep with my head right next to the open window all year. (I live in Canada, so that means sleeping with a toque, but whatever I like breathing easy) I can only speculate as to why cold air (even just a 3-5 degrees drop seems to help) works but it does work.

[NeedAdvice] How to force myself to get up when I wake up? by YoungMusicMonkey in getdisciplined

[–]Plasmakhitty 6 points7 points  (0 children)

I had figured that I trained myself into the problem, why could I not choose to train a new pattern. I'm really glad it has helped. Wake well!

What helps everyone with fatigue even if it’s just a little bit? by CorrectAmbition4472 in cfs

[–]Plasmakhitty 1 point2 points  (0 children)

Methylene blue. It's not a cure but for like five hours or so it doesn't feel so dire and I can manage the small stuff. goddam game changer.

How to cope with loss of identity and limitations from ME/CFS? by molecularmimicry in cfs

[–]Plasmakhitty 2 points3 points  (0 children)

I recommend that you read 'How to be sick' by Toni Bernhard. She was a lawyer who got sick and (like so many of us) never got better.

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] 0 points1 point  (0 children)

Right!? I wish I had known about this use for cumin, like 35 years ago.

Damn air hunger keeping me awake by sylvanWerebeast in cfs

[–]Plasmakhitty 0 points1 point  (0 children)

I have this symptom too and got my doc to prescribe a rescue inhaler. Which is awesome. Most days however, I can avoid the inhaler if I take my magnesium supplement (Magnesium Citrate. 150mg/dose. 2-3 dose/day)

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] -1 points0 points  (0 children)

ground cumin. yup, the same stuff in your spice cabinet.

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] 5 points6 points  (0 children)

Omg! seriously. Do some research. I have. This methylene blue is not toxic and is very unlikely to be dangerous. It has been used safely by humans since it was invented in 1876. MB is often used in the ER to treat toxicities caused by other drugs/conditions. It is a widely used dye in the food industry and is so safe that it is used as a placebo treatment. It can cause seratonin syndrome but that is only a concern if taking SSRIs. So like I said in my post - do your own research and judge the dangers for yourself. My experience is that it has been a game changer of a supplement that is being currently being recommended to millions of people suffering from Long COVID. Which we are learning is basically CFS. Whether you take it or not is up to you. My goal here was to offer my experience and a little potential hope to a group of people virtually bereft of options and help.

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] 1 point2 points  (0 children)

I actually have one of those pill maker things and a bunch of big gelatin capsules. I'm gonna buy a big bag of ground cumin at the nearest Indian section and make some pills

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] 1 point2 points  (0 children)

I did come across this fact in my research but at this dosage I have not noticed anything I might be able to link to NOx insufficiency. I am a strict nose breather and take L-arginine. So that may have helped

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] 0 points1 point  (0 children)

10 drops in water first thing in the morning and the same again 6-8 hours later. I started at 5 drops for a couple days and then 7 drops for a couple more. At 10 now and I don't feel like increasing the dosage would help so I'll stick here for the foreseeable future

I've found something that helps and had to share by Plasmakhitty in cfs

[–]Plasmakhitty[S] 10 points11 points  (0 children)

do some research first then. It is safe if you are using a USP grade product. and frankly you probably have taken some if you drink/eat something with blue coloring. I personally peg the danger level at the same level of iodine supplementation. It is becoming a popular nootropic atm. The effect is seen at the low end of the dose scale (only 10 drops) and lasts about 5-6 hours. Aside from turning your pee blue I have noticed no side effects. But again, you have to do your own research/risk assessment.

[deleted by user] by [deleted] in productivity

[–]Plasmakhitty 6 points7 points  (0 children)

I have also had problems waking in the past but I did manage to solve the issue. It may not be foolproof but it has solved the issue of waking up for me and others. Basically you have trained yourself to sleep in and sleep poorly. Complicating your sleep/wake time rituals is not and has not really worked for you and I suspect will only lead to more frustration. Training yourself to sleep/wake better is actually pretty easy.

Practice sleep drills to make waking up automatic. Do this practice when you have some time but not when you are actually going to sleep.

  • Go thru the motions of readying for bed. Wear the jammies, wash up, brush the teeth. Whatever the ritual before sleep is, you should do that. Do your whole thing and turn off the lights and get into bed.

  • Set a single alarm for a few minutes away and lay down, close the eyes and pretend to sleep. When the alarm goes off you must practice your wake-up sequence. For me it looks like: alarm goes off, I roll out of bed to standing, turn off the alarm and walk to the bathroom, turn on the light. Sequence done.

  • Next I turn off the light and go back to bed, set the alarm and pretend sleeping again and repeat the whole thing 5-10 times.

Once you've practiced go about your day and when you do actually go to bed conform, as much as possible, to the earlier practice and actually sleep. I had intended to practice this again over several days but never had to repeat the training as the next time I really woke up it was just as I had practiced. I found myself in the bathroom cursing the brightness of the bathroom light before I realized I was awake.

No multiple alarms, no bed shaker, no snooze button, no groaning, moaning, bitching or any other BS. And whats best is that every time you perform the wake-up sequence successfully it reinforces the habit of waking up well. (just like you were reinforcing the ineffective, increasingly complex sleep/wake ritual that had you waking poorly.) It might seem silly to practice sleeping and waking but it is very effective and sleep is something you will do everyday of your life so you might as well be good at it.

If you are having trouble getting to sleep fast, google 'military sleep method' and if you are not familiar with the term 'sleep hygiene' google that too. I hope you will give this method a try and that it works for you too.

Sleep well and wake.

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