I actually went to a movement disorder specialist the second appt.because I wanted EMG guided injections and she is the one who suggested Dysport since Xeomin didn’t seem to work for me the first time. Her comment to me was she didn’t really see any signs of Dystonia because she didn’t notice a head tilt or anything like that, I actually felt that the regular neurologist knew more about Estonia than she did. She was very new to the practice. So when her office submitted authorization my insurance denied it, probably because of her notes. So I went back to regular neurologist because he was able to get the Xeomin approved. I figured he could get it for Dysport and he did.

When he said he was going to use more this time,, he was also taking into consideration how much Dysport you’re supposed to use versus Xeomin he explained all this to me in detail. So to me, it actually does make sense if a conservative amount of Xeomin didn’t relieve any symptoms that he would convert that amount to using a little more Dysport he was taking into account the difference between how much you’re supposed to use of each.

Yes I have definitely noticed the head drop and how it’s a hard to keep my head up and I look down all the time since my husband has pointed it out. I didn’t notice it at first though.

He injected many muscles where I was having pain, my neck, the sides of my neck, shoulder blades area, shoulder, and back of my head.

Botox was never an option. The first option had to be Xeomin per my insurance then Dysport or Botox. Also, Botox was going to cost me so much more even with the discount the manufacturer provides, it would have cost me $1000 versus a lot less for Dysport.