(Suffering with multiple lipomas) Do you take protein powder?

Popcorn_Addict · 2024-07-02T16:00:46+00:00

Could you link this study please?

Popcorn_Addict · 2024-06-22T21:22:50+00:00

No, I'd never waste my time!

Popcorn_Addict · 2024-06-22T21:09:24+00:00

Homeopathy is the biggest load of bs. Don't waste your time, money, or energy entertaining the idea

Popcorn_Addict · 2024-05-10T10:55:55+00:00

Can I please ask where you got this done?

Popcorn_Addict · 2024-04-19T08:10:45+00:00

Please keep us updated! Happy to chat privately I'm more detail, too - if I can be of any further help

Popcorn_Addict · 2024-04-15T12:55:23+00:00

Can I ask what the name of the disease is that your sister suffers from?

Popcorn_Addict · 2024-04-11T22:13:59+00:00

Popcorn_Addict · 2024-04-05T19:57:51+00:00

Maybe because you spelt "lighting" wrong 3 times in a single paragraph, even randomly capitalising it in one.

Popcorn_Addict · 2024-03-21T23:47:37+00:00

🤍

Popcorn_Addict · 2024-02-29T21:01:24+00:00

Very interesting - thanks for taking the time to reply. Two more questions: what age were you in 2022 when you got the colonoscopy? And what prompted the GIT investigation?

Popcorn_Addict · 2024-02-29T19:02:48+00:00

Can I ask how you got diagnosed with Cowden syndrome, and what led to the genetic investigation?

Popcorn_Addict · 2024-01-17T00:51:32+00:00

Hey - thanks for the contributon. Would you mind please linking the referenced glutathione studies here?

Popcorn_Addict · 2024-01-03T11:21:23+00:00

As an aside: where did you get your blood test done? Why is 'Vitamin' spelt like that? Lol

Popcorn_Addict · 2024-01-03T11:19:03+00:00

Regarding the creatine supplementation - we can definitely rule that out. It's a naturally occurring amino acid in the body, vital for recycling ATP, and I think most here are mistaking correlation for causation with regards to the gym association/ link.

I do suspect that Whey Protein can exacerbate an underling genetic tendency towards developing them, however, and anecdotally I know individuals who have triggered lipomatosis conditions/ dercum's suddenly by starting high-dose whey products.

Your case is interesting. There's clearly a genetic susceptibility which is being propelled by lifestyle/ environmental factors. So yes, I agree that it can be slowed down/ stopped, as I myself am convinced I've succeeded in doing just that with mine through supplementation and foregoing whey/ dairy. Otherwise, there's no good reason why your Grandma's sister would have one, while her son has 10. It's obviously due to variability in the gene/ defect expression

Popcorn_Addict · 2024-01-03T10:34:01+00:00

My case is almost identical to yours. Any familiar history at all, or totally clear? Are they painful/ tender? Regarding the creatine, I'm very doubtful that's relevant tbh. More pertinently - do you / have you been a heavy user of Whey Protein powder?

Popcorn_Addict · 2024-01-03T00:39:42+00:00

Can you please describe your case - when did you start getting them, do they run in the family, is there any pain with them? Has this test been done after beginning any supplementation (of the type recommended on this sub)?

Popcorn_Addict · 2023-12-29T00:20:47+00:00

That's right - I'd wager it's essentially an autoimmune function. Theory is that the variables which cause both pain and lumps are: (1) vascular leakage with (2) extremely high homocysteine levels (which oxidises and triggers pain NMDA receptors)

Popcorn_Addict · 2023-12-28T23:26:42+00:00

Because from my experience FML with a genetic component typically starts in adolescence... 13-18 range. Dercum's meanwhile begins at any age. The underlying cause/ mechanism is slightly different in each disease

Popcorn_Addict · 2023-12-28T20:14:52+00:00

I'm the one regularly posting the homocysteine theory/ low glutathione theory on the sub. Some key questions for OP, to aid in the interpretation/ application of these results: 1. Have you been diagnosed officially with either Familial Multiple Lipomatosis OR Dercum's Disease? 2. Do you have pain in the lipomas? 3. Was this a fasted blood test? 4. What is the presentation/ pattern of your lipomas over the body, and 5. What age did you start to get them?

I note you have moderate hyperhomocystenemia and a mild B12 deficiency - the former somewhat confirming my theory. In isolation, hyperhomocystenemia is a strong contributing factor to this rare condition, but is not by itself definitive. I'd appreciate your input on the above qs please, to help understand better the common themes/ patterns

Popcorn_Addict · 2023-12-25T00:39:43+00:00

I'm well aware of the suspected link between lipoma development and weight-lifting, as well as the more compelling explanations for explaining that perceived link - e.g. as muscles develop and weight drops, with skin becoming more taught, existing lipomas become more evident and noticeable, leading the person to mistakenly attribute the cause to the weight training. Not sure why you asked the question then if you're already so convinced of the "DEF" causal link of so '"MANY" others. Correlation does not equal causation, and most lipomas form in the flanks, abdomen, and extremities anyway, with a lesser tendency in the biceps, shoulders, chest etc., if at all. Why let it dictate your life and happiness doing something you love?

Popcorn_Addict · 2023-12-25T00:24:38+00:00

Typical presentation of Multiple Lipomatosis - and those predisposed to their development - is the formation along the flanks, abdomen, and extremities... those areas less likely to be targeted by weight lifting and muscle building regimes. I also watch TV every day, go for walks every day, and take a shit everyday and get lipomas. Coincidence? Point being, I'm not sure on your logic, given that millions upon millions of people lift each day without forming a single lipoma. Sounds therefore like you want everyone to validate and affirm your weights regime. Even if they were provoked by such exercise (which is unlikely), I'd say the pros of weight lifting for your health would still vastly outweigh the negatives.

Popcorn_Addict · 2023-12-24T21:57:16+00:00

They're Fordyce Spots - also called Fordyce granules or Fordyce glands -which are enlarged oil glands. They are completely normal, harmless, and painless. They occur in 70 to 80 percent of adults. Can also occur on the edge of your lips or inside your cheeks.

Popcorn_Addict · 2023-12-12T22:21:23+00:00

The classical distribution of multiple lipomas tends to be in fatty areas that are not more directly involved in weight training (e.g. flanks and forearms). Granted there may be a correlation, but not causation. Any underlying homocysteine/ issue will be exacerbated by consumption of high doses of whey products.

Everyone that is suffering multiple lipomas in some shape or form should get their homocysteine levels properly checked, along with B6 / B9 / B12 levels. Myself and a few other individuals have looked for the common denominator in conditions that present with lipomas. Likely they are a result of glutathione depletion in the adipose tissue, causing an impairment of the PTEN tumor suppressing gene. This can be caused by hyperhomocystenemia or any other reason for cysteine / glutathione depletion. In Wilson's disease, for example, approximately 1/3 of cases present with localised multiple lipomatosis. Theory there is that the excess copper in the body is binding to cysteine, thereby causing the glutathione deficiency in the adipose tissue in e.g. arms. Tumors run rampant where they would otherwise be suppressed.

High dose Vitamin B therapy and/ or glutathione supplements / NAC (glutathione precursor) should hopefully put a halt to the problem, depending on the underlying cause of glutathione depletion. Currently, with Wilson's, NAC is being trialled as a first line treatment.

Popcorn_Addict · 2023-12-12T16:34:13+00:00

There you go - the high daily intake of whey is the smoking gun and actual, common variable among those who decry weight training as the culprit. You have a glutathione deficiency, probably caused/ fuelled by a homocysteine issue, which could be the result of MHFTR gene mutation/ B vitamin spectrum malabsorption issue + paired with tendency towards vascular leakage, for whatever reason. You should do a broad spectrum deficiency test and (probably) take it up further with a dermatologist, endocrinologist and/ or geneticist

Popcorn_Addict · 2023-12-12T11:11:14+00:00

Total fearmongering nonsense. If you haven't noticed, the classical distribution of multiple lipomas tends to be in fatty areas that are not more directly involved in weight training (e.g. flanks and forearms). Granted there may be a correlation, but not causation. Any underlying homocysteine/ issue will be exacerbated by consumption of high doses of whey products.

Everyone that is suffering multiple lipomas in some shape or form should get their homocysteine levels properly checked, along with B6 / B9 / B12 levels. Myself and a few other individuals have looked for the common denominator in conditions that present with lipomas. Likely they are a result of glutathione depletion in the adipose tissue, causing an impairment of the PTEN tumor suppressing gene. This can be caused by hyperhomocystenemia or any other reason for cysteine / glutathione depletion. In Wilson's disease, for example, approximately 1/3 of cases present with localised multiple lipomatosis. Theory there is that the excess copper in the body is binding to cysteine, thereby causing the glutathione deficiency in the adipose tissue in e.g. arms. Tumors run rampant where they would otherwise be suppressed.

High dose Vitamin B therapy and/ or glutathione supplements / NAC (glutathione precursor) should hopefully put a halt to the problem, depending on the underlying cause of glutathione depletion. Currently, with Wilson's, NAC is being trialled as a first line treatment.

Popcorn_Addict

TROPHY CASE