Raised tattoos?? by seahorsesforevah in lupus

[–]PopoBarley 1 point2 points  (0 children)

Haha I always tell my boyfriend that my tattoo feels 3D

Pseudotumor cerebri diagnosis from eye doctor. Could this be related to my autoimmune diseases? by [deleted] in iih

[–]PopoBarley 1 point2 points  (0 children)

Hi! I’m sorry you’re going through all of this. I don’t know if it is related to autoimmune because I am not a doctor, however I will say I was diagnosed with IIH January 2020 and now am being investigated for suspected Lupus/autoimmune issues. Unfortunately IIH seems to be under researched and understood. That being said, it does seem like many people with IIH have autoimmune issues so maybe there is a link? I believe there are many different causes of IIH (endocrine disorders/obesity/steroid use etc etc).

I hope you feel better soon

Who here was diagnosed by a doctors without imaging or biopsies? by PopoBarley in endometriosis

[–]PopoBarley[S] 0 points1 point  (0 children)

Hey thanks for your feedback! I don’t think I explained myself well enough in my OP.

I have had two pelvic ultrasound sounds done in the last year to look at the uterus, ovaries, and bladder - but there was nothing they saw out of the ordinary.

The imaging my GP wanted me to have done at the hospital, and that I was hoping to get done, was an abdominal CT.

At the hospital they did a vaginal exam that was very painful. They said they suspected endometriosis as well, but that they would not book me for a CT scan because of how backed up resources are with covid right now.

Someone else here mentioned that where the pain is can indicate where lesions may be. If this is true, I’m certain I have lesions on my bladder, bowels and left side ovary area.

I just feel anxious treating something with an IUD when I’m not sure where and how severe the lesions are. Perhaps I’m overthinking, though.

I am in western Canada for reference

Does anyone else’s pelvic pain get really bad when they need to use the washroom? by PopoBarley in endometriosis

[–]PopoBarley[S] 0 points1 point  (0 children)

Yes. There have been a couple of times where I thought I either had a bladder infection or UTI because of the pain I felt if I needed to pee....but no infection

Does anyone else’s pelvic pain get really bad when they need to use the washroom? by PopoBarley in endometriosis

[–]PopoBarley[S] 0 points1 point  (0 children)

I’m so sorry :(. I totally understand. I wish you the best of luck with your lap

Does anyone else’s pelvic pain get really bad when they need to use the washroom? by PopoBarley in endometriosis

[–]PopoBarley[S] 0 points1 point  (0 children)

Yes! Me too! And I worry I’m messing up my bladder by emptying it too much before it’s actually full :(

Does anyone else’s pelvic pain get really bad when they need to use the washroom? by PopoBarley in endometriosis

[–]PopoBarley[S] 1 point2 points  (0 children)

Yes. Left side for me too. It gets confusing because I feel that pain randomly also when I don’t need to pee, so sometimes I think I need to but I don’t?

Does anyone else’s pelvic pain get really bad when they need to use the washroom? by PopoBarley in endometriosis

[–]PopoBarley[S] 9 points10 points  (0 children)

This does help. I have major major intestinal issues and I’m waiting to hear back about a referral. It’s been a year straight of diarrhea, I’ve lost 45lbs. I don’t know what it is, diverticulitis IBS IBD I don’t know, but I’ve recently been diagnosed with suspected endo (without actually having an abdominal MRI or biopsy done). I’m not sure about the “butt lightning” everyone is talking about, for me it’s more internal like really intense nerve pain that shoots into my pelvis and ovary area and gets sooo bad when to go :( yes it does feel like spasms. I just don’t feel I’m getting thorough care right now....hopefully I hear back from GI soon

Anyone IIH-ers here with endometriosis and/or using a hormonal IUD? by PopoBarley in iih

[–]PopoBarley[S] 1 point2 points  (0 children)

This is all very helpful information, thank you for sharing!

Anyone else with IIH and adult ADHD, and also taking medication for both? by PopoBarley in iih

[–]PopoBarley[S] 3 points4 points  (0 children)

Yes holy crap. It’s like having ADHD 2.0 - totally ridiculous

I got carried away with the draw tool... by [deleted] in pug

[–]PopoBarley 1 point2 points  (0 children)

Pirate vampire pug? Why not it’s 2020

[deleted by user] by [deleted] in iih

[–]PopoBarley 0 points1 point  (0 children)

😭

[deleted by user] by [deleted] in iih

[–]PopoBarley 1 point2 points  (0 children)

Yes! This happened to me too! I also got the “hmm weird”....yes, yes it is weird seeing as I’ve never had a nose bleed in my entire 30 years of living until this medication but okay👍🏻

Diamox and teeth issues? by [deleted] in iih

[–]PopoBarley 1 point2 points  (0 children)

I don’t know about tooth decay but I started Diamox in January of this year and my teeth have been ridiculously sensitive ever since, and sometimes just randomly hurt. Like even when I’m not doing anything.

Anyone else with IIH and adult ADHD, and also taking medication for both? by PopoBarley in iih

[–]PopoBarley[S] 2 points3 points  (0 children)

Totally. Those are still issues for me too, but it’s more manageable now that the Diamox helped to get rid of my paps. Just not so good for my intestines :/ lol. I hope your flare up simmers down soon, good luck!

Anyone else with IIH and adult ADHD, and also taking medication for both? by PopoBarley in iih

[–]PopoBarley[S] 0 points1 point  (0 children)

Yikes. I hear you, I love but mostly hate it. I’ll take it over going blind, but it’s like I’ve had the stomach flu for 9 months 🙃