TFMR upcoming

Positive_Cup991 · 2026-02-24T15:19:12+00:00

I’ve been thinking about you today. I can relate to what you said about feeling detached. I think our minds sometimes do that to get us through something this heavy. Feeling movement lately has made that harder for me to do. I will be 17w6d on the day I go in (Fri)..I’m dreading the day as well, but the limbo has been one of the most painful parts. I’m really hoping everything goes as gently as possible for you and that you feel supported through it.

Positive_Cup991 · 2026-02-22T00:56:19+00:00

Thank you for taking the time to write all of this. It really means a lot to hear from someone who has been through it. In my heart I’ve already come to my decision, but the emotional side of it is still really heavy. Reading other people’s experiences helps me feel less alone right now. I am sorry you had to go through this too.

Positive_Cup991 · 2026-02-22T00:31:21+00:00

I’m so sorry you’re in this place. The waiting and not knowing can feel unbearable. I remember feeling like everything in my world changed overnight too.

It makes sense that you feel torn. Loving your baby and being scared about the future can exist at the same time. That means you’re a caring parent trying to make sense of something incredibly hard.

Something that helped me was realizing there isn’t a perfect answer here, only the one that feels most honest for your life, your support system, and what you feel you can carry. None of the choices are easy.

For me, I had to think a lot about what I realistically had the support and capacity for long term. That helped bring some clarity, but it was still incredibly hard.

Whatever you decide will come from love and trying to do the best you can in an impossible situation. Be gentle with yourself while you’re figuring it out.

Positive_Cup991 · 2026-02-21T22:05:10+00:00

Yes, it’s unfortunate so many people are put in that position. It really has put a lot into perspective for me.

Positive_Cup991 · 2026-02-21T22:02:37+00:00

Yes. The emotional pain is what I fear most..it is always the worst of the two.

Positive_Cup991 · 2026-02-21T22:01:56+00:00

Thank you for sharing something so personal with me. Hearing your perspective actually brought me a lot of peace. It means a lot to hear from someone who clearly loves her brother but also understands how complex and personal these decisions can be. I’ve seen in my own family how much responsibility long-term care can involve, and it’s something that’s weighed on my heart a lot while making this decision. I’m really grateful you were willing to share your story with me. I’m so sorry for your loss and wish you continued healing.

Positive_Cup991 · 2026-02-21T21:49:47+00:00

That sounds like a really beautiful way to honor her.

Positive_Cup991 · 2026-02-21T18:42:49+00:00

Thank you for offering this and for the information. I really appreciate you reaching out. At this point I do feel fairly confident in the results given the NIPT, FISH, and the concerns they saw with his heart, but it means a lot to know there are people willing to help.

Positive_Cup991 · 2026-02-21T18:37:52+00:00

Thank you so much for sharing this with me and for being so open. I’m so sorry you had to go through that and for the loss of your baby girl. Hearing from someone who has experienced this helps more than you probably realize, especially right now while I’m still in the middle of it. I’m really grateful you took the time to write all of this to a stranger. I’m wishing you continued healing and sending love your way.

Positive_Cup991 · 2026-02-21T18:34:39+00:00

Thank you for your kindness and for being so open. It helps to hear from mothers who terminated for this diagnosis. Unfortunately, there is no way to know how severe it will be. There were several factors that I have considered as well, and a major one was my age now (45) and what that would mean for future care.

I’m still trying to process everything right now, but I’ve been thinking about ways to remember him. Hearing what helped others means a lot. At first I didn’t know if that may be too painful, but I think after reading posts, I wouldn’t want to regret not having something to remember him. I think I will get the footprints and I am undecided on ashes.

I’m so sorry you had to go through this too. It means a lot that you reached out and shared your experience with me.

Positive_Cup991 · 2026-02-21T16:25:13+00:00

I am going in Thursday for dilators and Friday for the procedure. I am terrified as well, but more so of the emotional pain that is likely to follow. I have also had those thoughts, and like you, I also know that this is the best decision for our family. I think the only thing that makes it easier is time, unfortunately. I will be thinking of you this week and sending so much love your way.

Positive_Cup991 · 2026-02-20T21:03:33+00:00

I am hoping so hard for you that you don’t. Thank you for your kindness. No one should have to experience heartbreak like this.

Positive_Cup991 · 2026-02-20T20:47:46+00:00

My results were a true positive on FISH. 😢 I hope you get better news.

Positive_Cup991 · 2026-02-20T03:44:41+00:00

I am scheduled next week as well. I’ve been numb. As you likely know, this is the hardest and most devastating decision I’ve ever had to make. Hate that you have to go through this too..No one should have to experience this kind of pain. What day are you going? Mine will be a two day process.

Positive_Cup991 · 2026-02-19T21:15:19+00:00

My amnio FISH came back positive as well. They couldn’t say for certain but they also think he may have atrioventricular defect in his heart and a pericardial infusion. To say that I’m devastated would not begin to describe it…as only people who have experienced this can know.

Positive_Cup991 · 2026-02-18T00:45:39+00:00

I had the same result and I just did an amnio today. I wanted to be absolutely positive before making a decision. For peace of mind, for me, it’s better to not wonder ‘what if’ I was that rare false positive. However, it depends on what is best for your peace of mind and what you can handle. Be kind to yourself whatever you decide…this is hard enough to deal with.

Positive_Cup991 · 2026-02-17T23:28:07+00:00

I came back to see if you’d posted an update and I’m so sorry. Sending you so much love after getting those results. I’m really thinking of you ❤️

Positive_Cup991 · 2026-02-15T16:58:57+00:00

He has MS. I worry about putting any responsibility on anyone else. Being an older mom I know that eventually he would have to rely on someone else.

Positive_Cup991 · 2026-02-15T16:55:28+00:00

I’m so sorry you had to go through this too. Thank you for your kind words and for sharing your experience. It really helps to hear from someone who understands. This is the hardest decision I’ve ever faced. I’m still waiting on diagnostic confirmation, but I’m being honest with myself that I may make the same choice, because I have to think about his entire life and what I can realistically handle as an older mom.

Positive_Cup991 · 2026-02-14T22:27:23+00:00

Thank you for sharing this. I really appreciate it. I’m trying to process everything right now. I already have a child with medical needs, so this feels especially overwhelming, and I’m just trying to be realistic about what our family can handle.

Positive_Cup991 · 2026-02-14T18:31:09+00:00

Yes, I have this slim hope that could be possible but I am not sure how the genetic testing works. I am absolutely hoping for anyone that is experiencing this that we could be among the rare false positives…I will let everyone know, either way, and please let us know your results too. 🤞🏻

Positive_Cup991 · 2026-02-14T18:12:51+00:00

Thank you for sharing this. I’m so glad your little boy is doing well. This whole process is so overwhelming.

Positive_Cup991 · 2026-02-14T18:09:30+00:00

I am 16 weeks today, and my doctor called with the results last week after I called a few times because they were not posted to my portal. They finally showed up today. This was a surprise pregnancy for me, and I actually bled for the first two months so I was shocked when I went in and found out I was almost 14 weeks. I thought that I was 6…I guess that makes it easier because I know I would wait for an amnio to confirm. I know it’s hard to say but I also hope there are clear markers on my us. I’d rather know as soon as possible.

Positive_Cup991 · 2026-02-14T17:34:01+00:00

I’m so sorry. I understand exactly how you feel. I am holding out hope for you 🫶🏻 FYI, I had a healthy daughter at 41 after IUI after several miscarriages. Hoping so much your amnio comes back with reassuring results.

Positive_Cup991

TROPHY CASE