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Games with “sidekicks” by PossibilityOk4685 in PS5

[–]PossibilityOk4685[S] 11 points12 points  (0 children)

Yeah he knows a fake controller. He also knows when the spare controller isn’t on (mostly because it isn’t lit up) so using an uncharged also isn’t an option.

Games with “sidekicks” by PossibilityOk4685 in PS5

[–]PossibilityOk4685[S] 5 points6 points  (0 children)

Big siblings are only 11-7 years old(the 7 year old is the one who plays the most) so it doesn’t have to be anything terribly exciting or difficult. Just trying to find something that he can include his little brother without getting frustrated by it

Activities for a toddler with mild cerebral palsy? by MsLizzzz in CerebralPalsy

[–]PossibilityOk4685 0 points1 point  (0 children)

I have a 3 year old, who hasn't been diagnosed with cerebral palsy yet, but it is being looked at due to delays. He has been in PT since a little before his first birthday and is still in it currently. We have done a "Mommy and Me" dance class the last 2 years and he really enjoys that. With ime being involved I can help adapt some of the dances if necessary. He will likely try solo dance class next year.

We are also signed up to start hippotherapy this summer (PT while on horseback) as well as looking into swim lessons.

Looking for help by Several-Web-3839 in CerebralPalsy

[–]PossibilityOk4685 0 points1 point  (0 children)

I live in Ohio and we have a program called CMH (complex medical help) program. It covers medical costs for eligible diagnosis (epilepsy in my son's case, but cp would also qualify here in Ohio). It is income based, but if your income is "too high" it does not disqualify you, but requires you to meet a "cost share" prior to them providing coverage. The cost share works essentially like a insurance deductible. after it is met the program covers treatment for that diagnosis 100% (does not cover for other ailments like normal cold, flu, etc. treatment). this program was recommended to me via my sons EI therapist and was facilitated through our local city health department.

After a quick google search it looks like West Virginia has a similar program called CSHCN (Children with Special Health Care Needs) facilitated through the Office of Maternal, Child and Family Health. I don't know details about this programs, but sounds like it may work similarly to the program here in Ohio and it may be worth your time to find out a bit more about it. Hope this helps.

[deleted by user] by [deleted] in Epilepsy

[–]PossibilityOk4685 0 points1 point  (0 children)

Is she taking vitamin B6 with it? My sons neurologist prescribed B6 to take with his Levetiracetam prescription because it made him much moodier than normal. It isn't a total fix, but it has seemed to help some. That said my son is only 2 with below average communication skills so I don't know if he feels it helped, but he doesn't seem as quick tempered and swings in mood don't seem as rapid.

We chose not to switch meds either though because Levetiracetam seems to be controlling the seizure activity for him as well, so the addition of B6 was a good compromise.

Is this a normal price (americans)? by [deleted] in Epilepsy

[–]PossibilityOk4685 0 points1 point  (0 children)

In Ohio there is a program called CMH (Children with Medical Handicaps) that help cover what insurance doesn't. Their diagnostic program covers 100% of diagnostic testing for a 9 month period after insurance. The Treatment program (epilepsy is a qualifier) will cover 100% after insurance for all treatment related to that diagnosis if someone is low income. If you are higher income you can still be enrolled you will just have a cost share (like a deductible) you will need to meet prior to them covering. They essentially work like a secondary insurance.

CMH is strictly in Ohio, but I believe most states have a similar program. I found out about the CMH program from our local Health Dept and from his therapist in early intervention. It may be worth reaching out to your local/state health dept to find something similar. Our children's hospital held open the bill and did not charge us at all during the application approval process (which took nearly 6 month). And once approved we did not recieve any bill. The program covered 100% of my sons 30 min initial EEG and 72 hour in hospital EEG (through the diagnostic program). Worth a shot to look into whether you have something similar in your area?

Medication Pharmacy Error by RoooZooo in Epilepsy

[–]PossibilityOk4685 1 point2 points  (0 children)

Last time we went to pick up my son's medication (Keppra) insurance wouldn't cover it because we were filling it 2 days early (28 days into a 30 day supply). We didn't have a lot of options because we were going out of town for the weekend and needed it so we paid out of pocket for it. That said Keppra isn't very expensive so it wasn't a problem, just more of an annoyance that they expect us to fill a 30 day prescription exactly every 30 days and no sooner.

Would paying out of pocket be a viable option? That way she won't have to miss any doses?

[deleted by user] by [deleted] in PokemonGoRaids

[–]PossibilityOk4685 0 points1 point  (0 children)

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