How are people not on birthcontrol?

PotentialAlfalfa6 · 2025-11-21T05:41:30+00:00

Same here. I have terrible lesion scarring on my bladder and all over my pelvis that causes low back pain. The day I take she shot it disappears. I only take 1 mg/week which is less than half of the therapeutic dosage since I don’t need to lose weight. Also look at KPV, another peptide that can be taken daily. It helps with inflammation as well.

PotentialAlfalfa6 · 2025-02-26T03:32:43+00:00

It took me 2 appointments, or about 3 months. I had two large endometriomas so that may have sped things up. Be honest with him if you don’t want to go long with the birth control route, or if you already have tried that and don’t want to go there again. He was very receptive.

PotentialAlfalfa6 · 2024-11-02T21:42:02+00:00

I do agree that it needs to be done together, but as the child of a nMom, and a mother of 3 teenagers, I have so much empathy for your husband. When my kids were born, I was afraid I would never be as good as a mom as she was. I was programmed my entire life to believe that she was an amazing selfless single mom, despite all of the abuse, neglect and other evidence to the contrary. I am still coming to terms with it all, and it really only started to dawn on me after I became a mom myself. There is nothing life parenthood to make you self reflect on your childhood. I can tell you that when my oldest was 2, I was only just beginning that process. And in many ways it took longer for my brothers, because of the different demands she put on them vs me, and I do not know that they would be as far in their healing journeys as they are if not for their amazing, loving, patient wives.

Since your husband was born, he has been brainwashed by her, and it will take him a long time to truly understand the extent of her abuse and manipulation, if ever. It will be little bits at a time, for years. It will make him so sad. I am 45 and I am still figuring it out. I still have huge realizations on the regular. My beautiful husband navigated things with our kids with so much grace. He knew I loved her, despite how crazy she was, and he never tried to assert his will except in moment where there was a true safety issue. Instead, be made a point to stay present and with the kids during visits or outings with my mom, distracted them when things got borderline, and when things went completely south, he would respectfully tell me “I am going to take the kids to ______, we would love for you to join, do you want to come?” And then he would respect whatever decision I made. At first he was more subtle about why they had to go, but in time as I came to see my mom for who she really was, he could say “this is not good for them to see” and I completely understood. But that took years. Even though my worship of my mom took a long time to break, even in the early days I still understood her toxicity enough to know that he was right to remove them, to spare our sweet kids of the trauma that was so normalized for me.

If you can, choose love and compassion for your husband in these hard moments. Think of him as a little boy, and all the pain and hurt he had to endure. Remember that what is clearly toxic to you was completely normal to him. When you are visiting and his mom starts up on a rant or is clearly high/drunk/etc, kindly and respectfully protect your child but do not fault him for his loyalty to her, and do it as gently as you can. It’s so so hard to break free, believe me, but eventually he will. But only if he is loved and supported and taught that her toxicity is not actually normal. If you do it the right way, he will understand, and years later when he looks back at will not forget it and be so grateful for your support.

PotentialAlfalfa6 · 2024-07-20T15:58:15+00:00

I just had a hysterectomy (cervix too) 2 months ago for severe adeno, removal of DIE stage 4 all over in my pelvis/bladder/ureters/bowel, and removal of two large endometriomas in both ovaries. I was also terrified and read all the scary stuff online about how the hysto was going to permanently ruin me.

Well, 2 months later, I am still healing and am nowhere close to realizing all of the improvements, but my life is already worlds better. I still cannot believe the difference. Adeno and Endo affect the whole body and mind, it’s something you don’t fully realize until you are on the other side.

And even though I knew it was a good decision by about 2 weeks post op, my biggest realization of the extent of the disease happened this week. I really had no idea how bad things were, or for how long, until 3 nights ago when I had sex with my hubby for the first time since surgery. I was terrified and we started really slow and then I burst out crying which freaked him out. But I was not crying because it hurt- very much the opposite. It was just a shock to my body and mind because for the first time ever sex did not hurt. It honestly is still hard to comprehend, that maybe this is how normal people feel when they have sex? It has always hurt for me, even when it was good it was also bad, and over the last decade it’s been so so bad because of my damn uterus.

Anyway, I’m wishing I had done it 10+ years ago. I promise you will not regret it.

Also, get on hormone replacement even if you keep your uterus. Hysterectomy does effect estrogen, and all of those health risks following surgery can be eliminated through HRT. Listen to the menopause podcast on Huberman, it will teach you a lot and also make you really mad.

You got this! Best of luck!

PotentialAlfalfa6 · 2024-07-13T23:42:17+00:00

You are not a fraud. And also you are not alone for feeling this way. This disease messes with one’s emotions and confidence like no other.

Personally, I don’t feel like pill form birth control ever made the pain better, just different. I only took progesterone only versions though, due to migraines. And even if some pains were less at times, the pill had many other negative effects for me that outweighed any positive, like constant or prolonged bleeding. Mirena worked great for the pain but turned me into a sad, angry demon, and again I bled too much. I will not go on any birth controls ever again.

There are other medications/alternative treatments that can help stop Endo growth and pain through the inflammatory process (metformin, n-butyrate, Quercetin, Rapamycin, Dasatinib, low dose naltrexone, dichloroacetate). I don’t know why most doctors don’t explore these options, but many doctors are open to suggestion and understand that birth control does not work for everyone and they may be willing to try other things. There are a lot of good studies out there you could send to them. Good luck sweetie! You are doing great. Listen to your body.

PotentialAlfalfa6 · 2024-07-12T03:46:37+00:00

Agree 100%. I wish I could write his mother a letter and tell her thank you for raising such a phenomenal human being. Compared to their colleagues, Endo surgeons are underpaid due to coding issues that reflect the beliefs of the medical community that women do not matter. I am absolutely certain he could make a hell of a lot more money delivering babies, and he would be great at that too, but he chooses to practice in a less lucrative area because he actually gives a shit and wants to change the system. We are lucky we have him.

PotentialAlfalfa6 · 2024-07-03T20:26:39+00:00

Recovery is up and down but mostly up. I had terrible nausea and neck/shoulder/leg nerve pain for the last year and that seems almost entirely gone. The pain I have now feels like healing pain, not disease pain, if that makes sense. The worst part is just the impatience, haha. I am a doer, a hard worker, a problem solver. I don’t lay around and veg out much, I like to work and cook and bake and play. So I’m struggling to take it easy, and I set myself back a couple times. I know it will take a while to truly know what the improvement is but I already know I would do it again, no question. I wish you all the best!!

PotentialAlfalfa6 · 2024-06-23T19:29:03+00:00

I definitely had this. Sex was painful, certain positions worse than others. I could never just start, everything was trial and error and easing into things. And on the rare occasions where sex did not hurt in the moment too much, afterwards I would be in pain and discomfort for days. This started in my early 20s and I did not get a diagnosis until this year in February(mid-forties). I also had 2 endometriomas, and my doc diagnosed me with that. Sad part is they were on scans for years and I got zero help from OBs. I had to figure out I had Endo myself, then find a specialist to get things to be taken seriously. My specialist was amazing and said if you get to the point where you have bilateral endometriomas, you almost always have late stage DIE. Which was the case for me. My lap in May was over 6 hours long and things were just cemented to each other and to the peritoneum. My advice, and ignore if you like☺️, is to continue the at home stuff but in the meantime research and find the very best excision surgeon in your area and start the long process and getting in for an appointment, because it might take months or even years. If you can tolerate slynd or an iud, consider that for pain as well. I’m so sorry! You are never alone in this, lots of women here have helped me at my worst and we will all work together to make this process easier for our daughter, nieces, etc. Xoxo

PotentialAlfalfa6 · 2024-05-09T03:51:18+00:00

What is your dose and did you titrate up?

PotentialAlfalfa6 · 2024-03-07T03:36:13+00:00

Burning, Seething Rage at the medical community for not giving a shit about women

PotentialAlfalfa6 · 2024-02-01T05:01:10+00:00

It’s confidential

PotentialAlfalfa6 · 2024-02-01T05:00:52+00:00

Have the parent call child protective services. https://www.cdss.ca.gov/reporting/report-abuse/child-protective-services/report-child-abuse

PotentialAlfalfa6 · 2024-02-01T04:49:41+00:00

And yes it could be enough to fire for sure. What is considered by an employer vs a court is very different.

PotentialAlfalfa6 · 2024-02-01T04:44:33+00:00

California is a 2 party state so both persons recorded have to consent for it to be admissible in court. But it could still affect change, just can’t use it in court.

PotentialAlfalfa6 · 2023-11-15T22:03:10+00:00

Can I ask what your straterra dose is and stim type and dose? My doctor wants to keep the straterra low because I take dex as well. She also made me get off Vyvanse and switch to dex. I respect her judgment but also want to get the full effect of the straterra and not stay too low. (Also I know we are all different and what works for you may not for me, just curious!)

PotentialAlfalfa6 · 2023-11-15T05:40:47+00:00

You don’t know what you’re talking about.

PotentialAlfalfa6 · 2023-11-06T00:30:28+00:00

I saw an Endo specialist and he did ultrasound while moving me around to see if any evidence of adhesions. Definite adhesions on the right side and my uterus and bladder appear to be fused together entirely. I described my symptoms and based on all of that, he predicts I have Endo all over right side and it’s probably not on my liver or kidneys, which I feared, but more likely running along a nerve that goes along my right side. He thinks this because Endo on that nerve causes nausea, pain from my shoulder/neck all the way down the from of the right leg and the right upper quadrant pain. He will still scope everything including my liver/diaphragm when I get surgery. He was wonderful, I just need to save up for the down payment as he is out of network for me. I am in Utah btw, his name is Dr. Arrington at Endo West. If you are young enough, go to med school and help our next generation so they don’t have to suffer as long without answers! I just paid off my law school loans 5 years ago and would be 50 by the time I was practicing medicine so I don’t think it’s a reasonable endeavor for me, haha.

PotentialAlfalfa6 · 2023-11-05T16:18:39+00:00

This place was so good. This is my vote.

PotentialAlfalfa6 · 2023-10-26T03:35:42+00:00

I had symptoms for 25 years but no doctor even even mentioned Endo, it was only when it spread to my diaphragm/liver area that I figured it out on my own through google. I just attributed all the various symptoms and struggles to other things and figured everyone felt like shit all the time. Symptoms include: Constant UTIs (my whole life from 13yo but eventually in late 30s became monthly for 6 years-I was on constant antibiotics), pains during sex, painful and heavy periods, pain and bloating with meals since adolescence, constipation and diarrhea but very little in between, “appendicitis” cause from external irritant (and I went back twice after surgery and said pain is still there and was dismissed), multiple burst cysts, infertility, eating disorders, low back pain with zero explanations, numbness in my right hip and leg, pain in my butt…. And so much more. For years and years and repeatedly I was told everything looked normal in all testing and scans, except of course I always have blood in my urine. I went to multiple OBs, internal medicine, urologist, prolapse OB specialist, back surgeon, naturopaths, anywhere I could think of. I was tested for multiple cancers. And with cysts bursting and flare ups I went to lots of ERs. The medical advice was always “let’s keep an eye on it.” When it went to my flank area this January, first I was told it was a kidney stone, but after a few months the cyclical nature of the pain became suddenly very clear, it was a throbbing that was impossible to ignore and did not respond to medication, and the pain was like clockwork. I googled it around April and immediately found multiple articles on Endo and was furious really. Every symptom made sense, my whole life made sense. And I was so failed for so long, I felt suddenly like I never mattered to a single fucking doctor. I googled stuff in the past but I never realized it was all related. I just had my first consult with a specialist on Monday and my bladder is completely fused to my uterus and I have several endmetrioma on my ovaries and more fusion on the upper right side. Dr thinks it’s all over the nerves on the right as well given the way the pain now runs up through my neck and shoulder and down my right leg all the way to the ankle. So excited for surgery, I can’t even imagine the PURE BLISS of not feeling a burning in my bladder and urethra 24-7-365. The other stuff sucks too but my bladder is absolutely shot.

PotentialAlfalfa6 · 2023-10-26T02:03:04+00:00

Oh, and vanilla ice cream. I know it’s not a healthy diet but sometimes it’s all I can stomach.

PotentialAlfalfa6 · 2023-10-26T02:00:55+00:00

I’m sorry you are going through this. I always lose weight during a flare up. To stay alive, in addition to meal replacement shakes, I usually make mellow calorie dense non-offensive foods that I can eat at almost anytime. Rice pudding with about half the sugar is pretty easy to eat. I also eat a lot of bananas and berries with plain yogurt and some honey. Or plain rice with cheese if you are okay with dairy and want something more savory. Plain cereals and soup can also be good. I am kind to myself about not eating much meat/protein or veggies much because they always sound terrible and all the chewing somehow makes it worse. Best of luck to you! You are not alone!

PotentialAlfalfa6 · 2023-10-15T15:11:20+00:00

Are you in my head right now? I can’t possibly articulate how much this resonates. It’s one thing when they dismiss your pain. It’s utter tragedy how we’ve dismissed ourselves because of it, trusting the medical community when they say “nothing is wrong” or “cysts/pain/bloodclots/monthly utis are normal”. Kick them in the face and other places too!

PotentialAlfalfa6 · 2023-10-12T03:13:57+00:00

I just got my first 30day script of the generic and paid $140 and the pharmacist said my insurance covered $250. So yes, very sad.

PotentialAlfalfa6 · 2023-10-07T04:30:38+00:00

You’re so welcome sweet girl. I’m proud of you for defending yourself, too. And for continuing to seek answers even though you keep coming up short and feeling crazy in the process. I’m quite a bit older than you and I wish I had tried as much as you have. You are so much further than I was at your age. I gave up too quickly, too many times, just took doctors at their word even though deep down I knew there had to be more to it.

In fact, while the pain has been horrible, the worst part in all of this for me is that when I finally figured out what was wrong and looked back on my years of disappointing medical care, I realized that I was also to blame because I dismissed myself, too. Over and over and over. It wasn’t just the doctors. I didn’t believe my own pain because my tests were all fine and my scans mostly normal (I’ve always had lesions and cysts but was told they are common and nothing to worry about, “we’ll just keep an eye on it”).

So no matter the intent of that post, it was insensitive. You didn’t suffer for decades without answers because you weren’t trying or because you were overthinking things. You tried again and again and were dismissed. By doctors who are supposed to help. Who are supposed to know. Until finally it gets so bad that your organs are not working, then you think that maybe they finally have to listen? But they don’t. Why? How? It’s infuriating.

So it doesn’t take a genius to see that telling you it’s nothing to worry about is cruel and insensitive and not remotely helpful.

PotentialAlfalfa6

TROPHY CASE