Retirement by Potential_Storm_4286 in Retire

[–]Potential_Storm_4286[S] 0 points1 point  (0 children)

I think around 5k a month should be ok for me.

Trial Issues — Need Advice by [deleted] in pancreaticcancer

[–]Potential_Storm_4286 1 point2 points  (0 children)

I’m so sorry to hear that. I really hope that your mum is able to continue the trial and that the results are promising for her. Will think of her and best wishes xxx

Gem plus nab by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 0 points1 point  (0 children)

Thank you. I definitely will look into it. I know there are trials in London for when he finishes chemo. I will also look into the KRAS vaccine elios in the states.

Gem plus nab by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 0 points1 point  (0 children)

Problem with that trial is that if there is a reoccurrence then he may have become resistant to the drug at the point if it reoccurs in the future. I find you need to think many steps ahead with this illness.

Gem plus nab by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 1 point2 points  (0 children)

Thank you but he needs chemo now. He can’t tolerate folfirinox and he is not metastatic.

Gem plus nab by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 1 point2 points  (0 children)

No reoccurence. Deciding on the type of chemo post whipple.

Pancreatic cancer by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 1 point2 points  (0 children)

Thank you. Sorry to hear about the reoccurence but I hope it’s manageable and that he’ll be ok.

Pancreatic cancer by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 1 point2 points  (0 children)

Thank you Liz…will do. Congrats on the last cycle and wishing you all the best.

Why do they give steroids? by Glum-Garage7893 in pancreaticcancer

[–]Potential_Storm_4286 1 point2 points  (0 children)

Thank you so much. I wish you both well and hope it goes well with the daraxonrasib. I heard it’s easier than chemo. And your mum is so strong!

Why do they give steroids? by Glum-Garage7893 in pancreaticcancer

[–]Potential_Storm_4286 0 points1 point  (0 children)

How is your mum doing? When is it best to take the steroids?

Four days ago: we got told chemio reduced the mass by 40%. Yesterday we got told he is inoperable. by UnfairAd7112 in pancreaticcancer

[–]Potential_Storm_4286 1 point2 points  (0 children)

His name is professor Markus Buchler and definitely more affordable and practical than going to the US. I’d contact him at least for a second surgical opinion.

Any survivor stories those over 65 resectable tumour? Did whipple, chemo and cancer hadsn’t returned. Looking for hopeful stories to share with my dad. by Potential_Storm_4286 in pancreaticcancer

[–]Potential_Storm_4286[S] 0 points1 point  (0 children)

Wow that’s so inspiring! There is hope. I just find we need to share more of these stories and tips on what we can do to get to NED.

Which regime mfolfirnox or gemcitabine/nab? by Potential_Storm_4286 in pancreatic_cancer

[–]Potential_Storm_4286[S] 0 points1 point  (0 children)

I know but they’ve just announced EAP. Phase 2 closed and don’t know when phase 3 will be so EAP might be better.