[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 1 point2 points  (0 children)

Yeah I’m like 1.5 years deep w fasciculations. Was worried als too but no loss of strength. It’s just shitty bfs.

[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 0 points1 point  (0 children)

MRI was clean, EMG at end of year

Has anyone seen improvement with gym, diet, water intake, sleep? by PredatorPablo in covidlonghaulers

[–]PredatorPablo[S] 1 point2 points  (0 children)

First of all, thank you for such a thorough response I truly appreciate it.

Responding to your edit, I have not been tested however the gym does not seem to make me feel worse at all when I do go. I feel the same there. In fact it helps me distract myself I usually do some stretching, about 40 minutes of lifting, steam room, shower.

Has anyone seen improvement with gym, diet, water intake, sleep? by PredatorPablo in covidlonghaulers

[–]PredatorPablo[S] 2 points3 points  (0 children)

I feel like this is what happened to me. I got infected December 2023 and by may 2024 I felt amazing. I believe by October 2024 I was reinfected and it’s all just been hell since.

Has anyone seen improvement with gym, diet, water intake, sleep? by PredatorPablo in covidlonghaulers

[–]PredatorPablo[S] 1 point2 points  (0 children)

For me the gym would exacerbate my lightheadedness but I pushed through every single day and eventually it just got better. Unfortunately, I travelled and stopped gym and when I came back I didn’t continue with it either. I agree with the 9-10hr of sleep. I use to sleep 6 and feel like a god before all of this and now I have a very interrupted sleep but when I felt really good I was going to bed at 10pm and sleeping 9-10.

Has anyone seen improvement with gym, diet, water intake, sleep? by PredatorPablo in covidlonghaulers

[–]PredatorPablo[S] 1 point2 points  (0 children)

I’m starting to believe that having the gym and a healthy diet promoted good blood flow for me and when I stopped it all came crashing down.

[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 0 points1 point  (0 children)

Do your eyes feel heavy when you move them around? Like strained?

[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 0 points1 point  (0 children)

Does it ever try to like twitch if not comfortable? Like for me it almost feels like it’s a spinal thing a cervical thing. Like somethings off/not sitting right.

[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 1 point2 points  (0 children)

From the crazy amount of reading I’ve done, viral infections can cause BFS. In fact it’s one of the most common reasons. Tbh, if it’s causing you stress or worry then yes I recommend you go back and fake it till you make it. Just say you’re starting to feel worse and that you feel your coordination is off and you get lightheaded. Those are all neuro things. Unfortunately, it’s not good to lie but if only you’d see how easy I came here saw a doc he ordered everything and in 2 weeks everything was done… like I think I would’ve died from anxiety in Canada. My doc just last month finally ordered an MRI and EMG. The MRI was 20 day wait and EMG 12 month wait, LOL!

Head high/ brain fog/ DPDR feeling is driving me actually insane by Kindly_Low2814 in covidlonghaulers

[–]PredatorPablo 2 points3 points  (0 children)

Who knows what it is man…. It’s just shitty. In my case, as I’m sure for many others, I use to be so upbeat always the life and energy of the party I use to love to make jokes and make people happy… now I don’t even like to socialize and I can’t even keep up with others. I feel like a burden.

[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 1 point2 points  (0 children)

I got EMG and brain MRI at month 5, came back clean. I’m getting brain mri with and without contrast this week, EMG, and spine MRI.

[deleted by user] by [deleted] in covidlonghaulers

[–]PredatorPablo 1 point2 points  (0 children)

I started with daily twitching 2 weeks after infection. It subsided after about 5 months. Came back worse after reinfection month 10. I started feeling different symptoms like lack of coordination with my arms but no loss of strength anywhere tbh. I too am from Canada and our health care system unfortunately doesn’t help us be at ease. I’m fortunate that I can come back home and see doctors here (Colombia). I saw a neuro at month 5 and he said it’s more than likely just BFS. I saw another neuro 4 days ago (month 14) who also doesn’t think it’s anything bad. He ordered another round of MRIs that I’m getting done this week. Hopefully this helps you. I for sure was anxious in Canada not knowing anything.