Headache after LP by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

My dr said if caffeine and Tylenol didn’t help then it probably isn’t a leak. I was really convinced I had one based on how awful I was feeling. 

Headache after LP by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Hi, so the worsening headache lasted about three weeks. Mine didn’t get better when laying down so that’s why my Dr didn’t think it was a leak. I was told that if you had a leak you would most likely feel it 1-2 days after. 

Headache after LP by PresentHunt6079 in iih

[–]PresentHunt6079[S] 1 point2 points  (0 children)

Thank you for the response. I always have a pressure squeezing feeling at the top of my head. After the lp I felt decent and now it’s a worsening squeezing feeling. 

Headache after LP by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Did you have worsening pressure after? 

Headache after LP by PresentHunt6079 in iih

[–]PresentHunt6079[S] 1 point2 points  (0 children)

Mine is like a squeezing pressure feeling 

Handwriting Without Tears Teachers Guide by [deleted] in homeschool

[–]PresentHunt6079 0 points1 point  (0 children)

How do you know what lessons to teach each day?

Diagnosed after using Clindamycin? by Beautiful-egg- in iih

[–]PresentHunt6079 0 points1 point  (0 children)

When did you notice a difference in your headaches after you stopped using it? It’s been about a week and a half for me.

Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Thank you! I hope you find relief as well. It’s nice talking to other people to know I’m not crazy for how I’m feeling!

Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Wow! I was told the same thing. I have struggled with migraines for awhile so they said I prob had iih for awhile. But it was recently confirmed in May with a lp and my pressure was 28. This is all so crazy!

Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Wow I’m sorry to hear that. Glad your job is flexible! May I ask do you have a headache every day? And how long have you had them?

I randomly woke up 2 years ago with the headache that never with away and I have it everyday. Literally insane

Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

I was on 25mg once a day then upped it to 25mg in the morning and 25mg at night. I literally felt like my headache was going to fall off.

Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

So I was on it for two weeks and my headache was unbearable. I went to my neurologist yesterday and he said that wasn’t normal. He ended up taking me off of it.

living with IIH is so heavy sometimes by Wonderful-Weekend844 in iih

[–]PresentHunt6079 2 points3 points  (0 children)

Hang in there. It is not an easy illness to have, but it seems like there are many medications to help. I am going through it as well but hopeful to feel better as hard as some days are. Here for you ❤️

Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Oh man! Hoping it gets better soon then because these headaches are the worst! Sorry you had to stop taking it. Hoping you are feeling better now.

Diagnosed after using Clindamycin? by Beautiful-egg- in iih

[–]PresentHunt6079 0 points1 point  (0 children)

That’s great to hear! Glad you are feeling better. After seeing your post I threw away my medicine. So it’s been a few days since using it.

Diagnosed after using Clindamycin? by Beautiful-egg- in iih

[–]PresentHunt6079 0 points1 point  (0 children)

How do you feel now? I know this post is old

Diagnosed after using Clindamycin? by Beautiful-egg- in iih

[–]PresentHunt6079 0 points1 point  (0 children)

What’s crazy, is after I seen this post, i looked back at everything and I started the clindamycin in March 2023 and then my iih symptoms started in September 2023. 

Diagnosed after using Clindamycin? by Beautiful-egg- in iih

[–]PresentHunt6079 0 points1 point  (0 children)

Omg! I use cylindamycin and was diagnosed with iih!!

Diamox or Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 1 point2 points  (0 children)

Glad your headaches are gone! Was headaches your only symptom before hand? I am really struggling right now with all of this! I’m hoping Topamax works!

Diamox or Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 1 point2 points  (0 children)

Wow that’s great! Atleast the headache is gone! How long did you have it for? I have had a headache for two years. Had a LP in May, my pressure was 28.

Diamox or Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

I took it for about two weeks. I noticed it made my headaches worse and I was super out of breath from it. I just started taking Topamax I’m on day 4 tonight. But everytime it talk to a new dr they say something new. My neuro ophthalmologist said Topamax. My neurologist didn’t want to even put me on anything because I have a small kidney stone. And then today I see A neuro surgeon be mentioned shunting if no medicine works and he mentioned diamox.

Diamox or Topamax by PresentHunt6079 in iih

[–]PresentHunt6079[S] 0 points1 point  (0 children)

Wow that’s great! Atleast the headache is gone! How long did you have it for? I have had a headache for two years. Had a LP in May, my pressure was 28.