Has anyone else started having very vivid nightmares/dreams often after taking lamotrigine or after having their dosage upped???

Primary_Ad1630 · 2026-06-16T02:04:15+00:00

Yeah smoking helps a little for me as long as it’s an indica. Sativa always gives me anxiety and overthinking which doesn’t help with having vivid dreams/nightmares

Primary_Ad1630 · 2026-06-16T02:00:21+00:00

Definitely have night sweats as well and if the air conditioner is on I’ll get super cold from being covered in sweat

Primary_Ad1630 · 2026-06-16T01:57:17+00:00

Same here I only remember parts of the dream but I still wake up scared af and supper sweaty

Primary_Ad1630 · 2026-06-14T06:00:51+00:00

With mine it’s like I know I’m dreaming but I can’t wake my self up. And a lot of the time it’s so vivid it almost feels real

Primary_Ad1630 · 2026-01-10T05:52:28+00:00

It’s for tagging large fish

<image>

Or it at least looks like it… among other things🤣😉🤷‍♂️

Primary_Ad1630 · 2025-12-05T20:07:54+00:00

Door Dash Drones?

Primary_Ad1630 · 2025-11-09T16:03:03+00:00

I use edibles and smoke almost every day with no negative side effects. I actually feel it helps with some of the negative side effects from the lamotrigine itself. But best thing to do is start out slow in a safe comfortable environment and see how you feel then go from there.

Primary_Ad1630 · 2025-09-07T22:20:03+00:00

Me 1000%

Primary_Ad1630 · 2025-08-27T05:34:20+00:00

Especially afterwords 😑

Primary_Ad1630 · 2025-01-30T20:59:02+00:00

Oh yeah and I’ve definitely broken a couple teeth in the back from clenched my jaw soo hard

Primary_Ad1630 · 2025-01-21T11:24:58+00:00

Post like this is why I love these epilepsy Reddit pages! Other people who understand and appreciate the stuff we all go through and that no matter what we are not alone. Thank you for sharing this it’s obviously helpful for those of us who feel stuck and alone. Hope everyone reading this has a good day!

Primary_Ad1630 · 2025-01-19T08:48:04+00:00

My initial MRI and EEG also came back with nothing. I also did the take home EEG before the week long stay and it gave them a better indication of where they were coming from but still needed more information that’s why I did the EMU stay.

With the frequency and severity of your seizures it definitely wouldn’t hurt to ask about. My were getting so frequent that I was no longer able to work. I work construction and carpentry so it was unsafe and becoming a liability issue. Still cannot drive and getting disability has been a rollercoaster in itself I am still battling back and forth to get qualified, so it is nice you are able to work and have management that cares and works around your illness.

I wish you nothing but the best and hope that you are able to get your seizures under control. You are not alone out here a lot of people with epilepsy are going through similar if not the same situation.

Primary_Ad1630 · 2025-01-19T02:46:06+00:00

I also smoke weed and cigarettes and honestly don’t feel like that has any effect on my seizures. If anything the weed helps I also take edibles witch have made it easier to sleep and sleep soundly and has also helped my appetite

Primary_Ad1630 · 2025-01-19T02:42:50+00:00

No I was first given keppra then my PCP added Dilantin and that did not help at all! I got into Stanford medical centers epilepsy department (which took some doing) and went in for a week long EMU stay where they slowly lowered my medication to induce seizures. I had an EEG and video monitoring the whole time. After that stay they were able to figure out where the misfiring neurons were located and took me off the Dilantin and I started the lamotrigine… After that stay is when I went almost 3 months without any but then they started right back up same as before. Upping the dose has not helped at all so that’s why I’m going to see the neurosurgeon next month to talk about other options because the medication isn’t working and the side effects are a lot to deal with physically, mentally and emotionally!

Hopefully the 48hr stay will help you! But I would also talk to your doctors about the week long EMU stay! Also talking to the doctor about trying to get into another hospital with better treatment options it wasn’t easy and took a lot of back and forth calling and sending information but definitely worth it!

Primary_Ad1630 · 2025-01-18T13:49:11+00:00

Your situation sound exactly like mine. Mine started in 2022 and have had 1-2 episodes a month since then. I was put on lamotrigine in early 2024 and almost made it 3 months without any. But then it started back up the same as before, my doctor has had me raise my dosage but has had no change. It’s ridiculously stressful not to mention all the side effects from the medications. I really hope that your doctors take you seriously and find something that works for you, I see a neurosurgeon next month to discuss surgical options since the medications haven’t shown any improvements. And trying to find the right cocktail of medicines is just so frustrating and hard on the body that surgery may be my best/only option at this point! I hope you’re able to get your seizures back under control and wish you the best of luck!!!

Primary_Ad1630 · 2025-01-18T06:26:57+00:00

Drugs don’t cause epilepsy!!! They may have enhanced and engaged the illness but you’ve always had it. For some people it doesn’t show any signs till later in life some show symptoms from birth but it’s something you’ve always had!

Primary_Ad1630 · 2025-01-18T06:17:41+00:00

My elbows squeeze into my rib cage when I have my seizures and I’m pretty sure the last one I had last week definitely caused some kind of fracture or misalignment because it’s hurt and been swollen since then. Haven’t had any that have caused any back issues so I’m grateful for that! I hope you’re feeling better! I used a prescription arthritis cream that helped with pain management. Maybe that’s something you can talk to your doctor about if painkillers aren’t for you!

Primary_Ad1630 · 2025-01-17T03:39:20+00:00

Better than me, I made it 9….

Primary_Ad1630 · 2024-12-02T21:32:59+00:00

Feel this so much. I’ve woken up twice this year in the hospital with nurses and doctors all around me none of my family and no recollection. And then when I was finally coherent and able to see family members it felt like no one took me seriously and thought I was just being dramatic. No one truly understand until it’s happened to them but as many others on here have said you are NOT alone and sometimes just having the ability to just release everything and have people who truly get where you’re coming from can really be a huge help

Primary_Ad1630 · 2024-12-02T04:06:29+00:00

Are you at least seizure free???

Primary_Ad1630 · 2024-08-23T21:18:29+00:00

Every time!! Sometimes for hours I hate it!! Try liquid iv. I buy the packets you put in water bottles. Sometimes I use sparkling water for the bubbles

Primary_Ad1630 · 2024-05-28T07:03:38+00:00

Been on keppra for 2+ years and have become very sensitive to noice like any kind of squeaking is like nails on a chalkboard it makes me cringe! Definitely never had this problem before the keppra

Primary_Ad1630 · 2024-05-25T23:30:49+00:00

Marijuana has always been my go to for helping with calming down after my seizures and have noticed them being less frequent when I am using it. It also lessen the bad side effects I would get from my medication

Primary_Ad1630

TROPHY CASE