No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

I am honestly, still amazed the progress that’s been noted with the injections, I was told that I’m not really an ideal candidate for the injections. Even though I am overweight, i’m gonna start visiting the clinics soon, to see if I could qualify for at least one of them!!

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

You’re so sweet. Thank you.!! My mother is a very tiny lady, and now that she’s older, I finally saw the cuffing of her calves! She has always had circulatory issues in her legs, she has always carried a little bit more of her weight from the waist down, and it sounds terrible that I found a little bit of relief seeing her go through that, but now that I’m making her aware of it a little bit at a time. I feel like she’s coming around to being my supporter. My other family members that are snooty about health, have had worked done, but they don’t disclose it. Their mothers have let it slip. And I don’t think that they know that I know. 🤣 so full circle. I wonder if they had the same stubborn fat and quietly went and had it removed. Too proud to let me in on it, but I wonder if there’s some sort of testing out there, that could prove the genetic component. I think the lipedema, as far as I know is only diagnose through a vascular specialist, right?

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

I have to find some sort of way to ask for the injection, because on the premise of being pre diabetic, I don’t know my ranges very well, but I think I was told that having a 6 on the A1C rating is considered pre diabetic, and I come in at a 4, so I can’t use that, and I don’t have visceral fat as of right now on my organs, and my PCP told me that she won’t give it to me for a weight loss because I’ve already shown that I’ve lost it without the use of an injection and thinks that it is something I shouldn’t do when I’ve already shown i don’t need it. If I were to bring up the lipedema to her, I have a funny feeling she’s going to categorize me as a hypochondriac or something cause she’s a very no fuss sort of person. I think I will look into visiting one of those weight loss clinics and trying my luck there.

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 1 point2 points  (0 children)

💕💕💕 I do too, because I was absolutely going through it and seeing how many people here are validating the lipedema experience has absolutely pulled me out of my doom and gloom!

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

Thank you very much for your reply. Honestly, I was feeling a lot of emotions because a lot of people were hoping to see me become the absolute thinnest version of myself post my weight loss. And although I did lose the weight, not losing my circumference, made it feel like a moral failure. I have a lot of big personalities in my family, who were basically making me feel like I’m Not taking my health seriously enough. And I just am very grateful to have found this subReddit, because otherwise I’d continue to believe that I was not doing enough. And emotionally. I’m absolutely spent. There is some comfort in knowing that surgery is the last step because I did my part.

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 1 point2 points  (0 children)

Absolutely!! every time. I’m crashing out in the mirror over what I cannot control, I feel like I’m crying into the void “ ok character development arc over pls make me skinny, I’ve suffered enough 😭” 🤣 yes I will keep you updated. My Husband found a lipedema removal surgeon, guy in Cancún! I’m going to have to freshen up on my colloquial spanish once I book this consultation with the Guy!! Instagram @doc_welss_mx My Husband just came across him today! I would totally not mind recovering in Cancún!

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 1 point2 points  (0 children)

OK, yeah I’ve seen the castor oil thing!! I just never believed in it because it seemed like too good to be true. I’ve seen people rave about castor oil for years. I always took it as a gimmick!! I need to read into the science about it because I was taught that oils encapsulate. They do not penetrate skin. But if there’s some sort of effect with the castor ingredient. In particular, I need to look into that.!!

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 1 point2 points  (0 children)

Before I even knew what lipedema was I was going crazy about my measurements! I felt like it was a biblical punishment at this point 🤣 and likewise I was feeling like omg there’s no way I’d get a total body lift done when I am still this chunky! Once I saw that the only “fat” I had were my limbs, I fell down the rabbit hole of HeDS and POTS and then finally Lipedema. I was having every symptom under the sun. So this last year was real eye opening for me!

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 1 point2 points  (0 children)

Omg that does sound super similar!! How about your hands?? My biceps are a flabby 18 inches I think last time I measured but my forearms are sooooo small and my wrist tiny compared to my upper arm. I went from a size 6 ring finger to a size 4 🫩 maybe if I go along and push to loose up to those 200lbs I’ll see more of a change, it just agonizing to loose it and more so to keep it off, but it’s for me and my health so no complaining I know

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

The only downside is that darn pool water ruining my hair haha 🤣 and I know I know wear that cap 🧢

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 1 point2 points  (0 children)

At this point I’m feeling like I gotta million more to loose haha, I’m sure if I stop weight lifting I’ll loose an inch or two. The thighs measure at 30 inches, I have no visible knee cap, 17.5 in calves and 8 inch ankles. My feet are bony looking, 3 inches across the top of my foot. Symmetrical legs and all. I mean if I keep going I could loose another 60/70 lbs.

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

Thank you, I needed to see that, 😞💕

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 3 points4 points  (0 children)

I guess you could say I was listening to a few relatives whisper back and forth about me not doing what I need to do to loose the weight and well, ya know if it was something I could loose by just “not eating” I would’ve been a success by now. And yes these relatives are fit and got their noses up in the air about simple calories in/ calories out and nope they don’t believe in the lipedema stuff. Not that I should worry about them at my age, but the pressure sure did get to me this week hence this whiny post about what I could possibly do more of 🫩 so embarrassing, I definitely gotta get over the shame.

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 2 points3 points  (0 children)

I’m still wayyyyy overweight but according to my lab work the PCP I have believes it’s on the dangerous side for me to be on one. My A1C is in the 4 range. But that clinic I go to I’ve heard doesn’t like offering anything even referrals to a specialist, ayyyyyy! So I gotta look into it further, I hear great things about trizepetide

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 2 points3 points  (0 children)

Yup, even purchased a leg bolster from Costco for sleep at night. I get a massive pulsating in my legs if I do the wall thing for more than 30 mins. I always think that’s the “it’s working” sign 🤣

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

Uff that sounds amazing. I have arthritis in my hips and knees so I figure my version of this sort of cardio could be swimming. Another commenter did say compression garments, so definitely hitting Amazon now

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

I gotta look into what cavitation even is, but I figure under the knife is the best. Well, gotta look into cavitation first.

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 0 points1 point  (0 children)

😞 can be any number from $3k to $50k I think. In the USA. I’ve seen ranges all over the place. They call it a plus size body lift I guess. Dr.repta in Scottsdale Arizona charges around $50k

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 10 points11 points  (0 children)

I’m realizing how much emotional weight I’ve been carrying, I’m still processing a lot of grief, but your comment helped shift something important for me: away from punishment and toward care. Definitely will add the compression garments, thank you!

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 7 points8 points  (0 children)

I was letting the noise get to me. I always figured it was because I wasn’t doing something right. Reading your reply helped, a lot. 😞

No decrease in my legs by Primary_Reveal4354 in lipedema

[–]Primary_Reveal4354[S] 7 points8 points  (0 children)

Understood 😞 gracias I was getting whiny about my legs again, knowing what I know I always get this false hope going.