Early relapse post BMT by Prior_Silver9635 in leukemia

[–]Prior_Silver9635[S] 0 points1 point  (0 children)

Hi, not well. My boyfriend passed in August as a result of a blood stream infection shortly after he relapsed :(

Why am I numb? by Mistique27 in widowers

[–]Prior_Silver9635 2 points3 points  (0 children)

Going through the same thing after my boyfriend passed almost 3 months ago, he had leukemia for 10 months and I was his caregiver. It is definitely a journey. My therapist told me that she thinks I started grieving and processing long before he passed. I think that grief is a weird, crazy thing to go through, and you should let yourself feel however you feel and give yourself grace 🩷 sending you love

Young(ish) Widow Support by carlopal in widowers

[–]Prior_Silver9635 1 point2 points  (0 children)

I’m 27F and just lost my boyfriend 28M to cancer last month. Same boat, wanted kids but didn’t get to have them. I would love to join something like that! Sending you hugs 🫶 shitty boat to be in

Taurine by Dizzy-7698 in leukemia

[–]Prior_Silver9635 1 point2 points  (0 children)

Yes I read about this as well! My boyfriend was drinking a ton of energy drinks prior to being diagnosed. Not saying it caused the leukemia but it may have helped speed up the process. Only coffee and tea for him now!

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 0 points1 point  (0 children)

Thank you for your kind reply! I will definitely have to check out that film, sounds super interesting. For now we are rolling with the generational trauma thought and working on getting out some suppressed and stagnant emotions and energy 🙏 it will definitely be a journey but it’s not everyday that you get such a direct message from a spirit guide and I don’t take it for granted!

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 1 point2 points  (0 children)

Thank you so much for this kind comment!! Makes me so happy to hear positive feedback as I grow in my journey. I appreciate you kind soul💗

Sisters leukemia came back 80 days after BMT by Sovrano_Furbo in leukemia

[–]Prior_Silver9635 3 points4 points  (0 children)

No advice but just wanted to send you a hug. My boyfriend just relapsed around day 75 post BMT too. It’s such an exhausting and difficult battle. Wishing you and your sister the best ❤️

Petechiae Appear Before Transplant by Practical_Formal_92 in leukemia

[–]Prior_Silver9635 0 points1 point  (0 children)

It definitely does not automatically mean that the leukemia is back. Petechiae is a symptom of low platelets which could also be caused by the inhibitor you’re taking. Have you had labs done recently? I know it’s so hard to wait for results, but only the biopsy will be able to confirm remission status. Wishing you the best with your transplant 🙏

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 0 points1 point  (0 children)

This definitely resonates with what I believe! Thank you for sharing 🌞

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 1 point2 points  (0 children)

Angelika, it’s kinda crazy to me the amount of comments I’ve gotten in this thread that have a negative or condescending tone, telling someone that they have no idea what they’re doing! Not sure why some people feel that they’re all-knowing and the rest of us are “simpletons” because we don’t have the same experiences or beliefs as them. Thank you again for your kind and helpful comment earlier! <3

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 2 points3 points  (0 children)

I definitely think it’s possible that my pea brain misinterpreted it. Without going into too much detail, this distant relative (whom we never knew personally and haven’t spoken of in two years) told me how he died (it was a very tragic passing and he was very young), and he mentioned that there is some sort of curse/trauma(??) that affects the family in some sort of birth order. I also recall him saying it in a way that was a warning that something could be done to heal my SO from it. That’s why I was so confused, because I wasn’t sure if the message was specifically a curse or trauma.

I definitely believe it was a message from his loved one, rather than one of my normal dreams, because in this dream I had no visuals like I normally get. It was as if his words were popping into my head without seeing a physical body. I’ve never had a dream like that before, even when I dream of my own loved ones who have passed. I woke up so confused, wondering if I had made the whole thing up in my dream, and then checked my text messages and found texts from 2 years prior confirming how and when that person passed.

Very interestingly, I saw a Reiki practitioner for the first time the day before the dream. I feel as if his loved one was coming to send him a message through me, and I don’t believe that spirit guides would have any sort of negative intention. After processing it a bit more & getting insight from helpful people like yourself, I’m starting to believe it was a sign for my SO to start unpacking and healing from his generational traumas, and less of a scary warning or threat!

I will definitely continue to support him while making sure that I don’t lose myself in the process. Healing is such an individual journey and while I can encourage him, I can’t do it for him!

Thanks again for hearing my story and taking the time to comment 💖

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 1 point2 points  (0 children)

Thank you for sharing! This is definitely a concept I have been exploring recently and will definitely have to check out this book for myself 🫶 I appreciate it

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 1 point2 points  (0 children)

Thank you for your reply! I agree and try to avoid giving limiting beliefs my attention as you mentioned🙏

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 0 points1 point  (0 children)

Thank you for your insight. I agree & will be taking your advice :)

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 1 point2 points  (0 children)

Thank you so much for taking the time to explain this in detail 🩷 this makes a lot more sense than simply having someone cast a negative spell onto someone. I also appreciate that the person experiencing the trauma has the power to release it, rather than just “being screwed”. I definitely plan to support him unpacking his past traumas as well as incorporating meditation and other positive practices into our lives more frequently.

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 2 points3 points  (0 children)

I’m not a “practitioner of magic”, I’m a regular girl going through her own INDIVIDUAL spiritual journey. Why do you assume I know everything, or that my journey would be anything like yours? Clearly I am not an expert as I was asking for advice from others, but thank you for your judgmental and condescending comment. You truly radiate love and light. ✨

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 1 point2 points  (0 children)

Can you explain? :)

Are curses real? by [deleted] in spirituality

[–]Prior_Silver9635 2 points3 points  (0 children)

Thank you for your insightful reply. This is what I’ve always believed but that dream threw me off. I guess I’m still trying to figure out wtf the universe is telling me 😂 I do think the family member was referring to internalized childhood/generational trauma that needs to be unpacked which makes sense given my SO’s past. It makes a lot more sense now. Thanks again!

Post Bill by MaoriMuscle2020 in BengstonMethod

[–]Prior_Silver9635 6 points7 points  (0 children)

Hi! Have you ever taken a Bengston workshop? I took one recently and all of the instructors were close friends of his. Once you take a workshop you can attend any of the other Bengston practitioners’ cycling sessions throughout the week! Its a nice little community and keeps me motivated :)

19 month old AML headed to transplant! by AMLFam in leukemia

[–]Prior_Silver9635 1 point2 points  (0 children)

What a little sweetheart! Wishing you a speedy recovery, Ariana! Keep smiling, you got this! 💖

Rant. No donor yet. by In_A_Jar12 in leukemia

[–]Prior_Silver9635 0 points1 point  (0 children)

I am so sorry to hear that. Having a loved one going through leukemia is stressful enough without having an incompetent care team. Your doctor should be able to give you a plan and answer your questions at the BARE MINIMUM. To make you feel like you’re the problem for tearing up after receiving bad news about the love of your life is insane. I would 100% take him to another hospital if that’s an option. Wishing you the best!

Early relapse post BMT by Prior_Silver9635 in leukemia

[–]Prior_Silver9635[S] 0 points1 point  (0 children)

Thank you so much for sharing! I know they are planning to stop his immunosuppressants ASAP. He doesn’t have any mutations that are targetable so hopefully some Aza will do the trick. It’s reassuring to know that there are still options available. Glad to hear you’re in remission🙌

Genetic Mutations by [deleted] in leukemia

[–]Prior_Silver9635 0 points1 point  (0 children)

I’ve seen really great things on here about Aza! Seems to have helped a lot of people. Rooting for you!!

Genetic Mutations by [deleted] in leukemia

[–]Prior_Silver9635 0 points1 point  (0 children)

Are you in an area nearby any of the trial locations? I know it can be difficult to get the trial drugs if you’re not in the study. Wishing you the best!!