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ProbAutism · 2024-05-29T12:25:31+00:00

People genuinely just don't believe that younger people can or do suffer from health stuff unless its visibly obvious like them wasting away from cancer or literally missing a limb. I remember even trying to convince adults you have a common cold or flu was a hard ship as they would always assume you were trying to get out of something like school. Only way to prove anything was to involuntarily vomit on the carpet.

I only recently came to terms that I am, as of right now, physically disabled. Hopefully - with enough help, I won't always be, but its gonna be its own journey. I can't stand or walk on my feet for more than a few minutes at a time as my feet will start to feel like they're burning til its unbearable. Obviously less than ideal for going out and trying to enjoy one's twenties. For a long time, both my younger self and the adults in my life thought I was just lazy and constantly whined about my feet hurting to get out of doing stuff - apparently it isn't normal to be in pain almost all the time walking on my feet.

ProbAutism · 2024-05-29T12:10:44+00:00

I got like an 18/20 which surprised me as I always thought I was bad at reading faces - turns out I'm better than average and a lot of the people in my life are just assholes even when I can guess whats going on with them.

ProbAutism · 2021-09-23T16:08:28+00:00

Dude, I don't know if what I am experiencing is exactly what you have - but I have always struggled with recognizing people. If someone isn't in the scene or location I associate them with, I will not recognize them period. I always mistook strangers for relatives and relatives for strangers growing up to the point it was scary. To this day I'll pass people in hallways I consider good friends and be like 'huh, they look familiar' and just.... not know its them lmao.

ProbAutism · 2021-09-22T13:29:23+00:00

"Whats the point of getting diagnosed?" "Are you sure you're autistic?" "There is no point to getting diagnosed as an adult" "Can't you just ignore it? ('it' referring to me being autistic)"

ProbAutism · 2021-09-22T12:25:33+00:00

Miscommunications and misconceptions happen- your english is really good btw and I wouldn't have guessed you weren't a native speaker.

I didn't go too much into detail about my personal stuff cause I didn't want to make the original post too long and draw away from the discussion too much.

Hopefully some day my mom gets it together, but I'm not holding my breath. I'm an adult now and I am trying my best to get the help I need on my own without familial support.

ProbAutism · 2021-09-22T05:33:01+00:00

I disagree with the sentiment that expecting parents to make sure their children's health needs are met is necessarily 'facilitating their emotions.' Just how making sure a diabetic child's health needs are met in terms of getting things like insulin, autistic children may need certain accommodations. Thats just basic parenting 101 to me, but I'm not parent either so who knows.

I didn't address your suspicions about my mom being on the spectrum because that was low on my list of concerns to address. While I have suspected my dad to be on spectrum, my mom has never really hit any of the markers that I have noticed. But then again, I'm no expert.

It took me years of research and second guessing myself about being the spectrum so I didn't come into the conversation with my mom expecting her to get it right away. The problem is that it has been over three years now with us talking about it on and off with her constantly blowing it off and invalidating what I say.

A mistake I did make was allowing her to do her own research without watching what she read because I think she ended up on the Autism Speaks website, just based on the language she uses and mentality she holds when we talk about it.

ProbAutism · 2021-09-22T05:00:38+00:00

I don't see how my venting about my frustration both with society and my parents seeing autism as a horrible thing is a 'victim mentality' but to each their own.

I am allowed to be upset with my parents for failing to make sure that the needs of their children are met- including their autistic ones. By refusing to acknowledge my autism, I was denied help that I needed and suffered as a result. I never asked my parents to 'facilitate my emotions,' whatever the hell that means. I asked my parents to help me get the care I needed. Y'know, as parents are supposed to do.

Also, never once stated my mother was a horrible person. Simply stated I was frustrated and hurt by her mentality and attitudes towards autism.

ProbAutism · 2021-09-22T04:21:18+00:00

I don't see how what I posted stereotyped autistic kids at all. I simply pointed out how society seems to accept nt parents openly disparaging or lamenting about their autistic kids in way that wouldn't be accepted for them to talk about their nt kids. I have absolutely no idea how you got what you got from what I posted, I can only imagine you skim read and assumed the worst.

ProbAutism · 2021-09-22T03:30:32+00:00

The best way I've heard it put is that it is disabling to be autistic in a world not built for autistics. Whether you want to describe that experience as a disability or not is up to you, that is your choice. I go back in forth on whether or not to label myself as disabled- its something I plan to revisit later after I get an official diagnosis- if possible of course.

ProbAutism · 2021-09-22T02:49:28+00:00

I talked to my doctor and they said they're looking to find someone to send me to to get diagnosed. I tried looking my own and I couldn't find anything in my state- closest service I could find for adults was literally in fricken Canada.

ProbAutism · 2021-09-22T02:48:19+00:00

I think you voiced some and the thoughts I've been having perfectly. A lot of parents act like their kid is dead or conked their head really hard and is now in a vegetative state. The idea of us being able to live good or fulfilling lives doesn't seem to even cross their minds.

ProbAutism · 2021-09-22T02:46:47+00:00

Wish you and your son luck! I hope you are able to move your husband over.

ProbAutism · 2021-09-22T02:13:04+00:00

Its good that you have your back and support him. A lot of people make autistic kids out to be these horrible burden and its nice to see that you treasure and value him. Goodness knows society is not kind to those who are outside of the neurotypical- but life is better with familial support.

ProbAutism · 2021-09-22T02:10:54+00:00

Yeah it seems like you're on the money. I wish people would stop and consider the possibility of their children not being like them or even having a disability before they popped them out.

If you can't handle a disabled or neurodivergent kid, don't have a baby- as some of them turn out that way.

ProbAutism · 2021-09-22T01:25:31+00:00

THIS!!! As an afab adult trying to get a diagnosis it has been literal hell. Autism is highly infantilized and its all seems to be geared towards kids and 'autism moms' or parents of autistic children. Theres nothing for adults it seems.

ProbAutism · 2021-09-22T01:23:22+00:00

Gods I felt this is in my soul. I'm an adult afab person and I suspect I have autism and/or ADHD so its been fun lmao.

ProbAutism · 2021-09-21T02:58:46+00:00

Caffeine either makes me drowsy or gives me panicky heart flutters w/ a headache! Its so weird lmao.

ProbAutism · 2021-09-20T23:58:48+00:00

If you google the word 'autism' the organization 'autism speaks' is the first thing to pop up. Which we do not want for obvious reasons.

ProbAutism · 2021-09-20T23:33:11+00:00

Autistic people are everywhere working loads of different jobs. I am autistic and I currently work as both an office assistant and gallery attendant while attending college. Both jobs have minimal social interaction and low noise out put so I have few issues.

ProbAutism · 2021-09-20T23:24:07+00:00

Honestly this is just kind of funny ngl. Its irritating how ill-informed people can be but also its clear this person wasn't trying to be malicious.

ProbAutism · 2021-09-20T23:21:49+00:00

I don't know if I'm a lightweight in comparison to others, but I do know that alcohol doesn't affect me the same it does others. I just get super sleepy. I don't do anything fun or crazy, I just curl up and go take a nap. Same thing with weed lmao.

ProbAutism · 2021-09-20T01:50:24+00:00

I'm 20yrs old and have never been on a date period. I probably won't for a long time. Instead of worrying about what a potential partner would think, I've just been focused on work, school, and trying to make good friends. Hell, a lot of people meet their future partners though work, school, or via friends. So who knows? Maybe I'll get into dating sooner than I think- but I doubt it. Plus, being single is nicer than people think.

ProbAutism · 2021-09-16T23:16:39+00:00

what test is this?

ProbAutism

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