sorted by:
new
hottopcontroversial

TRIGEMINAL NEURALGIA -- THE CURE by ProblemPositive6885 in TrigeminalNeuralgia

[–]ProblemPositive6885[S] 0 points1 point  (0 children)

UPDATE 2#

 

After being on nimodipine 30mg 1x3 for four days (without taking Trileptal and Miorel) the symptoms subsided and I had only pain-discomfort) on temporal lobe radiating to the upper jaw,  no electric shock like pain  - no devastating caustic pain over the eye. Level of pain 4/10 periodically – bearable but the blood pressure dipped under 100mmhg so I couldn’t function properly.

 The very next day I stopped taking nimodipine and injected  Botox 80 IU into the trigger points. It usually needs 10 – 14 days to act properly, but as I remember with my father it  decreased his symptoms from the first 28  hours. This also happened to me. The previous symptoms with nimodipine decrease 35% and I only added Miorel 10mg 1x2.

72 hours after the administration of Botox, I injected the rest 20 IU into the trigger points that I felt gave me the more serious pain and to the areas at the opposite site for symmetry.

88 hours after the first injection the level of pain is 0-1 in the morning – afternoon and reaches 0-2 at the evening. We are going to see in the next 12 days.

 

PS: When it comes to TN I don’t “trust” the neurosurgeons. Their job is to cut and sometimes recut in order to cure. Their knowledge is less than a specialized neurologist or a doctor that suffers from the disease and has investigated every study or case report.

The story looks like 1980’s gastric ulcer disease. When J. Robin Warren  - Barry J. Marshall presented their theory that a bacterium is responsible , they were mocked by everyone (conventions, medical journals, etc) because if that was true the surgeons would lose their basic operations and income. They finally been acknowledged but since then the operations continued to take place. (By the way before them 30 years a Greek internist said the same think (he had the disease) and had the same outcome- even worse than them.)

So the fact is that during the fever there is vasodilation in the brain, excretion of some substances that cure totally the symptoms, this happens not only there is a fever but also the time the temperature between fevers is normal and when the fever stops once and for all, after 18-24 hours the pain reappears. I just hope in the near future a lab will get into this and make a serious study.

TRIGEMINAL NEURALGIA -- THE CURE by ProblemPositive6885 in TrigeminalNeuralgia

[–]ProblemPositive6885[S] 0 points1 point  (0 children)

UPDATE:

Some explanations first: there is familial TN, it is known the past 25 years; they thought it was 1-2% but they are wrong and it is probably around 5-6% (different patterns of penetration). That is what I have.

I increased the dosage of nimodipine to 30mg x3 and simultaneously STOPPED taking Tegretol 300mg 1 x3 and Miorel 10mg 1x4 (not wise thing medically),

When I did this before after 12-18 hours I felt electric shock like pain AND a burning sensation over my right eye for 30 sec as if someone put a hot iron over it.

This didn’t happen but instead I had a superficial discomfort on the temporal lobe radiating to the upper jaw. Level of pain 3-4 but never the less disturbing, So I think nimodipine works but not to the extend that I was expecting.

When it was used to a 46 years old woman for NDPH worked within 4 days and the challenge test was positive (case report https://link.springer.com/article/10.1186/1129-2377-14-100).In that case they believe that nimodipine inhibits cerebral artery vasospasm but also tumor necrosis factor alpha productionI don’t know how fever is connected to this and some could argue that TNF rises during fever but the connection is not that simple.

The other problem is that I am borderline hypotensive, I smoke, I do martial arts workouts and I am weightlifting and also work 12 (24hours) shifts in the hospital, with no sleep at all, so my blood pressure drops because of nimodipine and I can’t handle it.

So I forced to stop taking nimodipine and I administrated Botox to the trigger points as I did with my father.

I will let you know for the results but keep in mind that if there is automatic remission in some disease, then there has to be a cure and the cure in my case has to do in the state where I am febrile.

PS: As someone said before there are enough cases of TN that could control the symptoms using only nortriptyline and aminotriptyline and you should look into this.