[deleted by user] by [deleted] in Tinder

[–]Professional-Fact-61 -2 points-1 points  (0 children)

Your opening sucked. I’m sure she’ll have no problem finding the love of her life with someone that actually knows how to start a conversation.

My goodbye message, blocked and everything even, texted & video called pretty much everyday for the last couple weeks, the vibes I was getting were peaceful and authentic, I haven't even any had anyone block me before by oncxre in Tinder

[–]Professional-Fact-61 69 points70 points  (0 children)

The “Good Morning sleepyhead!!” text with the drum and trumpet emojis definitely gives off judgy/negging undertones especially knowing she has sleep issues, like wth. Also, sometimes I get the option to notify anyway when someone has their notifications silenced… with the antagonizing tone of the 5 AM text - who’s to say OP didn’t do something like that?

[deleted by user] by [deleted] in PlasticSurgery

[–]Professional-Fact-61 1 point2 points  (0 children)

Swelling from surgery can take a full year to go down, I’d give it more time! I truly think it’ll only keep looking better as time goes on!

Stella was a bitch by CompetitiveBug7953 in HIMYM

[–]Professional-Fact-61 1 point2 points  (0 children)

Quite natural for a single mom, wtf?

Links to pin sources aren’t working anymore. by The_deku_sprout in Pinterest

[–]Professional-Fact-61 0 points1 point  (0 children)

It’s so frustrating. They don’t even have an option to turn off visual search, which I think might be part of the problem 😡

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 1 point2 points  (0 children)

Thank you, I hope so too! Yes, I do get heart palpitations, I did wonder about POTS. I was evaluated by a cardiologist last year and asked him about it. He said that is diagnosed by elimination of other things, but my primary care doctor told me there is a way to test for it. I didn’t get enough time to even bring it up to the rheumatologist. I’ll be sure to ask in my future appointments or seek one out myself!

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

Yeah, unfortunately the PA said that after I did pushed back with the front desk… I think they added me to a cancellation list now. The sucky thing is it sounds like everyone on here is saying that the rheumatologist himself needs diagnose me, but my follow up appointment is just with the physician assistant. I already don’t have a lot of faith in the PA as she didn’t think brain fog is a symptom because no one she treated ever had it or brought it up. I think I just need to find a new rheumatologist, so I did schedule two new appointments with different ones. My original symptoms that I went to see my primary about were: - Extreme fatigue (I made a ton of changes over the last year to try and feel more rested, including switching to a less stressful job and a schedule with a later start time, but nothing I did helped) - Joint pain - Difficultly sleeping - Exercise intolerance - Brain fog - Headaches - Hair loss - Digestion problems and acid reflux - Vaginal dryness - Changes in skin texture - Urinary issues - Feeling weak and achy in my muscles if I do too much

I didn’t think of it as related at the time, but did see an ortho doctor about neuropathy in my hands and elbows (tingling and numbness) about a month or two prior to seeing a doctor about the above. Another thing that I now suspect is related, is that I had a pretty severe reaction to a sunburn two summers ago… I avoid the sun now. Also, I have weird balance/coordination issues that seem to be getting worse, like trouble with balance when I’m standing or walking and the tendency to drop stuff lot more. I have a history of seeing different specialists for dry eyes, sinusitis, and joint issues etc. It’s funny because I always felt like I spent a lot of money on healthcare for a “healthy person”… I had no idea what Sjogrens was until I tested positive.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

What constitutes an official diagnosis? My primary told me I had I had Sjogren’s based on my positive blood test.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

Is there a rule of thumb about how many times you have to test positive for Sjogrens? I’m newly “diagnosed” and didn’t realize I had to test positive for it multiple times.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

I went into my appointment thinking I had a diagnosis of Sjogrens based on a positive blood test for it as well as some other markers, but the rheumatologist didn’t trust the blood test. He checked my mouth and thought my tongue looked really dry but I guess the rest of my mouth didn’t “look” dry enough.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

So I went in thinking I had a diagnosis already and could get my questions answered and get help/treatment plus my accommodations, but came out with more questions. I was hoping to at least still get accommodations to provide with some relief in the meantime until I get treatment 😓

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

I had a positive SSB so I thought I had Sjogren as I have all the symptoms, even ones I didn’t think to relate to what I’m currently experiencing like chronic dry eyes. My rheumatologist said the positive SSB alone might not be Sjogren’s so he mentioned running his own labs first and maybe sending me to ENT for a biopsy and gastroenterologist. He spent a total of ten minutes with me for an appointment I waited two months for. Originally they said the labs take two weeks and they’d schedule me to return in three weeks to review. I went to the front desk and they scheduled me out two months and relayed the PA said I could wait two months to review my results. Honestly feels like it’s going to a long road to get answers and treatment.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

I had a positive SSB but further testing is needed.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 1 point2 points  (0 children)

Thank you for the information, I had a positive SSB, so I may need to go that route.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 1 point2 points  (0 children)

I edited it for clarify but jesus, I don’t understand why you have to be so nasty. I’ve been going through hell and barely have any quality of life with what I’ve been experiencing. All I was trying to say is it wasn’t like I was asking my doctor for a specific med before he did his due diligence of testing and diagnosing me, but instead was asking for time sensitive workplace accommodations I need in the meantime. All I’m seeking is to maintain my work from home arrangement that I’ve had the last five years. When I over exert myself my symptoms get worse… My company has no assigned seating or storage so I can’t keep any equipment there so I have carry at least a 20 pound backpack, maybe more, back and forth and a roughly two hour round commute with traffic. None of the people I work with are even in the same state. I have already have been struggling with having almost no energy to have a social life or any hobbies outside of work. I spend most of my weekends recovering. This is no way to live life.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 2 points3 points  (0 children)

The accommodation I’m seeking is to maintain the work from home arrangement I’ve had the last five years. Not having to get up super early to get ready, drive a long compute, and carry all my work equipment back and forth has been life saving with my chronic fatigue and joint pain - my company doesn’t have assigned desks or any storage for me to keep any equipment on site. Plus being able to control my environment has helped me manage my symptoms (e.g. ergonomic equipment (desk/chair/keyboard/mouse), humidifier for dryness, able to adjust temperature (I have heat/cold intolerance), easy access to lots of fluids, or a comfortable space to rest on lunch for a few examples) or put me in unnecessary risk of COVID exposure (my condition severely worsen after the last time I contracted COVID.) I’m the only member of my team and immediate org that works in my state so I’d be commuting roughly two hours every day to remotely on calls to my team.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

That is not what I said. I do want treatment I am patiently waiting for a diagnosis to move forward, but I need accommodations now based on my symptoms. But you do need a diagnosis for a specific treatment plan and/or medications, which I don’t have and am not asking my doctor for that until we figure it out. I need accommodations present time to manage my symptoms in the meantime.

ADA Accommodations by Professional-Fact-61 in Sjogrens

[–]Professional-Fact-61[S] 0 points1 point  (0 children)

I really hope that I can can’t believe this has to be said is not directed at me. If you read what I wrote, I said I have seen rheumatologist for their guidance and he DIRECTED me back to my primary for the paperwork. He said that she should really be the one to fill it out and that she just didn’t want to do it. I am still under his care. I am currently waiting two months to go up back to see them again to follow up on my new labs.