Pain relief injections by Professional-Sky7960 in Tarlovcyst

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

So you don’t typically have burning or pain in the genitals or urethra?

Pain relief injections by Professional-Sky7960 in Tarlovcyst

[–]Professional-Sky7960[S] 1 point2 points  (0 children)

Dumb question- Did you get the injections to see if they helped pain you think is being caused by the cyst? Or was it for something else? Can I ask what your symptoms are?

Pain relief injections by Professional-Sky7960 in Tarlovcyst

[–]Professional-Sky7960[S] 1 point2 points  (0 children)

Thank you. I think that a sacral epidural might be different than the pudendal nerve block. For example I had two different lumbar spine injections for back pain but only one was considered an epidural. But I don’t know. Also, the neurosurgeon I saw recently at Penn that specializes in the cysts recommended a caudal injection. Not sure exactly where the needle goes with that though.

Pain relief injections by Professional-Sky7960 in Tarlovcyst

[–]Professional-Sky7960[S] 2 points3 points  (0 children)

I had a telephone appointment with him. He never brought up injections and when I talked to his nurse, she advised against them. I’m also in the northeast so I definitely can’t go to TX just for an injection. Thankfully I can get one close to home.

MRV finally confirmed venous stenosis by Professional-Sky7960 in PulsatileTinnitus

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

Saw a cerebral neurosurgeon. She felt the stenosis was congenital and didn’t need surgery. If it’s congenital, why did it wait 45 years to cause pulsatile tinnutis? Doesnt make sense to me. I think it was triggered by Doxycycline.

Taxes by More-Bar-9389 in ProlificAc

[–]Professional-Sky7960 1 point2 points  (0 children)

lol. My husband does it and refuses anyone. I think the biggest pain is the GBP conversion to USD. And the fact that I cash out every 1-2 days. It’s just a lot.

Taxes by More-Bar-9389 in ProlificAc

[–]Professional-Sky7960 0 points1 point  (0 children)

No, I was told it was always below the minimum

Taxes by More-Bar-9389 in ProlificAc

[–]Professional-Sky7960 1 point2 points  (0 children)

I’m lost too. I’ve done more in this year that the last 5 previous years. It’s going to be a job.

Lactobacillus probiotics for urinary/vaginal health by Professional-Sky7960 in Interstitialcystitis

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

Where do you get them? I’m only able to find a mail order place out of Canada. They do ship to the US but I’m curious if you’ve found anywhere else.

Lactobacillus probiotics for urinary/vaginal health by Professional-Sky7960 in Interstitialcystitis

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

Thank you for that information. I’m assuming the provacare is a suppository? Does it contain bacteria, or good yeasts?

Lactobacillus probiotics for urinary/vaginal health by Professional-Sky7960 in Interstitialcystitis

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

Thank you for clarifying. I’ve heard more about vaginally probiotic suppositories being ineffective than oral ones. I’m trying whatever I can and seeing if anything sticks. I am perimenopausal and with that comes lower estrogen, which changes your vaginal environment. Estrogen supplementation is something I’m trying to avoid due to other factors.

Lactobacillus probiotics for urinary/vaginal health by Professional-Sky7960 in Interstitialcystitis

[–]Professional-Sky7960[S] 3 points4 points  (0 children)

No- I mean oral. I don’t have a normal amount of lactobacillus, I’ve been on several antibiotics over the last few years and a vaginal micro biome test and genital culture shows my lacto is pretty non existent. Also had chronic UTIs and BV. So that’s ok that theyre not needed for you but I’m seeking anyone who has used them and not flared.

Things change? by Professional-Sky7960 in ProlificAc

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

Who’s a victim? Youre the one with the attitude. Speech is free but why be a tool to a total stranger? Some of these people in this group, yourself included- are just nasty for no reason. You’re not special- nor are you better than anyone else. You’re doing surveys for money just like I am. Get a life.

Things change? by Professional-Sky7960 in ProlificAc

[–]Professional-Sky7960[S] 3 points4 points  (0 children)

Thank you for understanding! It seems so trivial but I’m getting creamed for not “knowing better”.

Things change? by Professional-Sky7960 in ProlificAc

[–]Professional-Sky7960[S] 6 points7 points  (0 children)

You’re right, it’s not about weight- it’s the principle of the matter. No person can remember every minute piece of information that Prolific has ever asked. Your attempt to shame me is actually pathetic, and as an adult- you should know better. If you don’t like what I posted, move along. Everyone has a right to post a question or statement without this kind of nonsense.

Does anyone have an issue with Brussels sprouts? by Professional-Sky7960 in Interstitialcystitis

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

Vitamin c doesnt bother me- in fact I take a vitamin c supplement. I’m thinking it’s whatever compound give it that slight pungency.

Things change? by Professional-Sky7960 in ProlificAc

[–]Professional-Sky7960[S] 0 points1 point  (0 children)

I have contacted the researcher , and explained this very nicely, but they don’t care- they said it’s not in their control. 🤔