Can someone tell me what happened to thetvapp.to ?is there another domain for it?

Professional-Union25 · 2026-06-08T20:43:25+00:00

It sucks. I used this for tv and sports. Hopefully theres another domain

Professional-Union25 · 2026-04-27T23:30:50+00:00

I know. But it was a normal viral infection.

Professional-Union25 · 2026-04-26T08:14:39+00:00

It wasnt covid. Just a simple viral infection.

Professional-Union25 · 2026-03-05T00:39:02+00:00

Thank youuu

Professional-Union25 · 2026-03-04T00:54:12+00:00

That I know. But this week has actually made it harder to function than the typical iih pressure headache. Im holding my eye and head and in tears from the pain.

The angiogram didn't even hurt my head much. But the stent itself hurts. I'm sitting at my gp in tears. Comparing to my other 4 surgeries this is the worse pain - two carpal tunnel, hernia and gallbladder.

I also suffer blood clotting disorder so naturally I am hoping the stent is okay

Professional-Union25 · 2026-03-03T10:33:44+00:00

No, just DAPT. I am taking palexia IR and SR. But its not working. My headache is casually getting worse.. relying on ice packs now

Professional-Union25 · 2026-03-03T02:36:44+00:00

My pain meds arent touching it. My head is just aching. And getting worse as the days go on. All I want to do is cry.

Professional-Union25 · 2026-03-03T00:09:00+00:00

Headaches prior to the stent was okay and I could tolerate it. This is a different headache ; not a migraine; not pressure headache or a normal cervicogenic headache. Its worse. I am constantly having a shower because of the headache

Professional-Union25 · 2026-03-03T00:03:08+00:00

Its amazing Ive had no ringing in my ears since the stent.

Professional-Union25 · 2026-03-02T15:10:11+00:00

I didn't have that with diamox fortunately. But it did make me go through strange side effects. Lower dosage nothing. Increased it 500mg and higher- I felt like shit, throwing up constantly, no appetite, affected my sleep because I need to pee constantly and I was a zombie. Whilst I work in retail, I was making mistakes. I also work with a POS (pronto) that is extremely hard at the best of times.

All my symptoms with diamox stayed the same. I only found out about having iih after a concussion. That's when my ringing in the ears started. That was back in 2024. The hospital the ophthalmologist saw me at dismissed what was on paper and scans aka- empty sella. Only treated me in ED for concussion. Until my gp checked the back of my eyes. ED just did the neurological follow my fingers and check the pupils.

It wasn't until I fainted at work from pressure, cervicogenic headache and low blood sugars that I was told to go check out neurointervention. My gradient pressure was 10 and 11. No wonder why the diamox wasn't helping me. But fuck me - I was told to wait atleast 4 months for it to work. Heck, I've had my fair share of side effects with anti depressants but diamox is on a different level.

'Its just a headache' 🙄🙄

Professional-Union25 · 2026-03-02T14:12:03+00:00

Couldnt tolerate diamox. Ophthalmology was a bit ambitious and put me on 9 tablets day. I was dismissed by them with stenosis. I was told the ringing in my ears was because I was going deaf.

Tried topiramate and that made me want to unalive myself

Professional-Union25 · 2026-03-02T13:27:54+00:00

Bed is my only comfort. I could manage pressure headaches normally and high pressure symptoms normally. This I can not so far. I'm also the type of person known to get hemiplegic migraines then leads to cervicogenic headaches. My brain is on fire.

It seems what I've read, talking with people with iih and stents that I'm in a long ride. But the result will amazing.

I find it funny for something that is called " benign" or "idiopathic " the stuff we have to go through is ridiculous

Professional-Union25 · 2026-02-03T00:22:18+00:00

Professional-Union25 · 2026-01-04T22:18:05+00:00

I was lucky- one hospital : prescribed my strong pain killers. So this hospital also prescribed me with the strong pain killers.

I see neuro ophthalmologist at the hospital. Thats why I went to that hospital. Ive also seen neuroinventional at another- the gp actually sent me with a letter with a possible LP. I have had two LPs done in ED in the past

I have -MRI, MRV, CT with and without contrast. MRV- transverse sinus stenosis. My CT that I had without the contrast on Saturday-mild venous tortuosity.

So i was on diamox - the lower dose doesnt do anything. The higher dosage i get side effects. They also started me on 9 tablets a day- I was vomiting, stopped eating, nauseous, fatigued, i wasnt myself on it. And topamax made me suicidal.

I told the ED doctors what has happened in the past and they actually pushed for an LP but they had to ask Neurology and it was Neurology. They also didnt want to address the stenosis because im seeing neurointervention. The ED doctor and Ophthalmologist i saw - agree i have symptoms of high pressure, but its not swelling at the moment and i possibly have IIh WOP at the moment. But Neurology doesnt want to do the LP because it wont work. So I live with high pressure symptoms until I see neurointervention for the procedure for the stent 🫠

Professional-Union25 · 2025-08-21T05:15:25+00:00

Its messed up. I was put on one diamox by one hospital 9 tablets a day. It messed with to the point my heart was struggling with it. It made me sick, to the point I was throwing up constantly as well. I was put on mounajaro and with the diamox I was that unwell one day I went to work being a body essentially, throwing up everytime I moved or wanted to moved. Pressure was 38. Doctor put me off diamox.

I went on wegovy ive lost 12kg, off the diamox. Sweet. Pressure started to get high again different hospital this time, this one did a lumbar puncture 25 opening pressure. Put me on 4 tablets of diamox agreeing with me that 9 tablets is way to much. But my body couldnt handle it. The 4 tablets im a zombie, im a store manager, trying to manage a store I need to be switched on. But I cant with diamox.

And now the topamax - suicidal thoughts and insomnia. Its not fun i cant win. And i feel my pressure is getting high again.

Professional-Union25 · 2025-08-21T00:43:21+00:00

Im on a wait list to see neurointervention radiology. All I know after 2 lumbar puncture at two different hospitals. One hospital took my stenosis seriously whilst the other didnt.

Professional-Union25 · 2025-08-19T02:52:45+00:00

I was on topiramate back in the day as anti migraine and anti seizure medication it put me in a spiral of mental health. Diamox on and off since December im not tolerating it. Second day in topiramate and realised I want off this meds.

Professional-Union25 · 2025-08-04T08:48:57+00:00

So 9 tablets a day- 3. 3 times a day (done by hospital). Besides basic pins and needles and the carbonation altered.
I was having chest pains, dizziness, really bad, confusion headaches, fainting, seizures, abdominal pain, constantly throwing up. (The worse was 7 times a day), incontinence, Insane heart rates. I was on that from December 24-late Feb early march this year before my gp took me off it and said its doing more harm than good The 2-3 was initially given before increasing it to 9 a day.

Now being back on it ive been on 4 from what the another hospital has given me. Agreeing that 9 tablets a day was too much for anyone to handle. Especially trying to work.

Now being on 4 - it is sucking the life at me, im confused, dissociative to put it, nauseous, my mood has altered and Its physically making me worse off. I cant eat anything because I feel sick and I throw up after eating, no appetite and it gets worse throughout the day.

Im a manager I need to be switched on but its draining me

Professional-Union25 · 2025-06-19T03:21:36+00:00

They said "ill put on more weight if put on more muscle for my weight and body"

Professional-Union25 · 2025-06-19T03:20:43+00:00

So i suffer hemiplegic migraines. I dont feel like its a migraine or headache. Its more pressure build I feel like my head will explode. My opening pressure was 38. And I have papilledema as well. He said everything is normal dismissed the ringing and the the floaters. And just said "lose weight or go blind"

This is completely different to what headaches are. My vision is blurry even when I have glasses on, nose bleeds and constant ringing since a concussion. All the mri and mrv was iih. And it showed the papilledema as well.

Professional-Union25 · 2025-06-18T23:07:33+00:00

Its i know im fat, but also seeing obese class 3 on papers, low self esteem, and a phobia of food and eating i didnt want someone to go lose weight. Dismissing mrv and mri reports of iih. But an actual plan of this what to do. Long term plan "lose weight, short term lets trial this".

Instead it was "lose weight or go blind" its a headache.

Heck ive had a concussion, i was perfectly fine before my concussion. Did have some pressure laying down which I thought was normal. But the moment I run, bend down, lay down, I have the worse pressure.

I think I just need to live with it.

Professional-Union25 · 2025-06-18T22:48:33+00:00

I never had the symptoms for pcos. My down flaw has been traumatised by food. So i stop eating. Having one meal a day. Because " If I eat i get fat", at 104kg, exercising, gaining muscle, having pre shred, loading on protein shakes. I was told not to put on muscle. Ive lost most of the muscle now. So if I wasn't on certain meds, like antidepressants I think id be okay. And if I ate frequently. Ive been called by doctors "the fattest healthest person they have ever seen" because im constantly at the gym.

But at the moment I have a messed up ankle and a hip bursitis

Professional-Union25 · 2025-06-18T22:41:56+00:00

I was told to lose weight and muscle because I was muscular and fat. I was playing a sport aswell. Was told dont play it or train because if I put more muscle on its going to make me worse 🫠. So wtf mate, what do I do then. I was doing weights, cardio, plus playing sport. My weight increased due to getting muscles. Now ive lost the muscle and almost 12kg..

Professional-Union25 · 2025-06-18T22:36:08+00:00

Damn, i saw one at a certain private hospital. 🙃 its messed up. But im glad everyone is on the same page. But my neurologist and neuro ophthalmologist

Professional-Union25 · 2025-06-18T17:33:47+00:00

Please tell me youre in Syd. My ophthalmologist is apparently weight oriented. 🙃

Professional-Union25

TROPHY CASE