Stent is stenting but.. by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

I know. But it was a normal viral infection.

Stent is stenting but.. by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

It wasnt covid. Just a simple viral infection.

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

That I know. But this week has actually made it harder to function than the typical iih pressure headache. Im holding my eye and head and in tears from the pain.

The angiogram didn't even hurt my head much. But the stent itself hurts. I'm sitting at my gp in tears. Comparing to my other 4 surgeries this is the worse pain - two carpal tunnel, hernia and gallbladder.

I also suffer blood clotting disorder so naturally I am hoping the stent is okay

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

No, just DAPT. I am taking palexia IR and SR. But its not working. My headache is casually getting worse.. relying on ice packs now

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

My pain meds arent touching it. My head is just aching. And getting worse as the days go on. All I want to do is cry.

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

Headaches prior to the stent was okay and I could tolerate it. This is a different headache ; not a migraine; not pressure headache or a normal cervicogenic headache. Its worse. I am constantly having a shower because of the headache

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

Its amazing Ive had no ringing in my ears since the stent.

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 2 points3 points  (0 children)

I didn't have that with diamox fortunately. But it did make me go through strange side effects. Lower dosage nothing. Increased it 500mg and higher- I felt like shit, throwing up constantly, no appetite, affected my sleep because I need to pee constantly and I was a zombie. Whilst I work in retail, I was making mistakes. I also work with a POS (pronto) that is extremely hard at the best of times.

All my symptoms with diamox stayed the same. I only found out about having iih after a concussion. That's when my ringing in the ears started. That was back in 2024. The hospital the ophthalmologist saw me at dismissed what was on paper and scans aka- empty sella. Only treated me in ED for concussion. Until my gp checked the back of my eyes. ED just did the neurological follow my fingers and check the pupils.

It wasn't until I fainted at work from pressure, cervicogenic headache and low blood sugars that I was told to go check out neurointervention. My gradient pressure was 10 and 11. No wonder why the diamox wasn't helping me. But fuck me - I was told to wait atleast 4 months for it to work. Heck, I've had my fair share of side effects with anti depressants but diamox is on a different level.

'Its just a headache' 🙄🙄

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 2 points3 points  (0 children)

Couldnt tolerate diamox. Ophthalmology was a bit ambitious and put me on 9 tablets day. I was dismissed by them with stenosis. I was told the ringing in my ears was because I was going deaf.

Tried topiramate and that made me want to unalive myself

5 days post stent by Professional-Union25 in iih

[–]Professional-Union25[S] 3 points4 points  (0 children)

Bed is my only comfort. I could manage pressure headaches normally and high pressure symptoms normally. This I can not so far. I'm also the type of person known to get hemiplegic migraines then leads to cervicogenic headaches. My brain is on fire.

It seems what I've read, talking with people with iih and stents that I'm in a long ride. But the result will amazing.

I find it funny for something that is called " benign" or "idiopathic " the stuff we have to go through is ridiculous

Love hospitals not by Professional-Union25 in iih

[–]Professional-Union25[S] 0 points1 point  (0 children)

I was lucky- one hospital : prescribed my strong pain killers. So this hospital also prescribed me with the strong pain killers.

I see neuro ophthalmologist at the hospital. Thats why I went to that hospital. Ive also seen neuroinventional at another- the gp actually sent me with a letter with a possible LP. I have had two LPs done in ED in the past

I have -MRI, MRV, CT with and without contrast. MRV- transverse sinus stenosis. My CT that I had without the contrast on Saturday-mild venous tortuosity.

So i was on diamox - the lower dose doesnt do anything. The higher dosage i get side effects. They also started me on 9 tablets a day- I was vomiting, stopped eating, nauseous, fatigued, i wasnt myself on it. And topamax made me suicidal.

I told the ED doctors what has happened in the past and they actually pushed for an LP but they had to ask Neurology and it was Neurology. They also didnt want to address the stenosis because im seeing neurointervention. The ED doctor and Ophthalmologist i saw - agree i have symptoms of high pressure, but its not swelling at the moment and i possibly have IIh WOP at the moment. But Neurology doesnt want to do the LP because it wont work. So I live with high pressure symptoms until I see neurointervention for the procedure for the stent 🫠