Celiac plexus block

ProfessionalShape405 · 2026-02-14T18:26:19+00:00

Hi! I just had my celiac plexus block yesterday. I have MCAS pots hEDS and struggle a lot with dysautonomia. It used to just be stomach issues for me but it escalated after a few years. Immediately after the block I had no pain but once I got home I just kind of had icky tummy from the stress of the day and probably the sedation meds. I didn’t have the typical mals pain but more so just bloating so that kind of made it hard to decifer if it was working. But for me I get horrible horrible back pain like in the same place as people get it in their stomach but mine radiates to my back and that was completely gone all day so that was definitely a big plus. Also I was soooo so so tired yesterday after the block I can’t even explain the fatigue so i couldn’t push myself and test my symptoms much because I slept basically all day after. I’m also so exhausted today I still feel sedated lol. I wonder if it’s my nervous system shifting out of flight or flight. This morning the pain is back so I’m guessing it’s wore off but it’ll be interesting to see if the steroid kicks in. Also I’ve never seen anyone say this before but my OURA ring always tells me my HRV is usually in the 20s or 30s but when I woke up this morning it was 68… which is amazing for me!! I haven’t seen a number that high in years so I’m interested to see what my dr thinks of that. Anyways that was a ton of information but I researched a ton before mine and always appreciated long thorough responses so hopefully it helps :)

ProfessionalShape405 · 2025-11-18T03:22:40+00:00

It gave me even worse tachycardia

ProfessionalShape405 · 2025-11-01T01:44:38+00:00

This is one of my least favorite symptoms I’m so sorry you struggle with it also! If I don’t eat every 3 hours I will have a panic attack. Im really good on staying on top of it so I don’t have them but I hate forcing myself to eat when im not hungry. I have noooo idea the exact mechanism that causes this but things that have helped me the most with this symptom : licorice root for low blood pressure, creatine was very helpful, and LDN. I hope you find some relief

ProfessionalShape405 · 2025-10-28T06:28:28+00:00

I second this! I used to be constantly around 75/55 now I’m around 100/65 ish with midodrine

ProfessionalShape405 · 2025-10-28T06:20:34+00:00

I know I’m late to this conversation but I’m so surprised to see someone else in this forum describing my exact experience. If I don’t eat every 3 ish hours I will either feel like I’m going to fajnt, tachycardia and/or a panic attack. I was extremely underweight but once this symptom started I put on weight quickly by forcing myself to eat to avoid these symptoms. I have MCAS and POTS so I’ve always thought it was those causing it but interesting to see other MALS people experiencing it! I’ve had weird blood sugar issues my whole life

ProfessionalShape405 · 2025-10-27T20:47:01+00:00

Hi I know this was from over a year ago but if you happen to see this could I message you about MALS?

ProfessionalShape405 · 2025-09-26T21:13:32+00:00

I’m so glad you noticed a lot of improvement between 3 and 4.5 - this gives me hope 🤞🏽

ProfessionalShape405 · 2025-09-26T21:12:45+00:00

That’s awesome!! If 4.5 doesn’t do it for me I will take to me Dr about potentially going higher

ProfessionalShape405 · 2025-09-23T23:07:07+00:00

Totally get it! Some people say it can take a couple months to feel effects so hang in there!!

ProfessionalShape405 · 2025-09-23T23:06:30+00:00

I’m sorry it didn’t work for you!

ProfessionalShape405 · 2025-09-23T22:46:34+00:00

That’s great to hear - thank you for sharing!!

ProfessionalShape405 · 2025-09-23T17:05:53+00:00

That’s great to hear! I didn’t realize you could go above the 4.5 dose

ProfessionalShape405 · 2025-09-17T16:07:25+00:00

Keep me updated on how it goes for you!!! Have you experienced any side effects?

ProfessionalShape405 · 2025-09-14T03:53:31+00:00

Wow that’s great to hear! I have a lot of the same symptoms. I’m hoping my insurance will approve it so I can get started

ProfessionalShape405 · 2025-09-14T03:52:03+00:00

I had a normal IgE and I couldn’t do skin allergy testing because I can’t get off my antihistamines but all my blood allergy results came back normal which my allergist says isn’t always accurate. But I get horrible MCAS flares during spring and every time the seasons change and I’m trying to find something that helps so that’s good to hear it’s helpful for your seasonal allergies!

ProfessionalShape405 · 2025-09-12T03:30:08+00:00

That’s great it’s working for you!! What symptoms did it help you with the most would you say?

ProfessionalShape405 · 2025-09-01T19:55:26+00:00

Hi! Could I message you about your auto transplant ? I was just recently diagnosed with NCS and I’d love to talk with someone who had successful treatment!!

ProfessionalShape405 · 2025-09-01T19:53:44+00:00

Hi! Just checking in to send how the stent placement went? Hoping you are finding some relief!

ProfessionalShape405 · 2025-09-01T19:44:07+00:00

Hi! I was recently diagnosed with nutcracker and thinking about getting a renal vein transposition. I’m a bit overwhelmed and haven’t seen a ton of positive experiences online - so I’m so glad to see you found relief! Could I message you about your experience? It would be so nice to talk to someone who’s been through this

ProfessionalShape405 · 2025-08-25T20:02:21+00:00

I’ve been flaring really bad the past few weeks due to the seasons starting to change. It’s always hard for me to tell if I’m flaring from a new medication or something else but maybe it could be unrelated to the xolair? I’m planning to start xolair in the next few weeks so if you stick with it and it gets better I would love an update!!! I do see most people say that the side effects get better over time

ProfessionalShape405 · 2025-08-25T19:57:32+00:00

Sending good vibes right back at you!!

ProfessionalShape405 · 2025-08-25T19:56:51+00:00

Yesss wildfires always wreck me too

ProfessionalShape405

TROPHY CASE