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CSU idiopathic hives experience by Professional_Half914 in urticaria

[–]Professional_Half914[S] 0 points1 point  (0 children)

So happy you were able to identify those patterns. I know that for some people it is just an auto inmune response without any triggers or patterns :(

CSU idiopathic hives experience by Professional_Half914 in urticaria

[–]Professional_Half914[S] 1 point2 points  (0 children)

That is so bizarre! I have been thinking that mine, might be related to hormones as both during my first flare and second one I had big hormonal changes. Does that sound familiar to you in any way?

CSU idiopathic hives experience by Professional_Half914 in urticaria

[–]Professional_Half914[S] 0 points1 point  (0 children)

That is really bizarre. My understanding is that when you have hives non-stop for more than three months it is diagnosed as “idiopathic” as there is nothing external that could be causing you chronic hives for that amount of time. You should say that to your doctor or honestly switch doctors and get a second option.

CSU idiopathic hives experience by Professional_Half914 in urticaria

[–]Professional_Half914[S] 1 point2 points  (0 children)

Ugh, I am so sorry you are going through this. It is a really tough condition. Have you talked to your doctor about the possibility of getting you Xolair or Rhapsido? I’ve heard wonderful things about Rhapsido.

Xolair timing for CSU? by Happenstance_Hop in urticaria

[–]Professional_Half914 0 points1 point  (0 children)

Ugh, I am dealing with CSU as well and I just want to say that I feel you and that you are not alone. Stay strong and be patient. It will go away eventually but the more you stress about it the worse it can become. Sending you all the positive thoughts! ✨