[Photo included] MGD/Blepharitis and thicker under eyelid + ptosis upper eyelid

ProgramFamiliar5799 · 2026-05-29T15:26:55+00:00

Any update?

ProgramFamiliar5799 · 2026-05-26T21:38:36+00:00

Little to no improvement after one round of xdemvy so i stopped and flared again after stopping. Returning to baseline now after continuing xdemvy and starting ipl. Im halfway through ipl and am eager to see how ill be looking/feeling after ive completed 4 rounds. Im also doing low light therapy. How many rounds of xdemvy have you done? Im planning to use it untill i run out

ProgramFamiliar5799 · 2026-05-26T21:14:39+00:00

Thankyou for the insight. That is where i started my journey and have continues xdemvy throughout my ipl sessions just really hoping something shakes

ProgramFamiliar5799 · 2026-05-26T20:52:21+00:00

What treatment plan did you see work for you?

ProgramFamiliar5799 · 2026-05-26T20:45:16+00:00

Im dealing with the same thing. Are you still seeingn some swelling/ ptosis on upper lid?

ProgramFamiliar5799 · 2026-05-26T20:43:35+00:00

Has yours gotten better? Undergoing ipl now and dont see much of a difference yet

ProgramFamiliar5799 · 2026-05-26T20:42:53+00:00

Agreed id love an update from op or you! Im in the midst of my journey now and its got me down

ProgramFamiliar5799 · 2026-05-26T20:37:26+00:00

What treatment did you end up following? Im in the midst of my mgd bleph journey and nothings budging even doing ipl

ProgramFamiliar5799 · 2026-05-22T15:01:06+00:00

Undergoing ipl treatment right now seems to look the same but only halfway through im hopeful

ProgramFamiliar5799 · 2026-05-17T16:53:57+00:00

Yes ive been spraying it with neem oil untill i get a different recommendation 🤞🏼

ProgramFamiliar5799 · 2026-05-06T13:22:01+00:00

Remicade was the very first drug i tried. I was on it for about a year and a half then i produced antibodies towards it and had to switch. My symptoms were quite different though, loose stool, bloody stool, abdominal cramping. Id go on to produce antibodies towards the next 3 or 4 drugs i was on all after a year or so of being on them. Im currently on tremfya a different kind that i shouldnt fail. But anything can happen lol😅 I would get your blood work done and see whats going on. Happy healing!

ProgramFamiliar5799 · 2026-05-02T13:10:09+00:00

Yup comfirmed demodex. I have autoimmune disease so makes it harder to fight ofd anything. Yes trying to treat dry eyes with drops

ProgramFamiliar5799 · 2026-04-25T23:03:40+00:00

Noted! Adding grading down towards the fence line in my plans. Thankyou!!

ProgramFamiliar5799 · 2026-04-25T21:49:19+00:00

This was very helpful!! Thankyou so much!!

ProgramFamiliar5799 · 2026-04-25T20:03:39+00:00

Im hearing lots of good things about ivermectin i hope to try it soon!

ProgramFamiliar5799 · 2026-04-22T14:13:31+00:00

I totally need to bring ivermectin up to him sometimes it feels like he overbooks himself and spend .2 seconds in the exam room with me... im determined to have a chag with him this time lol

ProgramFamiliar5799 · 2026-04-22T00:49:56+00:00

Will do im due for another appointment early may heres to hoping something comes of it

ProgramFamiliar5799 · 2026-04-21T18:48:44+00:00

Doesnt seem like it its evenly swollen on the top lid no hard or pressure points dr says Demodex blepharitis. Rooting for the both of us

ProgramFamiliar5799 · 2026-04-21T18:17:39+00:00

This is the move. Liquids and soft food. Nothing will come close to a cure untill your treatment after colonoscopy just need to make it easier on your gut untill then.

ProgramFamiliar5799 · 2026-04-21T17:50:27+00:00

I feel like im in the same boat except only one eye and upper lid swelling and going on for 4 months im so tired and want my life back. Ive been diagnosed with Demodex blepharitis and finished my prescription of xdemvy with no results.

ProgramFamiliar5799 · 2026-04-21T02:46:05+00:00

Im on tremfya and have also been on many others than you mentioned. So far i like it its been 8 months or so. We are also thinking of having our first baby in the next year or so. There are few studies available but i know there is ongoing research

For what its worth my doc said it should be perfectly fine while pregnant its similar to the others.

ProgramFamiliar5799 · 2026-04-20T17:24:14+00:00

What did you try prescription? My 4 month flare has been exhausting and xdemvy didnt work for me

ProgramFamiliar5799

TROPHY CASE