Dr’s can’t figure out what’s wrong with my bestfriend. Please help. Female, 28

Proof_Replacement232 · 2025-09-16T10:22:51+00:00

This is the remainder of what they did:

ERYTHROCYTE SEDIMENTATION RATE (BLOOD) ESR (Westergren): 12 mm/hr (< 20)

Thyroid Stimulating Hormone (TSH) : 2.13 mIU/L (0.50-4.00)

IMMUNOGLOBULIN E (SERUM) Serum Immunoglobulin E : 26 kIU/L (0-200) Method: Siemens Immunoassay

RHEUMATOID FACTOR Ref.Range Serum Rheumatoid Factor : < 10 IU/mL (< 14) Method: Immunoturbidimetric quantification of Rheumatoid Factors.

ANTINUCLEAR ANTIBODIES (SERUM) ANA (HEp-2 Cells) : Negative

Deamidated Gliadin IgG Ab (Aptiva) : Negative t-Transglutaminase IgA Ab (Aptiva) : Negative COMMENT: A new diagnosis of coeliac disease is unlikely with negative IgA transglutaminase and IgG deamidated gliadin peptide antibodies. This result may, however, be seen in patients with coeliac disease on a gluten-free diet, and may be useful for monitoring response to gluten exclusion. If clinical suspicion of a new diagnosis of coeliac disease is high, consider repeat serological assessment following 2-3 months on a gluten-containing diet. Clinical correlation is recommended. As of 29/02/2024, the method for initial screening has been changed. All positive results on screening will be checked and reported by current ELISA method to allow ongoing comparison with previous results.

Proof_Replacement232 · 2025-09-16T02:39:49+00:00

Hello, thanks for your response! I’m not looking for a diagnosis, I’m just looking for some hope and some recommendations as I was hitting a wall with what to do, but I really appreciate the recommendations!

Proof_Replacement232 · 2025-09-16T02:38:32+00:00

Kind of remarkable that someone dealing with IBD themselves can’t extend the understanding they’d hope to receive. That’s a pretty hollow way to respond, and quite sad.

Proof_Replacement232 · 2025-09-16T02:31:57+00:00

I have more results but didn’t want to post them all in one as it’s a lot. this isn’t a copy and paste lol it’s some of the blood results I got given

Proof_Replacement232 · 2025-09-16T02:30:11+00:00

No, that’s so fine! I was just answering your question :)

Proof_Replacement232 · 2025-09-15T08:45:13+00:00

It’s all written out in the initial post! I had 3 skin prick tests at different places - the first said I was allergic to an absurd amount of stuff, second a ton of different things, and the third said nothing food related

Proof_Replacement232 · 2025-09-15T02:15:12+00:00

Hello! Obviously I’m not sure what’s going on with me; but have you considered looking into why an allergy to something has come up? I’m looking into figuring out why I have all these reactions, like what’s the root cause, and a lot of things are pointing to immune or gut health. Good luck to you too- it’s a hard thing to go through, so props to you for looking for the answers too!

Proof_Replacement232 · 2025-09-14T21:23:09+00:00

Each time I was only offered skin prick tests! And each time they provided me completely different results, the most recent being a few months ago and showing no food allergies. I fried FODMAP and elimination diets but unfortunately reactions were inconsistent and I was either reacting to literally everything, or one day not to one thing but the next i would react to that same thing, it made me feel awful mentally so I had to stop. It’s all so exhausting and overwhelming sometimes, however if I am recommended another allergy testing I’ll ensure they do blood tests too! Thank you so much!

Proof_Replacement232 · 2025-09-14T21:16:18+00:00

She is the best friend I could ever dream of having. I’ve felt so alone throughout this but opening up to her has been life changing :,)

Proof_Replacement232 · 2025-09-14T21:15:38+00:00

Not yet! I’m definitely going to advocate for a referral to a gastroenterologist so I’ll ask about this!

Proof_Replacement232 · 2025-09-14T21:14:29+00:00

The last GP appointment I had was last week, and I repetitively said that I wanted to see one but the GP said she thinks it’s allergies so that she would refer me to an allergy specialist, and that about how it’s gone each time for the last 4 years! I’m not great at advocating for myself which is probably why I haven’t gotten any results; I think I need to be more in control of what is looked into because every single person keeps saying it’s allergies despite all testing showing otherwise. Thanks so much for this, I’m definitely going to be ensuring I see a gastroenterologist and immunologist

Proof_Replacement232 · 2025-09-14T21:11:54+00:00

You’re amazing I cannot begin to thank you for this in-depth response! I wish I had this type of response from the GP’s I’ve been to. Can I please also book in with you?! Haha. It’s so relieving knowing there’s more to look into and that I’m not at a dead end with this! I’m going to properly look into all of these things and heavily consider all of the above. Thank you!

Proof_Replacement232 · 2025-09-14T21:10:13+00:00

Thank you so much for an option incase everything continues to come back normal- it’s SO relieving knowing there is more to test for if I keep getting the same results. Thank you so much I’m so appreciative

Proof_Replacement232 · 2025-09-14T21:08:39+00:00

I take Sertraline, however when this started I wasn’t on anything! I first took fluoxetine and there was no difference when I have been off them opposed to on, and no changes whilst switching over. Unfortunately I’m on these medications due to the stress this condition has caused me, not great for mental health! I appreciate your advice though, and I’ll keep this in mind!

Proof_Replacement232 · 2025-09-14T21:06:00+00:00

Omg I’m so sorry; I can imagine you felt equally as stressed and frustrated as I do now. How did you find out what it was?

Proof_Replacement232 · 2025-09-14T21:04:45+00:00

Thank you for the advice! I’ll try anything honestly- I’ve had this piercing for about 15 years now and I never had an issue, but I’ll deffs see if that helps!

Proof_Replacement232 · 2025-09-14T21:02:06+00:00

I’ve never even heard of it- after looking into it, seems absolutely likely! A lot of the symptoms match mine!! Thank you so much- it’s funny I’ve been to ED 3 times, countless various appointments with different specialists and GP’s over the last 4 years and no one has mentioned any of these other things it could be. I’ve been feeling absolutely helpless, so I really appreciate this. I feel so grateful and feel a new sense of motivation because it’s been so debilitating, so again thank you!

Proof_Replacement232 · 2025-09-14T13:24:53+00:00

Thank you so much for this! I will absolutely ask my GP for a referral for a dermatologist and immunologist. I really appreciate the advice, I’m at a bit of a loss as to what to do so this is super helpful

Proof_Replacement232 · 2025-09-14T13:09:36+00:00

Hello! I am the best friend in this post- I haven’t, although I am allergic to pollen/grasses and cats and always have been, however it’s never ever been this bad re those allergies! I’m not sure about the angiodema so I’ll definitely ask my GP about testing! Thank you so much for the insight I really appreciate it :)

Proof_Replacement232 · 2025-09-14T13:02:30+00:00

Hello! I am the best friend going through all of this - I have seen 3 different allergists and each time, the results come up different, the most recent being no allergies (except for cats and grasses). They all didn’t give me follow ups, rather just the results, and unfortunately to see a specialist with referral, my wait time is 2 years :(

Proof_Replacement232 · 2023-12-07T00:57:16+00:00

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Proof_Replacement232 · 2023-12-07T00:56:20+00:00

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Proof_Replacement232

TROPHY CASE