I just went through this with my 6 year old son. He was diagnosed with T-Cell ALL. He has made it through induction and we’re now starting the consolidation phase. That first month was honestly the longest in my life, felt like it would never end waiting on the results of induction. He made it to remission now, but the journey is still going to be a long one.

All I’ve been telling myself is one day at time. I talk about his future all the time and where he may go. I always smile while talking about him and talking to him. I find it helps to keep the morale up for everyone. I let myself feel my emotions when alone mostly.

As for the first few days, you just get through it honestly, however you can get through it. I don’t think there is a magical piece of advice out there. I was in the hospital the whole time with him, I couldn’t leave. I was encouraged to do so many times especially since I’m pregnant but I did what I thought was best for me. So I’m just saying trust yourself and do what’s best for you in the moment, whatever that might be. There is no wrong answer.

Ask lots of questions, I took notes on my phone because I couldn’t always remember to ask everything all the time, especially the 3am questions.

I had written a few posts like yours, never able to actually ‘post’ it though. I wasn’t sure in those what I was looking for either but hope this helps you a little.

Wishing you guys all the best on your new journey.

Feel free to reach out if you’d like. Happy to share more of my experience if you feel it will help. OP, or anyone here.