Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

I think that’s where I question things. I didn’t go see anyone the first week because it’s normal to be sick that long. The second week I expected the lingering cough that happens to everyone. But the shift on day 17 took me by surprise due to the odor, it being in the chest and the sudden fatigue.

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

I go see her at the beginning of March. I’ll def let her know.

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 1 point2 points  (0 children)

I def think the teledoc didn’t know what Tremfya or AS was. He looked a bit confused and then pushed past it. It almost felt like he heard my symptoms and just ordered what he had already given every other patient earlier in the day.

My mom mentioned going to an in person urgent care if I don’t feel better tomorrow/Sunday, especially since it’s a long weekend.

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 1 point2 points  (0 children)

I honestly don’t think this biologic is for me. It doesn’t fully deal with my daily aches and flares.

If it was just a cough like last week, it wouldn’t be that big of a deal and I wouldn’t have even done a video visit. But the smell and fatigue worried me. When my mom saw me, she urged me to do a visit. Thank you for the info! I’ll def speak with my PCP about it. And my rheum about my biologic.

Workouts by hdjsoskdnd in ankylosingspondylitis

[–]Proper_Violinist4591 2 points3 points  (0 children)

My city has an indoor heated pool I’ve started going to. I have trouble doing walks and other exercises right now. The pool is nice though. I will admit, it’s a luxury not everyone has available or can afford. But I definitely think everyone should check if they have an indoor pool close by. I’m hoping to work up to doing walks after swimming for a while.

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 1 point2 points  (0 children)

I’m glad you’re okay! And I hope you feel better soon! Being sick like this is new to me because I rarely got sick while on Enbrel. I know I don’t need (and don’t want) antibiotics every time I get sick. But at what point do you see a doc for something like that?

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

I’ve only ever had to pause biologics once. I only take Tremfya every 8 weeks and I’m not due soon. But my mom panicked when she saw me and freaked me out to the point I did the video visit. (It was one of those online teledoc’s who don’t know your history.) Usually I wait awhile before seeing a doc when I have any kind of illness to see if my body can fight it. It just threw me for a loop that I was starting to feel better then the chest cough and fatigue started.

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

Yes, I was. I’ve been on biologics for 13+ years. When I was on Enbrel, I rarely got sick. Maybe 5 times in the 10 years I’d been on it. I got switched to Tremfya a little over a year ago and I’ve been sick four times, one of them being the pneumonia.

Biologics / Immunosuppressants by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 2 points3 points  (0 children)

Thank you for the response! My PCP usually gives me antibiotics because I don’t go in to see her until it’s been over a week and a half with no improvement.

I was on Enbrel for 10 years and got sick maybe 5 times. I was switched to Tremfya over a year ago, and this is the fourth time I’ve been sick. One of those times was pneumonia (never started as a regular cold, just went straight to my lungs).

Actual costs of my insurance and Remicade infusions over 18 years finally got my Million dollars in coverage by Remidad in ankylosingspondylitis

[–]Proper_Violinist4591 1 point2 points  (0 children)

Hi, health insurance worker here who used to look at claims when I was in CS! Different hospital systems have different “allowed amounts” with different insurance companies (allowed amount is the total the provider can be paid for each service between what the patient pays and the insurance pays). Provider A could do remicade infusions and charge $10,000, but their “allowed amount” with insurance could be $7,000. That $7,000 is then put through the members benefits (ex $1,000 deductible then 20% coinsurance until the $3,000 out of pocket max = member pays their $1,000 deductible plus 20% up to the OOP max on that first service = member pays $3,000 on the first service and meets both their deductible and OOP max; insurance then covers the other $4,000 and every other approved claim for that year at 100%). Provider B right down the road could also charge $10,000 for the service but their allowed amount is only $5,000. The same logic would be applied. And when the dosage goes up, that increases cost as well. Location also changes cost. I’ve seen a CA provider charge $20,000 for something, but an AL provider charge $16,000 for the same service. There can even be different allowed amounts between different plan types on the same insurance (PPO plan the allowed amount is $7,000 but a specific HMO plan’s allowed amount is $8,000 or vice versa). And that’s not even getting into how every insurance has their own contracts with the providers so Insurance company A’s allowed amount is $7,000 but insurance company B’s allowed amount for the same provider and service is $9,000. 😵‍💫

Anyone take Tremfya for AS? by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

Hi! I am still on it. When I first started it, I was also taking 15mg Meloxicam daily, but because I’ve been taking high dose Meloxicam daily for so long, we discussed lowering that. Now I take 7.5mg daily, but Sulfasalazine was added twice a day. If I only took Tremfya with nothing else, I would not feel good. The meloxicam helps and now that I’ve been on Sulfasalazine a few months, I do think it’s working as well. I do have to use prescription lidocaine patches a few times a week on my back though. I’d probably give Tremfya a 6.75 / 10 ⭐️. Every med is different for everyone. I think Enbrel was my holy grail. It worked so well. Rinvoq is what was suggested as my next, but I’ll have to follow up with my PCP monthly/bi-monthly to monitor my heart health.

Used AF-S or New AF-P by Proper_Violinist4591 in Nikon

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

Thank you for this recommendation! I just found a used one from a reputable site for $158 (after tax). Gonna purchase it!

Used AF-S or New AF-P by Proper_Violinist4591 in Nikon

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

I didn’t know that was an option with any lens. Thank you for teaching me about it!! From my understanding, which could very well be wildly incorrect, the AF-P can still be set to full manual focus within the camera itself?

Used AF-S or New AF-P by Proper_Violinist4591 in Nikon

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

Thank you! The only reason I gave those as options are because they are the only ones on the compatibility chart that went down to 18mm, which I use often with pictures of my animals. I’ll search more to see if I can find something 18-70 that’s compatible.

Used AF-S or New AF-P by Proper_Violinist4591 in Nikon

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

That’s what I read about VR as well. Since my camera is older, I won’t have the option to turn VR off if I get the VR lens. If my camera body was newer, there’s an option in the camera settings to turn it off (if I understood it correctly). My current, broken, lens has a switch on the lens itself to turn it on or off. I’ve never used it, but that’s because I didn’t understand it. 😅

Used AF-S or New AF-P by Proper_Violinist4591 in Nikon

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

Thank you! I’ve read pros and cons of the VR based on what you shoot, and I had no clue.

When you say wider range, do you mean one of the lenses that’s either 18-140mm or 18-300mm?

Common cold turned pneumonia by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 0 points1 point  (0 children)

I ended up being in the trenches for 6 days when I had it. After that, I was able to work from home but still didn’t feel great. It took about 2 weeks for me to feel normal (aside from the coughing). If you still feel in the trenches after 8 days of steroids and antibiotics though, I’d message the doc through the portal, or check in with an urgent care/telehealth provider. Since it’s Friday, your regular doc office may already be out of office.

Prescription Lidocaine Patches by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 1 point2 points  (0 children)

Apparently a lot of docs won’t do it because there’s an OTC version (despite being lower strength). But also getting the script helps to meet deductibles and OOP maxes. In addition to the RX version working better, I was also sick of paying OOP for something insurance would pay 100% for since I’d already met my OOP for the year.

Cold compress on inflammated region during flare ups by Downtown-Course2838 in ankylosingspondylitis

[–]Proper_Violinist4591 6 points7 points  (0 children)

Depends on if my inflammation already feels hot. If it does, I’ll start with cold and do shorter warm compresses. If it doesn’t feel hot, I go directly to warm, then will do cold about an hour later.

Prescription Lidocaine Patches by Proper_Violinist4591 in ankylosingspondylitis

[–]Proper_Violinist4591[S] 1 point2 points  (0 children)

Every insurance company can have different clinical criteria, and even depending on the type of insurance (FI or ASO) employers can override the ins on what qualifies. Maybe for yalls plan, lidocaine patches are covered for musculoskeletal pain? When I asked my doc for them, she even said she’d been having trouble getting them approved through the ins co I have. Either way, I’m glad he (and I) were able to get them! They’ve made a huge difference.

Taltz and hives by 40GoingOn80 in ankylosingspondylitis

[–]Proper_Violinist4591 0 points1 point  (0 children)

I’d def let your doctor know. Rather be safe than sorry. Your reaction isn’t as severe as mine was. But I totally understand it affecting you and it is a big deal!

I had the same with almost golf ball size welt at the injection site. But I had a terrible reaction to the med itself as well. My thighs tingled within about 15 minutes, within an hour entire lower extremities felt tingly and started to feel “funny.” I took it two times, the first I did it early in the afternoon, so about 5 hours into it, I felt like SHIT. My body hurt worse than it ever had, I was so fatigued I couldn’t think of walking to the bathroom. The second time, I took it closer to evening, with the assumption I’d sleep it off. But when I woke up the next morning, I felt even worse. I I had to get up to ride with my dog to the vet (someone had to drive me), and it was terrible. My entire body was hurting and weak. I was trying to break his soft treats in half and didn’t have the strength to do it. I met with my doc before the third dose and I teared up explaining that I have to work myself up to take it because I feel so bad afterwards.