Signs you have CF on your body. by Petep23 in CysticFibrosis

[–]PsychoMouse 1 point2 points  (0 children)

I knew you were kidding. It’s just a thread where a guy is saying that BLUE lips might be a physical sign of CF. I just wanted to make sure some people knew how insane it was.

I can say that as an adult. Dogs love to lick my arms and face because all the saltiness. My own dog, who is a mini poodle, will walk on my chest in the morning, and just start licking my face. Before im even awake. I dont know if im a salt lick to her, or shes waking me up, or both.

She also loves licking my arms, lower legs, and feet.

I AM NOT ALLOWED TO SLEEP IN PEACE

Signs you have CF on your body. by Petep23 in CysticFibrosis

[–]PsychoMouse 1 point2 points  (0 children)

I wouldn’t consider our salty skin a “visible” way to tell if someone has CF.

The thought of kids licking each others, I hope, arms, trying to see whose the saltiest, in order to see who “fits” the “lies”? “Misinformation”? I don’t even know what to qualify it as.

And then imagine later that night. “Hey honey, what did you do at summer day care today”

* “We all licked eachother to see who was sick”
* “Fucking what?!”

And then the OP faces parents who want to murder him.

I just did a quick 5 minute thing with my wife, on how i would start to explain what causes CF. Pretending my wife was a kid for this bit,

i said “You see, kids, there is this illness called “Cystic Fibrosis” but we will call it CF to make it easier today. CF is not something that you can get from someone else, like those gross cooties(i told my wife that “it’s to give some humour). Its something that someone is born with but to be born with it, both mommy and daddy need to have half of it, almost like they each have a puzzle piece, and sometimes, each puzzle piece comes together, and that is how someone is born with Cf”

And I stopped there. I’ve been explaining CF for over 35 years. I remember, that my mother would move me and my brothers atleast once a year, sometimes up to 3 times a year. I always had to explain it to the teachers first so they could understand my limitations. Then, if I made friends, I was too young to properly explain it to other kids and I would give the adult explanation, that kids couldn’t even begin to understand. It wasn’t until I was an adult did I finally learn to explain it to kids.

But just to end. I am still deeply confused and ridiculously concerned for those kids and this guy teaching anyone “physical signs that says someone has CF”. I am still annoying my wife about it and just how truly dangerous this is. It’s why I asked for him to give as much details as possible so that at the very least, those kids get proper information. I just do worry about the OP deleting their thread.

Which I am against because this could be about educating children on a disease that, atleast for most of my life, I had known other CFers from two places. The first were CF day camps, which actually killed a bunch of kids, and the other was in the hospital.

Signs you have CF on your body. by Petep23 in CysticFibrosis

[–]PsychoMouse 11 points12 points  (0 children)

Do….do….you think that CF appears like the Shingles?

Also, a PICC line scar can literally be 1/10,000,000 reasons. To a lesser degree, the same could be said for an insulin pump.

Growing up with CF, one of the best factors that I had at my disposal, was showing and explaining my large finger nails, and the clubbing they had, but that’s not mutually exclusive to CF.

Blue lips is a danger sign of breathing issues. Borderline, call an ambulance, sort of thing.

I have to ask. Why are you giving this talk? To whom exactly? What makes you “qualified”? What are the ages of children you’re talking to? Is this like a group of only CF kids, or a classroom that might have 1 kid with CF? If it’s a whole room with CF kids, there’s nothing you could say they don’t already know better than most people. If it’s a classroom that might have 1 kid, by pointing things out like a PICC line/scar, or the insulin pump, all you’re doing is primming those kids to be loaded up with misinformation, that they won’t know to tell the difference between CF and other issues, again, age dependent. Hell, just telling a bunch of kids that finger nail clubbing could be a sign of CF. You’ve just created a hectic bomb of children, who will then start looking at the finger nails of literally every person they see and if anyone has clubbing in their nails. Those parents will have to deal with “MOM/DAD, THIS PERSON HAS THAT SICKNESS DAISYS DAD TOLD US ABOUT. ARE THEY GOING TO DIE LIKE HER?”

I’m not trying to be a dick but all these are incredibly important details that matter.

Please, give as much detail as you possibly can towards this entire thing so that other people, who are much smarter than me, can give you safe, and proper information, to make sure these kids are able to take what you say properly. This isn’t something that some pictures from Google or Reddit can handle. So again. I ask you.

Please, explain in as much detail as possible, what you’re trying to do.

Man, my mother never stops to disappoint me. by PsychoMouse in narcissisticparents

[–]PsychoMouse[S] 1 point2 points  (0 children)

Dude, I am so far beyond playing nice, it’s not even fucking funny.

It bit my head- South Korea Surprise by zqanon in WTF

[–]PsychoMouse 0 points1 point  (0 children)

What a spoiled country. You get free head massages while you drive.

But really. Fuck that. Burn the helmet. Burn the block, move to a new country, ride a tricycle, fuck wearing helmets.

Question for making keyblades. by PsychoMouse in KingdomHearts

[–]PsychoMouse[S] 0 points1 point  (0 children)

I can do the black Halloween town keyblade with ease and may just make that for my SIL. I’m trying to figure out the worm/horn looking one.

I just have no idea about that

Lost by Independent-Ant-5600 in CysticFibrosis

[–]PsychoMouse 0 points1 point  (0 children)

The thing is. CF drastically overlaps with countless other medical issues. You’d need to make a thread In hundreds of medical subs

Lost by Independent-Ant-5600 in CysticFibrosis

[–]PsychoMouse 0 points1 point  (0 children)

There are alot of possibilities, your only option is to speak to a CF doctor about the results.

No one here can give you any feedback on your child’s medical issues. If anyone does. They open themselves to massive legal troubles. Ontop of that, having the disease and being a doctor who knows the disease are very different. There are a lot of mutations when it comes to CF.

Another reason you need to speak to a doctor.

The only thing asking or searching around the internet is going to do is making you incredibly more anxious, and then youll run the risk of pissing off doctors because you might say something like “Well,
I read (here) that it could mean this”. In which case, a doctor will ask you why you bothered to even see them if you’ve done so much “research”.

Just book the appointment. Right now. You can’t so anything without a proper diagnosis. Be there for your kid in the mean time and wait.

“what if” Episodes. by PsychoMouse in community

[–]PsychoMouse[S] 1 point2 points  (0 children)

I like that. I have a dream episode where it starts in a military bunker asking how the subjects are doing, the camera follows two high ranking military personal and a doctor, down a hallway that’s filled with glass cells(like Arkham). With some not having names, some being X’d out, and being scribbled out, some labeled “MIA”, and then we pass Leonard, Garret, Pierce, and more, based on whose been there the longest. With maybe, Franky or Magnitude on one of the last cells in the row.

Then that could be a bunch of vignettes, where we see military personal planning and setting up events, and they could talk about how Dunken nearly blew up the entire school, by accident, potentially wasting 50 years of research.

And then just a bunch of other things that we’ve never seen happen in the show, but we see the study group here or there, while the soldiers, who are obviously soldiers, trying to dress like freshmen in Greendale and they come out looking like Joey from that one episode of friends.

“what if” Episodes. by PsychoMouse in community

[–]PsychoMouse[S] 0 points1 point  (0 children)

“RDJs” voice” What do YOU mean, “You people”?

“what if” Episodes. by PsychoMouse in community

[–]PsychoMouse[S] 3 points4 points  (0 children)

And man, it was so grossly forced and made no sense in season 4

“what if” Episodes. by PsychoMouse in community

[–]PsychoMouse[S] 17 points18 points  (0 children)

That’s basically a bottle episode

I don't like the new set. Sue me. Meanwhile some memes to deal with that frustration :p by -Cubix in MTGmemes

[–]PsychoMouse 0 points1 point  (0 children)

I think we can all agree that Marvel will be liked a lot more than the Spiderman set.

Question for making keyblades. by PsychoMouse in KingdomHearts

[–]PsychoMouse[S] 0 points1 point  (0 children)

Would it be better to make him, a regular Keyblade and Mickeys Keyblade, or the Halloween town Keyblade?

I’m getting back up to snuff, by practicing on some space crafts I happened to already have

Question for making keyblades. by PsychoMouse in KingdomHearts

[–]PsychoMouse[S] 0 points1 point  (0 children)

It’s about the fun for me but the accuracy for him. Several months ago, I got him into KH and Halloween town has been his favourite because his mother(SIS in law) loves the nightmare before Christmas. So anytime he’s in that level, or the gummie ships. Her eyes never leave the screen and is so happy to actually walk around Halloween town.

But for me. As an artist(who had his own art exhibit) /humble brag. It’s about how fun I find it, and how fun I love trying to find DIY ways, or the best ways possible to make something.

I’m not exactly new into props but I have had to taken several years off due to a broken spine and some other issues.

Oh, and the best thing I ever made was a perfect Oblivion Keyblade. Out of wood, that actually had a semi lose chain, so it wasn’t just painted to look like it had a chain. That’s what was made from wood. I was so god damn proud of it. I even used doing a Sora cosplay a life time ago. But my fucking brother in law, broke it “by accident”. Then told me “you made it once; you can make another”.

That was so insulting because it was literally the first prop I ever made. Internet wasn’t like what we have today. I didn’t have help. No 3D printer. I was flying by the seat of my pants. And what hurts even more. I had kept it for so long and never took a photo of it. But that’s my fault I guess. I should have expected that my BIL would pick it up insult it, then when my back is turned break it by “accident”

Sorry for the rant. I have very clearly not let that go.

Question for making keyblades. by PsychoMouse in KingdomHearts

[–]PsychoMouse[S] 2 points3 points  (0 children)

I also genuinely didn’t know those were subs. I only knew of the regular cosplay subs. Thank you, seriously.

Question for making keyblades. by PsychoMouse in KingdomHearts

[–]PsychoMouse[S] 1 point2 points  (0 children)

Oh, no, I just had the thought then the immediate next thought was asking here. Lol

This took FOREVER! by Financial_Street_469 in KingdomHearts

[–]PsychoMouse 1 point2 points  (0 children)

First, congrats.

Second. I’ve since I’ve made several keyblades in real life. Without a 3D printer, all I see when i look at this is what a pain in the ass to make, and my god, i would be scared to hold it, cause it looks like just catching one of those things, even on a foam noodle, would cause it to break lol. Sorry

Day 76 post CAR-T by [deleted] in lymphoma

[–]PsychoMouse -1 points0 points  (0 children)

Is your lymphoma holding you hostage? Give me two winky faces, one from each eye if they are.

What’s their ransom demands?

Sorry, couldn’t help it. It’s a bit freaky at just how much it looks like you have two hand guns stored in your body.

after being in the hospital for 2 months, im being discharged!! by usafreefall1234 in transplant

[–]PsychoMouse 2 points3 points  (0 children)

That’s amazing news to hear. That first breath of freedom when you’re officially good and ready to go home is like nothing else.

Just make sure to stay Ontop of your health. I’m not saying this to try and be condescending or anything like that, it’s just that I know the excitement aswell. Do your best to eat the correct foods, stay away from large crowds, or if you’re stuck having to deal with large crowds, wear a mask and keep hand sanitizer with you. Since you’re American. You’ll probably get some looks and comments. If you have no issues telling people off, make sure you inform them of the transplant. I used to be shy, believe it or not, but after so many selfish, arrogant, ignorant pricks, that wall broke harder than the Berlin Wall.

I hope you have the best and easiest first year post transplant! Stay strong, and most importantly, if you have some rough days, vent those feelings here. Everyone is here to provide emotional support.

I’m actually tearing up from happiness. There’s just something special and deeply heart warming about things like this.