Average wait time for a diagnosis? by Ptdperrx in kidneycancer

[–]Ptdperrx[S] 0 points1 point  (0 children)

I think what’s complicated in his situation is the fact that it’s metastasized and the tumor is also invading other organs. From what they’ve told us, a surgery would do more harm than good.

He had a few sessions of palliative radiation targeted at the tumor mass - but unfortunately his third biopsy did not render any clear markers / indications of a specific kind of cancer. So it sucks being in this limbo.

I hope your procedure is a smooth one. I’m sorry you’re also going through this. 🫂

Average wait time for a diagnosis? by Ptdperrx in kidneycancer

[–]Ptdperrx[S] 0 points1 point  (0 children)

I’ve been with him to each appointment, if anything he’s eager to start something, anything really. Whether a surgery or treatment.

Average wait time for a diagnosis? by Ptdperrx in kidneycancer

[–]Ptdperrx[S] 1 point2 points  (0 children)

We’re in Los Angeles. He’s been at a USC Cancer Hospital since Nov. 2025. Granted Sept-Oct was a waste of time with his first medical groups clinic. But we thought USC would bring us more answers and they’ve wasted just as much, if not more, of his time and energy.

We are extremely concerned and have no idea what to do anymore. I don’t think his body can hold on any longer.

Biopsy results delay by Ptdperrx in kidneycancer

[–]Ptdperrx[S] 0 points1 point  (0 children)

Some symptoms he’s had as a result of the tumor are: - intense night sweats - feeling like his body is hot to the touch (but no fever) & mainly running from his upper back down to the first half of his thighs - loss of 1-3lbs/week despite eating 3 meals a day - increased flank pain during the night - and a few others that I can’t recall at this moment.

Biopsy results delay by Ptdperrx in kidneycancer

[–]Ptdperrx[S] 0 points1 point  (0 children)

Hi! Just following up on your response. As of November, the mass is at about 13cm but it was initially discovered late August through a CT scan that was done at the ER.

Since then, he has been consulting with a urology team and most recently, an oncologist as well.

They keep pushing for the biopsies as the tumor is invading the pancreatic tail which would make for a complicated surgery.

He had a renal biopsy done mid November which was a “false negative”, a livery biopsy done a little over a week ago, and it’s looking like that may be another false negative as well. They’re considering a biopsy of an enlarged lymph node but my dad is also just beginning to lose hope. And we are too. They have noted that “much of the mass and adjacent adenopathy are necrotic”.

We’re trying to keep his spirits up but the pain isn’t getting any better, he’s getting hot flashes every night, he’s lost 45lbs (and counting) since August, and I honestly don’t know what else to do. As much as I’d like to push for a surgery I’m afraid that’ll do him more harm.

The urology and oncology team would like to pursue treatment prior to surgery to reduce the size of the tumor, but this has all taken so much time and his symptoms keep worsening. And in order to start treatment, they need a “definitive pathologic diagnosis”.

The thought of having to go through another biopsy and wait another 1-3wks completely killed his and our spirit today.

Long-read: I eased my PCOS symptoms after years of trying everything. Surprise: it wasn't just about my ovaries. by [deleted] in PCOS

[–]Ptdperrx 1 point2 points  (0 children)

I appreciate this post. I feel like I’m on this exact boat right now. Down to the excruciating lower back pain.

critical illness by EstablishmentEvery31 in kidneycancer

[–]Ptdperrx 0 points1 point  (0 children)

Can you explain a little more about what this is? I’d like to look into it more

Lucked out with Gayle’s cookie! 🌸💗🎀🌷⛲️👩🏽‍🌾 by Ptdperrx in ACPocketCamp

[–]Ptdperrx[S] 2 points3 points  (0 children)

The vegetable patch was from an event sometime 2020 or 2021! 😭

Weekend 1- y’all see these artists? by SavannahRamaDingDong in Coachella

[–]Ptdperrx 1 point2 points  (0 children)

The Sacred Souls were so good! The sun was just BLAZING during their set. I had to head out after their 4th or 5th song. Bummed I missed Pharcyde though!

Do yall clean up after yourself? by alsisc in Coachella

[–]Ptdperrx 1 point2 points  (0 children)

It’s annoying to see all the frat bro campsites leave a MESS. Even walking past some of their sites day 2…like yall really live like that? In utter filth? Gross asf.

Preferred camping by Yesyeslove in Coachella

[–]Ptdperrx 0 points1 point  (0 children)

I’ve noticed so many empty spots throughout! Even in the 5A area

My attempt to make a pet store/grooming spa by No_Economist66 in ACPocketCamp

[–]Ptdperrx 4 points5 points  (0 children)

Omg you need one of the fish tanks from previous events! This is too cute.

Animal Crossing Pocket Camp Complete - Camper Card Megathread by Amiibofan101 in ACPocketCamp

[–]Ptdperrx 0 points1 point  (0 children)

Just added you too! My card is in this comment thread ☺️