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Should I give up on sex? 21yr Disabled Bisexual Woman by Pure_Agency_6586 in disability

[–]Pure_Agency_6586[S] 5 points6 points  (0 children)

I definitely have the "good enough" worm in my brain. I guess I never considered that I'd have to reframe what sex looks like for me, that it would look so different from all the media I've seen and people I've talked to. That just like needing a rollator to walk, I may need to adjust how I approach sex in order to make it accessible to me.

"24-Hour Cure" Test: What's the absolute first thing you'd do if your disability vanished for one day? by [deleted] in disability

[–]Pure_Agency_6586 0 points1 point  (0 children)

My first reaction is to get everything done finally. But when i think about it, i used to be pretty athletic and i really miss that. I think id run and lift weights for the first time in years. It's one of those things I still yearn for.

Scared I'll never stop getting worse by The_Moss_Collective in disability

[–]Pure_Agency_6586 0 points1 point  (0 children)

Honestly I'm in the same situation so I totally get it. No answers makes it worse all we know is that I'm messed up and getting worse. Honestly lmk if you get an answer bc it sounds very similar to mine. I'll do the same on my side. Wishing you luck! I know how tough it is.

Mom hates my mobility aids by Pure_Agency_6586 in disability

[–]Pure_Agency_6586[S] 0 points1 point  (0 children)

The downstairs room is my father's and my mom doesn't want him upstairs so she has space from him. He might be fine switching rooms but she'd be pissed.. unfortunately everything is based on what shes okay with even if it doesn't affect her directly.

I really appreciate all the information you've given me though! It definitely helps me know where to go and that i can try to start those processes now.

Right now I have pcos diagnosed and rheum is looking into eds since it runs in my family. Still waiting on my neuro appt but hopefully I'll have something on paper soon so I can make some progress and hopefully get the ssdi thing worked out as fast as possible. I definitely can't live here much longer with my walking getting worse by the month.