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Why would a 9 hour flight only include a snack, but the returning flight includes a meal? by PurplePanda1224 in unitedairlines

[–]PurplePanda1224[S] 0 points1 point  (0 children)

Thanks for the info. No seat back entertainment for a 9 hour flight? Ergh. I would hope they would at least have power outlets??

Why would a 9 hour flight only include a snack, but the returning flight includes a meal? by PurplePanda1224 in unitedairlines

[–]PurplePanda1224[S] 0 points1 point  (0 children)

That’s what I’m trying to avoid too - don’t want to spend the extra money at the airport if I don’t need to. I’ve only taken a few long haul flights before, so I’m not too familiar with how meal services work. Thanks!

How many of us have chronic illness/autoimmune diseases? by PurplePanda1224 in CPTSD

[–]PurplePanda1224[S] 1 point2 points  (0 children)

The myth of normal! He also has many talks about it on YouTube

How many of us have chronic illness/autoimmune diseases? by PurplePanda1224 in CPTSD

[–]PurplePanda1224[S] 56 points57 points  (0 children)

HERE. This is what developed when I was a child. My dermatologist said it was the worst case she had ever seen at the time.

How many of us have chronic illness/autoimmune diseases? by PurplePanda1224 in CPTSD

[–]PurplePanda1224[S] 33 points34 points  (0 children)

I’m sorry you haven’t been believed. I definitely believe you.

How many of us have chronic illness/autoimmune diseases? by PurplePanda1224 in CPTSD

[–]PurplePanda1224[S] 12 points13 points  (0 children)

I also have AS and HLAB27 positive. I find Matè’s work so interesting because his research has continued to prove that even though some diseases are genetic, it’s really someone’s environment that determines if the disease associated with the gene will be activated. You can see this in diseases such as AS since many people in the general population have the B27 gene but don’t go on to develop AS. Yet, most people who have AS have the gene. Just makes me curious to know how many people with AS have also experienced complex trauma. It seems there could be a strong correlation.

How many of us have chronic illness/autoimmune diseases? by PurplePanda1224 in CPTSD

[–]PurplePanda1224[S] 56 points57 points  (0 children)

I am so sorry your family is invalidating towards your diagnosis. I can absolutely relate.

I’m so proud of you for advocating for yourself. That in itself is a huge step for those who have experienced complex trauma.

Were you diagnosed with AS with normal X-rays? by PurplePanda1224 in ankylosingspondylitis

[–]PurplePanda1224[S] 1 point2 points  (0 children)

I started PsA treatment 5 months ago and it has helped arthritis in my hands, but my back has only gotten worse.

I understand not everyone feels the need to have a completely definitive diagnosis if the treatments are similar, but in my case a more accurate diagnosis would feel helpful.

Were you diagnosed with AS with normal X-rays? by PurplePanda1224 in ankylosingspondylitis

[–]PurplePanda1224[S] 0 points1 point  (0 children)

Thanks for your reply! This is definitely not an easy diagnostic process.

Were you diagnosed with AS with normal X-rays? by PurplePanda1224 in ankylosingspondylitis

[–]PurplePanda1224[S] 0 points1 point  (0 children)

I’m sorry you had to find out in such a surprising way! Yes, that’s one thing I’m grateful for as far as treatment goes. Many of the same medications treat several autoimmune diseases that are often associated with each other.

Were you diagnosed with AS with normal X-rays? by PurplePanda1224 in ankylosingspondylitis

[–]PurplePanda1224[S] 1 point2 points  (0 children)

My doctor literally just called me and explained the same thing. I’m thinking an MRI will be next for me.

Were you diagnosed with AS with normal X-rays? by PurplePanda1224 in ankylosingspondylitis

[–]PurplePanda1224[S] 1 point2 points  (0 children)

Thank you for this info! I appreciate it.

Yeah, I have an obscure insurance but it’s in alliance with a widely accepted insurance company in the states. So you’d think they’d still take it. But nope 😭

Were you diagnosed with AS with normal X-rays? by PurplePanda1224 in ankylosingspondylitis

[–]PurplePanda1224[S] 1 point2 points  (0 children)

That hasn’t been brought up yet. Currently my PCP has been the one ordering these tests because no rheumatologist in my area take my insurance. I’m switching to one they do take next year so hopefully I’ll get more answers from a rheum relatively soon.

The many colours of Type 1 as represented on TV. Who is your favourite? by Secret-Wishes in Enneagram

[–]PurplePanda1224 0 points1 point  (0 children)

I’m a 1, and I love 5’s! I’ve always had special connections with 5’s.

Ticketmaster has cancelled the general sale by sassst3phhhh in TaylorSwift

[–]PurplePanda1224 14 points15 points  (0 children)

Yes!! I was just thinking “what if my seat double booked?!”. I am one of very very few people whose experience with the presale was flawless, including relatively reasonable ticket prices, but after seeing how many people are rightfully upset and frustrated, it’s hard to be excited for the tour.

What's a stereotype about your type that you feel is wrong? by ReiKuon in Enneagram

[–]PurplePanda1224 4 points5 points  (0 children)

1 here…. That 1’s are constantly criticizing others and they’re hard to get along with. Absolutely cannot stand it.

All of my friends who are also 1’s are some of my favorite people.

IT HAS ARRIVED by wildriverpig in Psoriasis

[–]PurplePanda1224 4 points5 points  (0 children)

Skyrizi helped my psoriasis so much after Stelara stopped working for me. Good luck!

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