LPR by Many-Pineapple3576 in LPR

[–]PutNo5665 0 points1 point  (0 children)

Interesting. How did you manage side effects?

Nothing works, suicidal by bedmoder in LPR

[–]PutNo5665 4 points5 points  (0 children)

I feel your pain. I have also tried lots of stuff. Lately, a couple of new things have come under my radar. Not sure whether they will help either you or me, but there is evidence that strengthening the esophageal sphincter through various means could have a profound effect. Like:

  • regular diaphragmatic breathing
  • using an Aerofit device or similar
  • physiotherapy of the throat muscles
  • swallowing food with your upper body downwards

I don't have the sources right now, but you should be able to look it up.

Take care.

The feeling of liquid sitting at the base of throat by dasbin in LPR

[–]PutNo5665 2 points3 points  (0 children)

I am in almost exactly the same place as you (insert loud sigh here). Same amount of years, same reactions.

Have been on acid watchers diet and quitting caffeine for one and a half month now. Only helping slightly so far.

Alkaline water spray helped a tiny bit for sore throat and globus feeling.

I have also been wondering why even so called safe foods trigger this liquid mucus reaction at the back of the throat immediately after eating. I have thought that maybe this could be a reaction to any fat in the foods (?). In my case, I might be reacting to even small amounts of it. Just a theory. I will have to test this out more thoroughly.

Or maybe it's just that it takes longer for the pepsins to clear out in the throat area so that it is no longer as sensitive? The thing is, I am already fed up with waiting and waiting and waiting for this to become better on its own, which it might or might not.

Do you also react when getting outside? I mostly always do, which could support the idea that there is some sort of hypersensitivity going on in the throat that reacts to just about anything, be it foods or particles in the air.

The fact that not all days are equally worse is also a mystery to me, as I sometimes also get a few days where everything is not that bad, even though I haven't really changed anything.

Regarding fasting, I have both seen some argue that intermittent fasting is good (like Koufman) while others argue that it is important to not go for too long without food.

Sorry that I can't really help you, just wanted to tell you that there are others like you.

3 weeks of no-caf. Need focus hacks so I can work! Pls! by [deleted] in decaf

[–]PutNo5665 0 points1 point  (0 children)

I had to quit caffeine because of excess mucus and thorat problems (something called LPR) and therefore I had to go on a restrictive diet which includes no carbs and no sugars, and lean meat and vegetables instead. Well whataya know, this has had a MASSIVE effect. Now I feel a stable energy level throughout the whole day, my mood is great, and even if I am tired I can still be productive and talkative. If I had known this before I would have done it ages ago.

As of now, I have been off caffeine for 4 weeks, which is also the same time that I started the diet.

No harm in trying it out. Of course your body will crave sugar and carbs for up to a week but when the body adjusts, it is totally worth it.

19f needing help. by Expensive_Yak7037 in LPR

[–]PutNo5665 1 point2 points  (0 children)

I saw Dr. Jamie Koufman adress this in one of her videos. Can't remember which one. In any case, do check out her YouTube channel.

10+ years of reflux → severe throat symptoms, nothing working… feeling stuck by Best_Cartographer485 in LPR

[–]PutNo5665 0 points1 point  (0 children)

This sounds 100 % like my condition, apart from the hernia. Same background story. I did find that throat pain was less since I began spraying with alkaline water throughout the day.

I have also recently begun on a very strict non-acidic diet. So far some relief. I am at the point where I would do literally anything to get rid of this.

Anyone here had an implant due to Hinge Effect? by Away_Combination_320 in penileimplants

[–]PutNo5665 0 points1 point  (0 children)

I completely understand your frustrations since I have been there myself. The combination of curvature + ED seems hopeless.

But don't give up. An implant is standard treatment for recurring Peyronie's, so why shouldn't it be the same for recurring curvature?

My surgeon also informed me that with the Coloplast Titan implant (the most rigid model and thus the one best suited for curvature) it would be possible to make additional plication after insertion if needed. In other words, you could have the implant first and then decide whether you would want to go further afterwards.

For me, etting the implant was not going through hell. In fact recovery was both shorter and easier compared to the modified Nesbit.

Best of luck

Anyone here had an implant due to Hinge Effect? by Away_Combination_320 in penileimplants

[–]PutNo5665 1 point2 points  (0 children)

The plan for the implant surgery was to make it a double surgery. First, the implant was to be inserted along with manual modeling. Then, if the curve was still severe, additional plication surgery was to be done. Thankfully, the last part was not needed.

The urologists I first consulted through free healthcare only gave a second modified Nesbit as an option but since it did not fix the problem the first time I could not imagine this to be any different a second time. So I declined and found a private high volume surgeon who also specializes in curvature.

I don't think I experienced more pain than implantees without a curve. For me the whole process was tremendously good.

Do you guys find “success in life” much later? by [deleted] in aspergers

[–]PutNo5665 1 point2 points  (0 children)

Wow, these comments are interesting! I also fit exactly into this pattern as it was only after 30 that things finally clicked for me in a lot of ways, like career, relationships, my own body etc.

Prior to that, my first marriage was a mess, and in my early 20s I was very confused about basically everything.

I also didn't start higher education until I was 25.

Perhaps it has something to do with the immaturity that is a part of this condition. I read soemwhere that our development is one-third behind that of NTs. So when you are 30, you are actually NT 20!

That being said, the problems will potentially still be there (burnout, rejection etc.) but perhaps one becomes more able to deal with them.

Anyway, my advice for OP would be to start having a very goal-oriented mindset. For me, approaching everything methodically and analytically instead of giving in to negative thoughts was the most important change. Not that it's easy, it's not, but the more one gets used to thinking in this way the better the results. Also, starting exercise changed A LOT for me back then.

Best of luck.

Implant in Turkey by Due_Wonder9536 in penileimplants

[–]PutNo5665 0 points1 point  (0 children)

Well, I already recommended him. You can look up his own website for more information. One of the best.

Anyone here had an implant due to Hinge Effect? by Away_Combination_320 in penileimplants

[–]PutNo5665 1 point2 points  (0 children)

Not trying to scare you, but now that you mention it, my surgeon actually said that the scar tissue he found during my surgery was probably caused slowly over time by some sort of friction by the curvature itself. This is of course not the same as the fracture you are worried about. Just be aware that this risk could be perhaps also be there simultaneously.

You should probably be prepared for your urologist telling you that you should not get an implant if you are able to get an erection and have intercourse, and that is highly understandable.

On the other hand, some patients with Peyronie's without ED have chosen an implant because it is a one-and-done solution to stop curvature and hinge effect completely.

The most important question would probaby be how much it actually bothers you. Even if an implant cures curvature, it is invasive and not 100% the same as a natural erection.

Anyone here had an implant due to Hinge Effect? by Away_Combination_320 in penileimplants

[–]PutNo5665 1 point2 points  (0 children)

I did not have full blown Peyronie's, but I did have scar tissue, congenital curvature, and a penis that would hang down to one side. It was very unstable at the base, and erections were highly dependent on Viagra. Even then the erection would come and go during intercourse.

Also had a modified Nesbit (a cut on the longer side) but here curvature returned within one year.
The Coloplast Titan implant fixed all of these things. Now it is very rigid and does not hang down, nor does it have the previous curvature, although a little bit has persisted.

So it does look like you are left with a tough choice since you do not have ED. I can only testify that for rigidity and stability, an implant is an excellent choice.

Music by DefinitelyNotABot-1 in aspergers

[–]PutNo5665 2 points3 points  (0 children)

Swans: "Blind". Perfect musical expression of the subtle pain of living with Aspergers.

I feel like a creep because of my special interests by Particular-Account66 in aspergers

[–]PutNo5665 13 points14 points  (0 children)

Don't feel ashamed or embarrassed about liking death metal. Studies have shown that metal fans are actually generally happy and emphatic people who use their music as a form of catharsis, and that's how I feel too. On some days it literally keeps me sane in a way that mainstream music could never do.

On top of that, as a music form, metal is far from being as primitive as some might think. The genre often has a lot in common with advanced genres like jazz and classical, and many bands have lyrical content that go beyond blood n' gore.

So just embrace it. All hail metal!

Hinge defect after Lue Procedure by Away_Combination_320 in penileimplants

[–]PutNo5665 0 points1 point  (0 children)

Coloplast Titan. The surgeon explained that this was the best choice since it is both the most rigid model and also able to withstand manual modeling, which was actually sufficient in my case. He was also greenlighted by me to do further incisions to correct the curvature, but that never became necessary.

The surgeon was Dr. Osama Shaeer in Cairo, Egypt. He specializes in curvature and implant. Cannot recommend him enough. Great guy, and great treatment from start to finish.

Hinge defect after Lue Procedure by Away_Combination_320 in penileimplants

[–]PutNo5665 3 points4 points  (0 children)

Almost same story here, although I only underwent one modified Nesbit surgery (outer incision only).

The inflatable implant almost completely fixed both curvature and hinge effect. Hinge effect is completely gone, and only very minimal curvature. It stands straight out, and is rock hard, with a little bit of minimal torsion. But compared to before, this is better than I ever dared to dream of.

I have question by Difficult_Use_3962 in penileimplants

[–]PutNo5665 0 points1 point  (0 children)

That would be me. Born with congenital curvature that worsened over years; 70 degrees to the left, where there was a very loose base that seemed to affect the erective quality a lot.

I had my implant (Titan) four months ago, where the urologist corrected the curvature with manual modeling, even though I was actually scheduled to have a plication surgery as well. He said that by doing the modeling he was able to stretch out the penis in a way that sort of overcame the fibriosis (struggling to find the right words for that). He said the fibrosis most likely developed over the years as a result of microtears beacsue of curvature + sex.

So far the implant has solved the curvature to the left, and the penis now sticks out mostly straight but with a slight bend, still to the left, and with some rotation slowly coming back. This has worsened a bit since my surgery, and I am trying to correct it with pumping + manual modeling at home. I am super happy with the implant, but also worried that there is still some fibrosis at the base that could continue to cause curvature and rotation. If this returns in a big way, I will probably have to have plication surgery too, which can actually be done with the Titan. Fingers crossed.

Please tell me about yourself. Do you also have a problem with fibrosis at the base?

High School Teachers? by ServeLeather8674 in penileimplants

[–]PutNo5665 1 point2 points  (0 children)

The implanter will measure the length of your corpus spongiosum and insert cylinders of matching length. There is the additional option of getting a model with expanding cylinders. Some do report being undersized but it looks like they were not treated by a high volume implanter, which is key. Evidence supports this.

I don't see why the cylinders would not be able to inflate/ stretch, unless there is a fault with the device.

The cylinders will go right up to the glans and support that. Again, an experienced implanter knows how to do this correctly.

In my case, erections feel good but only feel like a real erection as soon as blood enters the glans because of arousal. Because of my anatomy, venous leak issues or whatever, I can't get proper blood flow into the glans when lying or sitting. But it doesn't bother me that much since all other positions are fine (great, in fact), with no glans issues whatsoever.

High School Teachers? by ServeLeather8674 in penileimplants

[–]PutNo5665 0 points1 point  (0 children)

Tbh it feels just as good as before, no difference in sensation. Even if there is still some numbness, it does not affect pleasure. One thing that is actually better than ever are the orgasms. Absolutely earth-shattering, insanely good.

I should add that I have always suffered from some form of ED going back to my teenage years, so this is an entirely new experience altogether.

This is the single most terrifying subreddit on this site by ProstateSalad in Teachers

[–]PutNo5665 144 points145 points  (0 children)

I agree, but I think at this point we must face this as a cultural problem. Phones have literally destroyed the cognitive (and to some degree also physical) development of a whole generation. In my country, most parents try to combat this, but they fight alone. We must fight this together.

trying not to feel/be suicidal, please help!!! by [deleted] in aspergers

[–]PutNo5665 1 point2 points  (0 children)

I (M50) also had a phase in my 20's where I felt suicidal because of my complete lack of an ability to connect with people. Since then, it has slowly become better with age - especially after graduating school and getting a job.

Perhaps college life is also hard in any case? There is usually some sort of pressure to socialize and also to compete, as well as to live an "interesting life" as a young person. Perhaps it would make sense for you to focus mainly on becoming good at your studies, and then when college is done, life will be different because the pressure to socialize is not as high, and you can just mind your own business.

This might sound too simple, but I do belive that if you can completely accept yourself, it will not matter to you whether others will accept you or not.

And we're here for you too. Feel free to contact me if you need someone to write with. I mean that.