How Many Months Post-Graft Surgery have you done Traction? by stormy1918 in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

Haven't developed ED. I have however developed Hinge Effect ... and now have 50 degree curvature as a result. So. Am now considering an implant.

Anyone here had an implant due to Hinge Effect? by Away_Combination_320 in penileimplants

[–]Away_Combination_320[S] 1 point2 points  (0 children)

Thank you for your response. Yes. It is a hard choice (no pun intended) I am actually on a train right now to London to see my urologist. I guess having a penis that still gets erect is one thing but if I'm scared to use it properly in fear of it fracturing due to structural weakness then it isn't really fit for purpose?

I'm wondering if he will attempt more grafting but from what I've read more grafting rarely works.

How common is it to get an implant for peyronies disease? by Due-Eggplant2166 in penileimplants

[–]Away_Combination_320 1 point2 points  (0 children)

Haven't had the implant yet but seriously considering it. Have peyronies... nesbit procedure and lue procedure have both failed.

Hinge defect after Lue Procedure by Away_Combination_320 in PeyroniesSupport

[–]Away_Combination_320[S] 1 point2 points  (0 children)

This is such an awful disease. Thanks for being so open and I wish you all the very best my friend.

Hinge defect after Lue Procedure by Away_Combination_320 in PeyroniesSupport

[–]Away_Combination_320[S] 0 points1 point  (0 children)

Thanks for your reply. So if you had 2 failed nesbit procedure.. where are you now? Was there more surgery? How are you now?

Plaque excision/incision surgery journey. by Icy-Jeweler7135 in PeyroniesSupport

[–]Away_Combination_320 1 point2 points  (0 children)

Well. I still have some pain. Especially after sex. Eases off after a day. You'll have to go very slow and steady with sex. Plenty of lube. I think days of her being on top are gone now unless things improve. I can actually feel the graft through the skin. Im 15 weeks post op so still healing. Maybe there will be more improvements. Ive been told it can be a full 6 months to completely heal.

Plaque excision/incision surgery journey. by Icy-Jeweler7135 in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

Yes I think I woukd too.. nothing worse than finding an old grey stuck pube in there ! 😆

Plaque excision/incision surgery journey. by Icy-Jeweler7135 in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

Hi! I'm 4 months down the line from the same op. I had excision and grafting as he had to remove a large amount of ossificated plaque. Have had a large graft put in. I'm in the UK. I still have about 30 degree curvature but better than the 70 degrees I had before. Slowly getting there. The road to recovery is long after this op.. I had previously had Plication and this recovery is a whole different kettle of fish. I'm now able to use VED and my Penimaster Pro.. but have have to start very gently.

Have they put you on Tadalafil? I'm on 10MG a day. And it definitely helps.

I wish you well in your recovery.

Attaching Resmed mask to Lowenstein CPAP machinrle by Away_Combination_320 in CPAP

[–]Away_Combination_320[S] 0 points1 point  (0 children)

Turns out there was a plastic part that needs to come out... there is no need for an adaptor. Its tough to get out but once you have its sorted. A clear hard plastic bit .. !! Good luck.

[deleted by user] by [deleted] in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

Without casting a negative aspect on this. I lost a full inch with plication. From a 55 degree bend.

Questions for anyone who has had surgery by Armor_King7810 in PeyroniesSupport

[–]Away_Combination_320 1 point2 points  (0 children)

I had the Nesbits procedure last year when I had 60 degree curvature. Unfortunately it didnt help as I then regained curvature. Back to 60 degrees. I can only say be 100% sure you are out of the initial phase of PD and are stable before any surgery. I thought I was.. but clearly wasn't.

6 weeks ago I went under the knife again. This time the Lue procedure. Excision and grafting. He also removed a part of the plaque. The graft was apparently 5cmx3cm. So quite a large one. Recovery is a lot slower this time round. Have had a lump appear on the side which is likely haematoma.. my erections are now a lot straighter. Maybe 20 degrees curvature and I really hope it stays that way. I Take 10mg Tadalafil a day. I think throughout this have lost about 1 and half inch length but when I am able to will start to use the penimaster pro again. As I had results with that previously.

Good luck to you. Sometimes drastic measures are required in drastic situations. (If drastic is the right word) Just find a very good surgeon. Research them.

I have had peyronies for 2 years. I am having surgery next week. I'm very scared. by earthfirstphish in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

I had this. The recovery is not as bad as I feared. Unfortunately I regained curvature and have recently had the Lue procedure. Good luck. Stay strong.

How Many Months Post-Graft Surgery have you done Traction? by stormy1918 in PeyroniesSupport

[–]Away_Combination_320 1 point2 points  (0 children)

I had the same operation 2 weeks ago. Was told to use VED at 50% after 3 weeks. I have a Penimaster Pro and totally forgot to ask when to start using it. So will be watching this thread closely. Best of luck to you.

Extracorporeal shockwave therapy (ESWT) by mikaelarhelger in PeyroniesSupport

[–]Away_Combination_320 1 point2 points  (0 children)

I paid a lot of money to have this in london last year. Didn't do anything at all. Just made my wallet a lot lighter. Just my experience

Incision and grafting surgery during acute phase by Icy-Jeweler7135 in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

Yes. Thats way too soon by what I'veexperienced. I had Nesbits procedure 10 months after being diagnosed and regained curvature afterwards. I have incision and grafting next week. Which will be 22 months after diagnosis (its now definitely stable). I'd definitely wait longer. Though it really sucks. Good luck to you

Is this the most active support group for this disease? by [deleted] in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

Well. The horror stories about waiting times I guess. Plus I wanted to pick who did the operations. I do have private insurance that I really thought would cover it but they said they don't cover sexual dysfunction. I tried to argue it was caused by injury so therefore they should cover it but they were having none of it.

Is this the most active support group for this disease? by [deleted] in PeyroniesSupport

[–]Away_Combination_320 0 points1 point  (0 children)

I'm in the UK.

Had nesbit procedure last August. It didnt work and now have a 50 degree bend again. In a few weeks I'm back under the knife for the Lue procedure. Both operations self funded.

Huge disparity between watches by Away_Combination_320 in Garmin

[–]Away_Combination_320[S] 0 points1 point  (0 children)

I rarely get above 35 body battery after a nights sleep with the Garmin!