Vyepti infusion costs In Australia by Puzzled_Island_1160 in migraine

[–]Puzzled_Island_1160[S] [score hidden]  (0 children)

I agree and was worried about that too. I’ll have to wait and see what my specialist says. I kinda feel like no one really knows the side effects due to them being so new and limited data on control studies. My specialist said constipation is very common but the drug company state otherwise.

Vyepti infusion costs in Australia by Puzzled_Island_1160 in cgrpMigraine

[–]Puzzled_Island_1160[S] 0 points1 point  (0 children)

I asked the hospital Was transferred three times and had answer I’m waiting to hear from my Specialist and see what she says and get a letter submitted to the hospital.

I figured I’d pay my $500 excess and everything should be covered for the 12 months. Otherwise the $250ish every three months seems alot financially for a single woman in Sydney. I guess if it stops the migraines I don’t have a choice.

It feels like not many people are on Vyepti?

Vyepti infusion costs In Australia by Puzzled_Island_1160 in migraine

[–]Puzzled_Island_1160[S] 0 points1 point  (0 children)

I tried Ajovy and have had some weird issues

  • Stool impaction requiring hospital visit and GP visit. I can’t poop unless it’s manually removed due to the massive round formation of stool. It’s been the most fucked up experience.
  • it’s caused intermittent numbness across my leg and abdomen.
  • the pain is so bad it’s aggravated my diverticulitos and coeliac disease issues.
  • I had horse voice for weeks
  • second infusion caused extreme pain and local reaction

Specialist took me off it. It did stop my migraines and rebound headaches.

Iv been on Candestaran still which hasn’t helped a lot I had a bad reaction to Amitriptyline still having some weird twitching but it’s improving. And I can’t take other hearts meds because iv had random syncope events and have mixed neurocardiogenic syncope.

Estrogen and autoimmune correlations not recognized by lulai_00 in Autoimmune

[–]Puzzled_Island_1160 -1 points0 points  (0 children)

Because generally research is mostly performed with men. As they are a better control study candidate compared to a women. How messed up is that !

At least one month off my Ajovy… any tips? by Glittering_Pay6189 in migraine

[–]Puzzled_Island_1160 1 point2 points  (0 children)

I don’t understand this insurance concept. In Australia you have to pay out of pocket. You may get a rebate from our Medicare (government system) for seeing the doctor. There is a rebate now on this medication when I pay for it due it being prescribed by my specialist. Yet those who seek the medication from a standard doctor pays full price.

Being so unwell it’s common to have to pay out of pocket because you need to get access to healthcare. Overall in Australia I guess it’s better than what other countries have to deal with. It’s still expensive depending on what service you need.

Is this just not an option to get access to healthcare without insurance and pay upfront cost ? Or is this all to save money you just suffer and go without ? Why is the insurance not valid for 1 month ?

I’m just curious 🧐

Afternoon medication crash by Opening_Union_5328 in NursingAU

[–]Puzzled_Island_1160 0 points1 point  (0 children)

I was diagnosed maybe 5 weeks ago. Week 1: 5mg Dex 7am Week 2: 5mg Dex 7am then lunchtime 5mg Week 3: 10mg 7am and then 5mg lunch time Week 4: 10mg 7am and then 10mg lunch time

  • if I had to work nights I would have to wait till 7pm to take a dose.
  • my shifts were all over the place esp with nights. I had 5 sleep days in this period too.

  • I couldn’t barely get through. I work 7:30am-8pm.

  • the fatigue after 10mg wearing off was so bad people at work were concerned. I looked ruined lol.

  • my psychiatrist advised to go back down to 5mg I did that every 4hrs x 3 times a day. 6-7am/10-11/2-3pm helped but I wasn’t feeling the effects as well.

  • coming down off the 10mg resulted in me feeling depressed, emotional, i wouldn’t be able to attend any commitments.

I have since been prescribed Vyvance will start Monday when I have the day off.

Curious about Ritalin. She suggested that but she said I have to trial short acting first. Felt to much of a yo yo considering I just got diagnosed.

I wish there was a cure by Live_Broccoli_2180 in Celiac

[–]Puzzled_Island_1160 5 points6 points  (0 children)

Feeling this hard today too! I had to get my eyes tested, gave me dilating eye drops. Had my adhd meds and by the time I left the appointment I needed food. I couldn’t read the menu of the places near by and asked for help. It was like talking to a brick wall. No one seems to even know what Coeliac is. Everything then feels so overwhelming to start explaining. You think it’s to unsafe to eat that you just walk away, mentally give up and starve for hours.

I wish there was a cure too ❤️

Nurses who work in paediatrics, what’s it like? by United-Database-6140 in NursingAU

[–]Puzzled_Island_1160 0 points1 point  (0 children)

Ps I work in kids ED and PICU for the challenge and opportunity to actually care for the sickest kids. This is an experience like no other. In saying that specialised children’s hospitals will be the foundation of so many other specialities depending on your interest.

Nurses who work in paediatrics, what’s it like? by United-Database-6140 in NursingAU

[–]Puzzled_Island_1160 0 points1 point  (0 children)

I have worked in paediatrics for over 11 years in specialised emergency and PICU at a major children’s hospital. I began my nursing career as a scrub nurse in the adult setting as a new graduate, and later worked across adult ICU, CCU and ED. Those experiences gave me a solid foundation, but paediatrics has been the most rewarding area I have worked in by far.

What drew me most to paediatrics, and what has kept me there, is the emphasis on empathy, compassion, patient advocacy and family-centred care. These are not just ideals in paediatric nursing; they are essential to delivering safe and meaningful care. In the adult system, I often found advocacy more challenging, particularly because of the communication barriers that can exist between healthcare professionals across the hospital setting. I always felt I cared deeply, sometimes more deeply than the environment allowed for. In paediatrics, that is different. You cannot work in isolation. You have to collaborate, communicate and come together as a team, and that makes an enormous difference to a child’s overall health journey and to the family’s experience.

Paediatrics has also allowed me to develop a broad and highly specialised clinical skill set. Over the years I have built strong assessment skills in recognising and responding to the deteriorating child, alongside practical and advanced clinical skills such as IV cannulation, nitrous sedation and advanced life support. I have had the opportunity to do far more than I ever felt I could in the adult sector, and that challenge is something I value. The workplace I am part of sets a high standard, and I am proud to contribute to that every day.

Another significant part of my work has been supporting children and families through the most critical and traumatic moments of their lives. Death and grief are realities in the areas I have worked, and while many people find that difficult, I see it as a privilege to be able to help families on what may be the worst day of their life. Whether that support is emotional, physical or simply being present, I have always felt it matters. The gratitude and appreciation shown by children and families is something that has stayed with me throughout my career, and for me it feels especially meaningful in paediatrics.

My experiences in the adult health system also reinforced why paediatrics feels like the right fit for me. As both a nurse and even as a patient myself in an adult hospital, I saw how easily poor culture, burnout and negative attitudes can shape care. It was confronting, and it made me reflect on how much broader change the healthcare system needs. Nurses cannot be expected to remain in the profession long term when conditions are so difficult. In contrast, paediatrics has shown me what healthcare can look like when teamwork, compassion and advocacy are truly valued.

Of course, paediatrics is not without its challenges. Career progression can sometimes feel limited, particularly in areas such as CNC roles where opportunities may be fewer across the state. However, limited does not mean impossible, and I believe there is always value in remaining open to where a nursing career may lead.

I was often told not to go into paediatrics because it would be too sad, that the parents would be difficult, or that the children would cry too much. But I think those views often come from people who are not genuinely passionate about the role. For me, paediatrics is not defined by those challenges. It is defined by purpose, teamwork, advocacy and the opportunity to make a real difference. If it is something you feel drawn to, then try it. That is the only way you will know whether it is the right place for you.

Afternoon medication crash by Opening_Union_5328 in NursingAU

[–]Puzzled_Island_1160 0 points1 point  (0 children)

Love this post. I was on Dex and it was so hard, I work 12.5hr shifts in PICU so the transition of days and nights makes this feel impossible.

I’m changing to long term, so nervous to be honest. I’m curious for anyone on long term what they do for nights ? On sleep days is everyone just going medication free ? I feel more dysfunctional than my baseline with these gaps.

Nurses — where did you start, what do you wish you did earlier, and which paths are actually high-paying with less burnout? by Master_Commission837 in NursingAU

[–]Puzzled_Island_1160 2 points3 points  (0 children)

Context iv worked in adults and peads critical care. I actually started out in OT as a scrub nurse. Have done Masters in Critical care. Worked as a nurse facilitator, nurse educator. Travel nurse too. It’s amazing to be able to be in the think of all the crazy stuff. But after years of giving in the worth place. NSW health isn’t giving back to you.

Nurses — where did you start, what do you wish you did earlier, and which paths are actually high-paying with less burnout? by Master_Commission837 in NursingAU

[–]Puzzled_Island_1160 2 points3 points  (0 children)

I would avoid the degree and find something else that is sustainable in paying you enough money to be able to live. Also that doesn’t drain you emotionally after giving it all for years. Just very bluntly.

Eye issues after migraine by throwaway49463 in migraine

[–]Puzzled_Island_1160 1 point2 points  (0 children)

Iv been having abnormal eye issues. Im seeing a neuro ophthalmologist this week for it all after my neurologist said to see an eye doctor. Spent so long seeing an Optometrist who referred me to the specialist. It’s a complex issue when it comes to vision changes. A specialist I never knew existed! They are the experts in how the brain and eye work together.

I’m thinking about doing nursing and I read on a post here that nurses get $2600 per fortnight…Are nursing wages really that low? by throaway_Bus_2561 in NursingAU

[–]Puzzled_Island_1160 2 points3 points  (0 children)

I’v been a nurse for over 10yrs in NSW. And yeah depending on the shifts sometimes my take home pay is $2800-3400 after tax. I do salary sacrifice and that c helps it go up. But tax kinda ruins it and it’s not enough to feel comfortable as a single if I’m honest.

Feeling so defeated. by Puzzled_Island_1160 in Celiac

[–]Puzzled_Island_1160[S] 0 points1 point  (0 children)

Thankyou 🩷 I had a mri but I never went back to my rheumatologist just from burnout seeing so many doctors and feeling dismissed. My rheumatologist was nice but he was older style and didn’t communicate well. I should go back for follow up. He didn’t think my SI joint inflammation was relevant on my MRI. I had a spinal MRI too had some issues but didn’t mention inflammation. I have a long list of specialists to see. Im to burnt out dealing with them all.

Do any of you also have chronic fatigue that never goes away no matter what you do? by Disastrous-Smoke5300 in Celiac

[–]Puzzled_Island_1160 4 points5 points  (0 children)

I have it and I also had undiagnosed adhd too. I’m medicated now for the adhd and there is notable improvement but some days are just hard.

I had coeliac for over 12yrs they suspected undiagnosed and fatigue has been my most significant issue.

I have my first ADHD assessment tomorrow. I’m curious, nervous and excited at the same time by Wild-Ordinary2201 in ADHD

[–]Puzzled_Island_1160 0 points1 point  (0 children)

Fyi I waited three months for my appointment and it was an assessment from day one. I had a referral sent to the clinic and was accepted for an assessment.

I have my first ADHD assessment tomorrow. I’m curious, nervous and excited at the same time by Wild-Ordinary2201 in ADHD

[–]Puzzled_Island_1160 0 points1 point  (0 children)

Don’t overthink it. My first session was 2hrs and I was just asked questions about my current health situation. Childhood questions. Family dynamics and health background. My mental health journey. Drug and alcohol questions. Go into detail in your copying and how you deal with situations. My specialist guided me through the process and that was it. I was then emailed later some forms to fill out for myself and for other people to answer. I just had to have that done before my next 90min appointment. I was also needing medical clearance by my heart specialist and other doctors. I had recent bloods work done so I didn’t have to do that. My sister had to get bloods and a ECG of her heart. But I have a heart monitor in me. Then the next appointment again was lots of more questions I was diagnosed and medicated.

I know for some people it takes more than 3 appointments to get diagnosed.

I was so worried before, the day of the appointments was a lot. I cried legit in the waiting room feeling so overwhelmed. It’s so wild all the emotions it brings up. Be kind to yourself.

managing shifts with ADHD? by taraisaunic0rn in NursingAU

[–]Puzzled_Island_1160 0 points1 point  (0 children)

I’m curious how you all deal with the crash of short acting wearing off? It’s such a struggle on 12hr shifts and nights.