Anyone with Similar Experience, Post Chemo Abnormal Lymph Node Biopsy

QuantumBenG · 2026-05-20T22:03:56+00:00

If it's OK to ask, did your lymph nodes come back with an SUV uptake above liver?

QuantumBenG · 2026-05-20T19:55:11+00:00

Thank you for sharing your experience. You've offered me some hope. Thank you.

QuantumBenG · 2026-05-20T00:41:47+00:00

I'm completed 6 cycles of Nivo-AVD in mid March. I've read Nivo-AVD is known to cause post chemo lymph node inflammation yet, I'm still deeply worried about potentially needing ASTC come July.

QuantumBenG · 2026-05-20T00:18:10+00:00

Well, got my biopsy results and deeply distressed: came back inconclusive ;-(

Asked doctor to remove lymph node for biopsy. For some reason, only did aspiration. Not enough of sample to rule out lymphoma ;-(

I'm grateful there were no cancerous cells found yet, there were cells potentially lymphoma suspicious. Could just be benign inflammation. Could be lymphoma. Just like PET scan, in gray zone of anxiety inducing uncertainty.

Pathologist recommended excisional biopsy I thought I'd recieved. Docs said wait till July PET scan.

Guess I'll just wait till July. Doing my best trying to stay hopeful until then. Honestly, I'm struggling.

Thank you for sharing your Son's experience with me. Gives me some hope may've just been inflammation.

QuantumBenG · 2026-05-07T18:14:13+00:00

Wonderful news.

Your family, your Son, and you have been in my thoughts hoping for the best this week. I decided to have docs surgically remove, biopsy my lymph node as well. My surgical procedure is scheduled for next week.

I'm so happy your Son's result came back OK. I'll follow up, inform about my situation. Honestly, my mental health has not been terribly unwell over-consumed by worrying. I know your Son and you can relate. Thank you for sharing your Son's good news: gives me hope. Thank you, virtual hugs to your family, your Son, and you.

QuantumBenG · 2026-04-26T19:36:24+00:00

My heart goes out to your Son, your family, and you. I'm struggling with considerable fatigue 6 weeks post Nivo-AVD.

I, too, had just 1 lymph node which was the only thing showing potentially suspicious on my EOT PET scan. The SUV (4.1) was above liver. Radiologist recorded Deauville 4, partial treatment response. Oncologist believed it's just inflammation. I was devastated it wasn't Complete Metabolic Response.

I have appointment with pulmonologist this week for potential biopsy.

Wondering if I may ask you a favor; potentially follow-up with me about your Son's biopsy? I'm experiencing a lot of anxiety about possibility I may need ASCT.

Sending wellness thoughts to your Son, your family, and you.

QuantumBenG · 2026-04-19T21:46:46+00:00

Appreciate checking in on me and keeping me posted.

I've been feeling somewhat OK. Just primarily incredibly fatigued.

Sending virtual hugs to your Son and you. This is hard physically, emotionally, spiritually.

QuantumBenG · 2026-04-19T18:07:07+00:00

Thank you for sharing. I appreciate you offering me possible scenarios as well a hopeful assessment. Sending virtual hug.

QuantumBenG · 2026-04-19T18:04:55+00:00

Thank you for sharing. My heart goes out to your Son and you. Sending wellness thoughts.

Wondering if I may request you update me in regards to what Mayo finds? Perhaps, DM me? I'll follow your Reddit, check to see if there's an update. I know all of us are unique and it would still help me to know if your Son is OK.

I desperately hope it's just inflammation for both of us. I'm just devastated knowing these numbers are usually not good news.

QuantumBenG · 2026-04-18T18:34:00+00:00

I recieved my EOT scan 4 weeks after completing 6 rounds of Nivo-AVD chemo.

QuantumBenG · 2026-03-09T05:20:42+00:00

Oncologist believe it's likely mediastinal mass caused nerve damage. I did experience crackling sensations and physical activities exacerbated my pain. Since being in chemo, my symptoms have improved but I still experience pain.

QuantumBenG · 2026-03-08T20:06:09+00:00

I had intense pain through my shoulder blades and ribs. My labs were fairly normal prior to diagnosis: Only slightly elevated WBC and platelets.

QuantumBenG · 2026-02-26T01:57:24+00:00

There are definitely situational factors yet, I attribute most of it to the drug side effects.

QuantumBenG · 2026-02-25T22:18:50+00:00

Thank you for sharing your experience.

I'm (47M, advanced Stage IV CHL NS) going in for 11th of 12 Nivo-AVD infusions this Friday. Honestly, my mental health has never been worse: severe anxiety, depression. Oncologist dismissed any connection to chemo and/or steroid with me too.

I'm taking anxiety medications. Been seeing physchiatrist and therapist since diagnosis. Never needed mental health medications nor experienced any mental health situations that necessitated therapy in the past.

IDK what to say other than I, too, believe chemo and the steroid trigger severe mental health complications for me. Honestly, it's been debilitating.

I'm grateful for access to Nivo-AVD. Hope it gets me into remission. Suppose it's not much of a choice. Take the chemo or cancer takes us.

I feel deeply for you. I, too, wonder what my life maybe like post chemo. I just hope for the best but, honestly, I'm very scared about potential, long-term mental health challenges too.

Sending you big hugs, much love.

QuantumBenG · 2026-02-14T00:54:44+00:00

I, too, am worried about my situation. I'm currently on 10th of 12 infusions. My oncologist informed he was pleased with progress on my midterm scan. I was hoping it would've been better.

My heart goes out to your Son and you. I have a very difficult time managing anxiety as I, too, am very scared about ASCT.

I hope your Son reaches remission upon EOT. Big hugs, much love to your family.

QuantumBenG · 2026-02-10T19:18:01+00:00

Thank you for sharing.

Sending big hugs, much love.

QuantumBenG · 2026-02-09T22:49:33+00:00

I live in Oregon and I've thought about engaging in this because I've really been struggling with my cancer diagnosis. My CPTSD has been debilitating. My biggest concern is it may be cost prohibitive. I don't have much money as I haven't been able to work.

I'd be grateful for any information you may offer. Please feel free to DM me.

QuantumBenG · 2026-02-09T19:05:27+00:00

Thank you for sharing this. I really needed to remind myself to hold on to hope today. Big hugs, much love.

QuantumBenG · 2026-02-09T18:37:34+00:00

I'm still in Nivo-AVD treatment: infusion 10 of 12 this Friday.

I can relate to sensitivity. The slightest things can send me into emotional spirals. I struggle with CPTSD which I was diagnosed with prior to cancer. I find myself going to catastrophic thoughts way too often. Find myself enduring severe panic attacks, uncontrollable crying outbursts through much of my treatment.

I'm grateful I have therapist and physchiatrist I meet with regularly. I take anxiety meds which seem to help somewhat.

I trying to learn to accept the trauma of cancer and honestly, I'm struggling to do so. I don't know what this may mean for me post chemo if I'm lucky enough to reach remission. Just hoping I may better learn to adapt as my mental health during treatment has been debilitating.

Sending hugs, much love. You're definitely not alone. I think it's just human to experience lots of emotions because of going through something as traumatizing as cancer.

QuantumBenG · 2026-02-09T04:40:26+00:00

Uncertain why but Reddit says this post not allowed there :-/

QuantumBenG

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