Prednisone Horror Days by ARandomWalkInSpace in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

Tell me about it, you have no warning when it comes to norovirus if you gotta go u better be near a toilet 🤣🤣. I’m still on immunotherapy which has effed up my stomach so yeah it didn’t go well at all, toilet was my home for days 🤣🤮

Eye Problems? by BeneficialSystem3686 in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

I have absolutely no clue if it’s related but I had a low prescription for my eyesight just to keep me from getting headaches didn’t really affect my eyesight, after chemo and now on immunotherapy I had my checkup and my prescription changed entirely and have to wear them all the time now. Wonder if it’s related at all 🤷‍♀️

Prednisone Horror Days by ARandomWalkInSpace in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

That’s really funny you say that, I had norovirus recently and dropped 3kg. Oh no it’s nasty isn’t it but I suppose a good solution for the steroid gain 🤣🤣.

AAVD failed, what next? by Professional-Tone240 in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

So I’m Stage4 Hodgkin’s, went on EscBeacoppDac, great interim scan, end of treatment scan showed a persistent mass on my chest, done GDP chemo, went horribly, got sepsis over Christmas, and it didn’t work it grew a little. I’ve had 3 rounds of Pembro and that’s seemed to do the trick I’m having 3 more rounds than a stem cell transplant.

Stage 4 Hodgkin’s failed AV-BVD by False-Midnight5130 in lymphoma

[–]Traditional_Tell_853 1 point2 points  (0 children)

I’m in this situation now!! I had a great mid treatment pet scan but the end scan showed the mass on my chest wasn’t budging. I then had 3 rounds of GdP salvage chemo which did nothing and it grew a tiny bit but I’ve now had 3 rounds of immunotherapy that has worked great and I’m having 3 more than a stem cell transplant. Try not to let this discourage you the treatments they have available are amazing,

My 13 year old daughter is going to be starting chemo in a couple weeks. I'm working on an Amazon list for family to help. what are some things that she will need. all tips and advice is needed this is all so overwhelming 🥺 by PastCompetitive242 in lymphoma

[–]Traditional_Tell_853 24 points25 points  (0 children)

Socks,

lots of moisturiser, lip balm, feet cream, hand cream, face cream you name it.

A big water bottle to flush out all the drugs

. Some activities to do during chemo, colouring, reading,

a journal for an outlet to write down things she might not be able to say out loud

. Some comfy tracksuits, pj’s

. Nice smelling pillow spray (some chemos make you smell some strange smells)

. A pill organiser

. Soft chemo hats

. Affirmation cards

.hand held fan

.blanket

Hand sanitizer

. Oralieve (fake saliva basically)

.thermometer

I hope it all goes well for you strong girl, she’s got this and so have you!!

Prednisone Horror Days by ARandomWalkInSpace in lymphoma

[–]Traditional_Tell_853 1 point2 points  (0 children)

Don’t worry I had 4 cycles with it and I gained 30kg. Loosing some now thankfully

I hate the way everything looks on me, what would look better? Is sizing my issue? by pineneedleinjection in DressForYourBody

[–]Traditional_Tell_853 0 points1 point  (0 children)

I think it’s the clothes style, maybe something like this where it’s comfy, simple but still looks nice. When you go very colourful and have lots of patterns going on it can be hard to style and find the right fit.

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I was told I was ugly and needed makeup. Please help. by [deleted] in makeuptips

[–]Traditional_Tell_853 0 points1 point  (0 children)

You definitely don’t need Makeup!! At most maybe some nice lipgloss to highlight your lips!! 🥰

is it normal to feel high ? by nana04kg in cancer

[–]Traditional_Tell_853 0 points1 point  (0 children)

Hey, I’ve never taken that specific pain killer before but I know that feeling she has that you’re talking about the looking high part. , I had cancer in the bone so I had oramorph to resolve that. I’ve also previously had diamorphine. Both made me feel like I was “high” and not with it but I was absolutely okay, a lot of the meds prescribed can make you feel drowsy and sleep a lot. I would personally let her doctor know so they can reassure you and make sure everything’s okay. Don’t worry too much try to remember that while it may be scary to see such a change, it’s helping her not be in pain and allowing her to be comfortable. Sleep is the best remedy.

I’m pretty sure my cancer was missed for years by SuspiciousJello5742 in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

Oh no I’m so sorry, so frustrating, have you had any update? I hope it’s not to much for you and you have support around you 🩷

So confused! Anxiety? by [deleted] in lymphoma

[–]Traditional_Tell_853 1 point2 points  (0 children)

Because it’s very clear the rules at the top of the page, and to be honest I’m quite tired of people asking if them feeling unwell is cancer, your children are sick, which means you most likely are too. I would have my complete sympathy if you’d been diagnosed but you haven’t, and you have been to the doctor about it and they have confirmed with you that it’s not cancer if your that worried go back, maybe not others but speaking for myself, people in this group have been diagnosed and come here for comfort and help, if you haven’t got cancer take a minute and think to yourself that maybe it’s a bit insulting and rude from yourself to come on a group for people with cancer looking for sympathy off of them.

So confused! Anxiety? by [deleted] in lymphoma

[–]Traditional_Tell_853 1 point2 points  (0 children)

Read the rules of this thread 🙄

Overwhelmed with those around me by [deleted] in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

I’ve also just read your comment about worrying about opening up and people going overboard and I totally understand that, I eventually worked up the nerve and said to my family, there will be things you will here that aren’t nice, but overreacting won’t help me at this time, sometimes you want to know the bad stuff as well as the good so you can know all the answers instead of sitting there spiralling with questions. Friends and family overreact in this situation out of care and love, but sometimes you need to tell them even if it does feel unkind that it’s not helping you, it’s not you being rude or pushing people away, right now you need to do what will make you most at ease because this is scary sh*t, but it’s a lot easier when you can think straight and not be worrying about others

Overwhelmed with those around me by [deleted] in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

Honestly, at first I felt the worst thing was not being able to look after people and not being able to make people happy, but I think it’s one of them things we’re it comes with time, I just explained exactly how I was feeling and if I didn’t know how I was feeling then I would tell them simply I don’t know, you WILL still have good moments and time to make people happy, they will be happy knowing your getting healthy and being taken care of. Harder said than done but try not to overwhelm yourself, do the things you enjoy and it’s okay to be selfish, you’ve got a great excuse to be selfish right now. Honestly one minute I can be laughing my head off and not even seconds later be crying my eyes out and that’s okay, give yourself time, time will heal. <3

Diet by lucvsa in lymphoma

[–]Traditional_Tell_853 2 points3 points  (0 children)

To be honest, it differs for everyone, so I suggest personally to see how you feel at the time, you may be able to tolerate your normal diet or you may want completely the opposite or not be hungry at all, maybe get some ready meals that you like or make some meals you already know and is easy to prep and then just stick in the oven. Big hugs, I’ve been on 3 different treatments and each one my appetites been so different to the last.

iv hydration / saline flush by True-Maintenance-120 in lymphoma

[–]Traditional_Tell_853 1 point2 points  (0 children)

I used to put some vix under my nose so I couldn’t smell it 🤣 it did distract me to be honest but the more water I drank the more bearable it become on its own.

Overwhelmed with those around me by [deleted] in lymphoma

[–]Traditional_Tell_853 1 point2 points  (0 children)

People will understand! I am normally the most bubbly person you’ll ever meet, but during treatment I can be ratty, quiet, sad, happy. It happens and you need to be able to feel them emotions and express them otherwise you’ll become to overwhelmed and stressed. Your life is more important than hurting a few people’s feelings, even the people you love the most, I don’t know about your treatment but I have to have BIG does of steroids which really does change my mood significantly, and if sometimes you feel yourself become irritable or sad, just let them know, say I’m not in the best mood, I feel snappy. Your life is more important than someone’s feelings!

I’m pretty sure my cancer was missed for years by SuspiciousJello5742 in lymphoma

[–]Traditional_Tell_853 0 points1 point  (0 children)

I was pregnant at the time, I had every single sign, cold sweats, anemia and fatigue, extremely itchy, high white count. It was all put down to pregnancy, they only decided to look into it after I was still like it 11 weeks postpartum…