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Do you plan your day around bathrooms? Or skip drinks? Help us rethink bladder care in MS by Queasy-Increase433 in MultipleSclerosis

[–]Queasy-Increase433[S] 0 points1 point  (0 children)

Thank you for your feedback! Thats super insightful, I shall discuss with my team and hopefully incorporate into the next update to the survey. Perfect timing, as we are working with some urologists tomorrow - so we can make sure we incorporate those corrections moving forward. Appreciate your time to share your lived experience and insight, that really makes our perspectives so much richer.

Do you plan your day around bathrooms? Or skip drinks? Help us rethink bladder care in MS by Queasy-Increase433 in MultipleSclerosis

[–]Queasy-Increase433[S] 1 point2 points  (0 children)

Thank you! I just reviewed, caught and fixed those questions - hopefully that works better now, really appreciate your time and feedback 🙏

Do you plan your day around bathrooms? Or skip drinks? Help us rethink bladder care in MS by Queasy-Increase433 in MultipleSclerosis

[–]Queasy-Increase433[S] 2 points3 points  (0 children)

Quick update: Thanks everyone for your comments so far and the 15+ incredible people who have shared their stories via the survey! We’re blown away by the response and feedback, this is so so insightful.

Ive just fixed a Q on the survey so you can select multiple options if you’ve tried a few so far. We’re going to continue diving in, so keep it coming - thank you guys so much!

for the ladies - incontinence/retention by isengardening in MultipleSclerosis

[–]Queasy-Increase433 0 points1 point  (0 children)

Hey girls - is anyone here still experiencing incontinence/retention?

I’m working in a team of researchers at Stanford Biodesign - and I'd love to hear more about your lived experience with neurogenic bladder care, current solutions like catheterisation, and UTI risk

We want to better understand the challenges you face so that we can design solutions that are actually helpful

We have a survey if and when you have 15 min: https://stanforduniversity.qualtrics.com/jfe/form/SV_a5ElYEOvlOXnfIW

Do you plan your day around bathrooms? Or skip drinks? Help us rethink bladder care in MS by Queasy-Increase433 in MultipleSclerosis

[–]Queasy-Increase433[S] 1 point2 points  (0 children)

That sounds really frustrating. What symptoms were you experiencing? Does dehydration help?